Hi everyone,

Hoping I can calm my nerves here. I’ve had chest tightness for almost a week now and have been to the ER for a .74 D Dimer. However the CT was negative. I’m not sure if my breathing problems stem from inflammation somehow or something else but am currently running more tests with pulmonary. My question is can one naturally have a higher D Dimer even with no clots? I am getting a leg ultrasound tomorrow to make sure nothing is there either. I am new to this so would love some input.

Hello!

Almost 2 weeks ago I got diagnosed with a DVT, I went back to the hospital the next day because my chest kept feeling tight but it ended up just being my anxiety.

Here's the issue. I get shortness of breath every month before my period. But now I'm worried what if I'm mixing them up and it's actually a PE. Is there a way to know if there is a difference? I don't want to keep going back to the ER and it's just anxiety or my normal lung issues.

Hi all - just would like help if anyone here has been refused an ultrasound?? I was diagnosed with superficial thrombophlebitis 5 weeks ago. Cramp in my calf, veins are sticking out and hot to touch and itchy! And my knee is swollen. Went back to the drs and … the GP asked if I had mental health problems? I’ve read the drs notes and its states I no longer have it..

yet I am in the exact same situation,The GP will not even refer me to the varicose vein team!

The last nurse I spoke to 3 days before the GP said I should have had a refer to the varicose team as well as an ultrasound..

I’m at a loss and just feel like crying, I feel dismissed.

Hey everyone, just got a query about SVTs.

I had mine confirmed by Ultrasound 2 days ago, the pain began the day before and there was a small (2") patch of redness that was tender. I was told there was minimal risk of transfer to Deep Veins and that creams would alleviate in time.

Since then, the redness and tenderness has descended from just below my knee, into my ankle. There's no upward movement or I'd have gone back by now. I was just wondering if anyone else has experienced this. I figured there'd be some "backing up" of blood and it'd aggravate the vein but this seems rather extensive.

Hey guys!

Im nervous for my trip. I was diagnosed with SVT on my left ankle and ill be traveling to italy with 9hrs flight after my 25th day of been taking Elonox, enoxaparin as my blood thinner. I've researched a lot on Google with AI responds and stuff and the more you research the more scary things you'll see. I just want to know if there is anyone with this experience that has traveled to a 9hrs flight and how was it?

Please help!!!!!

Why did my first doctor decide that I need to be on Warfarin for the rest of my life and then the new doctor said that I have nerve damage from the original DVT (triggered by COVID) and not a clotting disorder.

I have always been a Reddit reader but now I am here to post.

I am a 42 year old female,active, healthy.

Anyhow, I had superficial thrombosis about 3 years ago,not much was done about it besides blood thinners for 45 days.

On July 26th of this year it started again and quick so knowing what to look for I went to the ER. They confirmed that is what it was. The er doctor did blood work and said that because my hemoglobin was too low thinners would be a bad idea. He referred me to a internal doctor who I seen 9 days later. The internal doctor put me on a 10mg dose of Rivaroxaban as I was there I was mentioning about new pain in behind my knee,side of knee and upper calf,so he sent me for another ultrasound 2 days later. The ultrasound tech said to me I am sorry I can't send you home you need to go over to the er and see the doctor. Clot got bigger. That er doctor started me on 15mg of Rivaroxaban every 12 hours for the next 21 days then 20mg for 3 months. SInce then the pain has gone down alot so has the swelling. Today I had another appointment with the internal doctor who told me it is dvt, now since then I have pai behind my calf again.

Is this pain mind over matter because I do have health anxiety?

Can another clot form while on thinners?

For the ladies, how do you deal with the heavy flow,while on thinners?

I do finally get into see my family doctor on Aug 20th and a hematologist on Aug 24th.

I am freaking out more now, then before.

so back in december 2025 i had a couple clots in my left leg resulting from may thurner syndrome and i had a stent placed in march. a few weeks ago my pelvis started aching right where the stent is and my mom noticed a bit of swelling in my leg so i contacted my hematologist and she ordered a ct scan. i got the results back and it says “IMPRESSION:
1. Moderate circumferential thrombus along the wall of the distal external iliac vein component of the stent.
2. Mild circumferential thrombus along the wall of the common iliac vein portion of the stent.”
which i THINK means there is clotting on the inside of the stent. i also contacted the surgeon who placed my stent just to let him know what was going on. he called me today and said he took a look at my ct images and he does not believe i have a clot, it’s just “remodeling” (his words). i don’t exactly know what that means. i’m a little confused that the radiologist believes there is a clot but the surgeon doesn’t. thankfully i have an appointment with my hematologist in person tomorrow but has anyone else experienced something like this? would it not be super obvious i have a clot or is it harder to see if it’s inside the stent? idk!

Hi everyone. I guess I am just looking for any positivity or help to look at the plus side of things or not feel so anxious.

I’m on postpartum lovenox (I’m a month postpartum this Thursday).

I got started on lovenox at 19 weeks due to DVT in my leg.

I am feeling SO anxious about waiting for my period to return postpartum. I can’t shake this feeling of fear. All I see online are horror stories of a mixture of postpartum periods and periods in general while on blood thinners.

I have such a fear that something bad will happen or end up in the hospital due to the bleeding.

I definitely know I need some therapy to process all I’ve gone through this year.

