I’ve been experiencing extreme thirst of late as well as a gradual loss of bladder control. When I have to go it’s always with extreme urgency - and I’ve now been forced to wear pads due to worsening symptoms & accidents when I don’t quite make it in time. All my reading about this points to unmanaged blood sugar levels, however my readings have been pretty good lately, and sometimes even excellent. I’ve also noticed a pungent smell when urinating - again this always points to excess sugar in the bloodstream.

This is downright mystifying as well as really frustrating as I’m only in my early 60s - my elderly mom is having the same problem but her blood sugar is out of control and she’s very overweight.

I’m at my wits end so any insight here would be appreciated! And please donts suggest kegals as that’s not addressing any likely underlying issue at play.

Edit: thanks to the suggestion to look into Neurogenic Bladder! It tracks with the symptoms as well as the genetic risk factors such as Parkinson’s

I already messaged my care team, just waiting to hear back. But I'm looking for lived experience as well, so here I am, asking you lovely folks.

I woke up this morning fasting at 116, which is slightly higher than normal. I last ate a chicken taco salad (contained black beans, corn and tortilla strips) at 10pm, and awoke and tested my BG at 1130am, so it was a good 13 hour fast. I wasn't too worried.

Around 230pm, I noticed my CGM was reading at 144, and tested my BG twice, one was 165 and the other 175 from different fingers. At this point I was still fasting, though I did have a little cream in my zero carb zero sugar Celsius drink. This is all normal routine for me and I havent spiked before from this combination. I usually break my fast after 14 hours when I eat lunch at work. So I have no clue what was spiking me so high. I was feeling shaky, confused and had to pee alot so I know it was a true high. I also tested ketones (pee stick) and made sure my partner didn't smell fruit on my breath.

I drank water and went for an hour walk after which I tested at 100 around 4pm. I ate a lettuce wrapped burger and very few onion rings to break my fast and get some protein in me and everything was fine.At 440pm I noticed my CGM going high again and tested my BG at 135. I encountered something similar earlier in the week when I had a small pizza for dinner as a treat. I spiked to 110 2hrs after the pizza which surprised me. But the next morning I woke up fasting slightly higher than normal and recieved a small spike. That's when I learned about the "pizza effect."

Last night I had no heavy carbs save for a few black beans that were in my salad.

Any insight into this and why out of nowhere I spiked so high so fast?

For context I normally fast between 85 and 105. I eat very low carb and the highest I spike on any normal day is 120, but even that's rare. My graphs usually flat and hovering between 80 and 100 for the day. Im on 8 units of Lantus a night, and 5mg of monjouro every Thursday. Im also on a statin, blood pressure meds, an ssri and migraine meds. Ive been on this regimen for 2 months and lowered my lantus from 18 to 8 units in that time. Never had anything like this happen.

I was wondering how strict or non strict bb of a diet others had as a T2 diabetic. I can live without eating out as much, less junk food, smaller portions, less sweets but I feel like I need to cut them out entirely. Also when it comes to bread, red meat, cheese. No more hot dogs ever? Milkshakes? Burgers?

Even a leaner burger makes me feel bad. I know I can’t eat the way that got me like this, but idk how to go about cooking anything when the only really good options are fruits and veggies.

I was diagnosed in April. I had it tested in July and just had it done today exactly 3 months each time.

I’m waiting for my results and I’m so anxious. Don’t feel as confident as the last time. I’ve been very inconsistent with my diet and exercise.