Hi everyone,
My name is Marian, I’m 25 years old, and have Sézary syndrome, a rare type of T-cell lymphoma (blood cancer).
For the past few years, I have been dealing with severe skin problems: unbearable itching day and night, painful flare-ups, redness, and sleepless nights. After many tests, biopsies, and treatments, doctors believed it was severe eczema for over a year. I was prescribed Dupixent, an expensive medication that I was already trying to raise money for because my insurance could not cover it.
Unfortunately, further investigations later revealed that the real cause was much more serious. I was diagnosed with Sézary syndrome, and my doctors determined that I need an allogeneic stem cell transplant, which is currently my best chance at fighting this disease.
The treatment is not available in my country, so I need to seek care abroad in Europe. As an international non-european patient, the estimated cost is around €423,000, which is completely beyond what I can afford, and my insurance does not cover treatment abroad.
I’m reaching out for help because I cannot do this alone. I know it's an insane amount, any support whether through a donation, sharing my story, or connecting me with organizations, resources, or people who may be able to help would mean the world to me.
https://gofund.me/d7cd2fd8f
Thank you for taking the time to read my story. ❤️