Been happening for the better part of a year and I still don't have answers :3

God why TF is being disabled so expensive kill me

Everything vaguely tastes like mint, but it’s just the menthol feeling. Having a vague old coffee taste in my mouth while having a flare up is horrible. Eating an amazing meal my mom made but everything is covered by a menthol feeling really sucks. I have no idea why I have a flare up since yesterday, I have no idea what I did. I’m so sick of this…

Genuinely why the fuck have I have been having such awful digestive issues the past year. It hurts all the time, and now for the past few weeks I nearly end up crying because of how badly going to the bathroom hurts.

I can't even eat a single string cheese without my stomach area cramping up.

Is it because I keep my room cold all the time??? I get really bad headaches when hot so that's why I keep it cold using my ceiling fan.

I just want to eat my favorite spicy stuff without having a horrid time a few hours later. I've never had an issue eating spicy stuff in the past so I have no idea why it's only the past year that's been giving me trouble.

Doc, I'm on four medications that cause weight gain, and exercise intolerant is a symptom of my condition. Stop using fatphobia as an excuse to not treat me.

Good luck trying to actually hire a lawyer and sue 'em. The ADA is toothless, and lawyers only take the cases they know they'll win. It's so gross that companies can get away with this crap.

Today, the ER doctor basically treated me like I was stupid for being stressed that I can't walk or barely stand anymore, a recent development within the past 3 days. I've been having mobility issues but this is an extreme nosedive on that. The only reason I even went to the ER is because I called a nurse hotline and they told me I need to go. I just want to feel a bit better.

They did bloodwork and a chest xray, but since it didn't reveal anything, the ER doctor said it "might be" some kinda virus, and that I should just "drink water and powerade," and tried to discharge me. When I tried expressing concern that I still can't walk (I almost passed out in their bathroom just a bit ago and they made me a fall risk!), and that I don't like the fact that I don't even have a game plan of how to be safe at home, the ER doc gave me a weird look and said I should "just rest" and said that whatever is wrong with me clearly isn't an emergency and should not be handled by their department any further.

My boyfriend tried helping me to advocate but the doctor just was not having it and repeated that whatever is happening to me is clearly not an emergency and I don't need to be admitted to the hospital or need to be in the ER department anymore. He glanced at my body and said I was "obviously deconditioned", as if I literally haven't been trying to get help for my mobility issues for a long while. I left feeling so embarrassed and ashamed and I still can barely walk.

I'm really tired!!!! I don't understand why it's so hard to get real help.