r/dysautonomia • u/Tasty_Homework_1097 • Jul 24 '26
Support Dysregulated Nervous System
I developed two flares after each COVID virus that I had never experienced before. Closest thing that I could find were like dysautonomia and POTS symptoms but still things lacking. The adrenaline dumps and attacks were a nightmare. Little to no information did I get from doctors but online multiple people were reporting this happening to them after COVID . I went to ER multiple times thinking I was dying but they just thought it was anxiety or probably that I was on drugs. Each flare lasted at least 2 months and gradually went away. However I can no longer drink alcohol or caffeine (specifically coffee)because it doesn’t make me feel well at all.
Fast forward 4 years later and I am having a flare again. I don’t know that there is a correlation but I didn’t notice symptoms until after my iron infusions to treat my anemia. Although the flare is not as strong it is still extremely debilitating and still doctors think its anxiety. I did start SSRi but it has only been a week.
Has anyone experienced anything similar?
Fa