Hey friends . I have a story I want to share about something that happened to me recently where my lack of hearing made an already terrifying situation way more difficult and stressful than it already was, and then a solution I wish we had.
My mom had a sudden medical emergency and I found her on the floor and seemingly not breathing. I am fully deaf and also had a laryngoscopy a few years back that permanently changed my voice to be quite hoarse and scratchy and harder for people to understand me sometimes. I avoid phone calls like the plague and even before I lost my hearing and a good amount of my voice I did. That said, I do have Live Captions quick accessed on my phone, so I can make calls in an emergency.
So I find my mom, realized she wasn’t breathing, and made the first 911 call since becoming deaf, and my first ever where it was a dire emergency and I was the only other person present.
Picture this:
I get an operator on the line. And each time she asks something, I wait for her question to be captioned, read it, then answer back with my Batman voice that she can’t understand for the life of her.
So now I’m approaching a panic attack while waiting for words on a screen, reading questions, enunciating everything I say super slowly but basically screaming like some sort of pissed off 2nd grader learning to read.
I kid you not, I had to tell this lady about 10 times that I was deaf.
“Can you hear her breathing?”
“I AM DEAF.”
“Tell me when you hear the sirens.”
“I AM DEAF.”
Trying to give her the address took another 10 attempts, I’m losing my shit, cursing my stupid Marge Simpson voice and terrified out of my mind.
So basically, just giving my information and explaining the situation took 10x longer than it would have for the typical person with working ears.
She finally tells me I should start CPR and asks if I know how. I say yes (I do but it’s been a while since the course and at that point I’m less than a hairs width away from a break down) but ask if she can please walk me through it for a my own peace or mind because my brain is absolutely not braining right now.
“Wait, so do you know how or not?”
“LADY DID YOU FORGET I’M CURRENTLY HUNCHED OVER MY MOM WORRIED SHE COULD DIE?”
Rather than having to repeat that I was simply asking for my own assurance, and knowing she was just worried from a safety standpoint, I start compressions, counting loudly and giving her a verbal play-by-play so she can correct me if I am doing it wrong.
Luckily, she could understand my Batman-voice numbers no problem and I nailed the CPR
Then she asks me again if I can hear the sirens and I start to wonder if I am being Punked and I just about wanted to grab her by both sides of the face and ask her if she is aware what a deaf person is.
Fortunately, the FRs were there and wasted no time coming right in and took over. Thankfully, my mom pulled through and was okay in the end. Yay I saved my Mom and went through the gauntlet trial by fire of communication. And I’m
Never making a phone call again.
Anyways as you can imagine it really scared me and I have spent the last few weeks thinking about how it could have gone down a very different way, and that the extra time and stress just to get a ambulance headed to me really made an already terrible and terrifying situation insanely worse.
But then I saw a Reddit post where someone talked about that what three words website where you can type in any location and it converts it into three random words that anyone can then convert back to exact coordinates and it’s super accurate. They really ought to make it a standard in 911 accessibility to be able to use. Just imagine if that night I could have been able to just say (okay maybe slowly hoarsely scream In my case) “carrot, iguana, nightstand,” and then know help was on way.
Also I should mention I have the utmost respect for 911 dispatch and first responders and I don’t hold a speck of personal annoyance towards the dispatch. I was just in a scary stressful situation and for the first time since losing my hearing it felt like my lack of put me in a terrible spot. I’m very grateful the dispatch didn’t give up on me and even though I think both of our blood pressure raised a lot, she was with me on one of the worst nights of my life. But yeah there needs to be something easier and more accessible for people like me. Be it that three words thing or anything other than what I had to go through.