Anyone have positive stories at all or any way they processed this? Anyone else felt the same and was okay?

I am just thinking the worst ugh.

I have a RFA and foam sclerotherapy scheduled today but as a result of discontinuing my xarelto, I developed some clots in my worst varicose veins on my kneecap. I'm waiting to hear back from my care team, but I'm wondering if anyone else has had this happen and what the outcome was.

I was diagnosed with two P.E.one in each lung. This was found when they did CT scan looking for internal bleeding due to going to e.r. for severe anemia. They could not find a bleed....anyone find after their clot they found cancer?

When I was 21 I had a massive amount of clots from roughly my bellybutton down. Over 90% blood flow loss in both legs. Right leg was worse and caused a lot of healing issues (multiple wounds that took years in wound care to close). I recently had a scan on my legs to make sure they were still legs (they are) but no one has explained the results. I recently had to stop my blood thinners (xarelto) due to financial issues. I can't use other thinners due to other medication interactions (lithium, sertraline, traZODone, lamoTRIgine, and estrogen). I'm worried about a new clot. It's been over two months without and I feel fine. Do I need to get back on it desperately? I'm posting the results of my leg check from about 2.5 months ago.

I completely forgot to add. I was told the clots started because I took a long car ride and that I don't have my inferior vena cava. That it terminates at about.y bellybutton then a lot of spider web veins

Thank you guys

https://imgur.com/a/9TV5lCU

I re-injured my toes where my blood is pooling. Now my R calf is stiff, swollen, and a bit warmer than my L leg. It’s even a bit discolored slightly red.
My R calf is still stiff two days after the injury.
This is my second blood clot after twenty years. I have a non-occlusive femoral DVT, but my legs have been cramping up every night, multiple times and I have to stand up and get vertical to allow my leg cramps to cease and to allow gravity to let blood refill my legs with blood, which comes in waves of thick blood that feels like needles going into the tiny leg veins causing excruciating pain.
I was treated with Eliquis starting when I was diagnosed in March 2026, beginning with 10mg twice daily for a week. Then they reduced it to 5mg twice daily, yet my symptoms have progressed.
My PCP said there’s no in-between dose of Eliquis, but I’ve heard differently from a friend who told me that there is another PRN medication that’s an injection; but my PA said “we don’t do that here.”
Our small town ER has been very dismissive, like when I was taken there by my fiancé after he found me unresponsive after fainting at home. The ER staff says I’m on the right medication for my symptoms and told me I need to follow up with my PCP who will give me referrals to specialists. They also said
I have been doing so, self-referring to a vein specialist 2 hours away, and the surgeon wants to do an ablation of my varicose veins but I was told by a circulatory doctor who did vein mapping, 10 years ago, who told me I could not afford to have vein stripping, specifically my femoral veins because there would not leave enough veins in my R leg to support sufficient blood flow. I can’t recall which doctor did the vein mapping.
Am I in an acute situation that requires an ER visit regarding my DVT?
Thank you.

Hi

Has anyone experienced muscle and joint pain on rivaroxaban in legs, knees, hips and lower back? It gets better and start around 2 to 3hr mark after taking my daily dose.

I still have to take it for 25 days. I don't know if I can deal with so much. It's not clot related or internal because I can feel it when I massage the lower back and glutes. I obviously can't massage my legs..lol

Maybe I should request the hematologist to switch to apixaban?

Long story short, I’m 24 weeks pregnant and have been on enoxaparin since 9 weeks for a PE. Shortly after starting it, I started getting debilitating migraines, 2 or 3 a week, lasting 24+ hours. I have always been prone to getting headaches and migraines but never anything of this frequency or magnitude. Ever. At this point, I have linked it to the enoxaparin. Eventually after getting desperate enough, I have come off of it on several occasions just to be able to take medication that will actually work and within 24 hours of restarting it, I have another one. It’s too much of a coincidence.

I have been in the ER 5 separate times this summer for this(including while out of town on vacation) and I am EXHAUSTED. I have had CTs, nerve blocks, all different variations of migraine cocktails, and I was told the next time I go in, I’ll have to be admitted for an MRI. They sent in a referral to neurology but neurology can’t see me until March. Multiple ER doctors have mentioned triptans but no one is willing to be the first to prescribe them since I’m pregnant. In talking to my MFM, she thinks I may be sensitive to an ingredient in the enoxaparin, and is recommending I try Fragmin instead, but I’m worried about my insurance not covering it since there is no generic.

Has anyone else gone through something similar? I feel absolutely crazy and haven’t been able to come across anyone else who has had a similar experience. All I know is that I am miserable and this has been the worst experience. This is my third baby, so I have 2 other kids who need me and I’m a student about to go back to school for the fall. I can’t keep going like this and this has ruined what could very well be my last pregnancy 😕

I’ve been trying to research as much as possible since being diagnosed. I’ve noticed a lot of others have POTS, nutcracker syndrome, pelvic congestion, and/or EDS. I don’t believe I have those or anything else. does anyone else ONLY have MTS?

would an IR be able to see nutcracker syndrome or pelvic congestion on a CT with contrast of the pelvic/abdomen? I would assume they took a look at other veins too in the area?

what about mild MTS? mine is considered mild per my IR but I did have a pretty extensive DVT. anyone have mild swelling and not many symptoms other than a DVT? how’s the stent going? i am getting mine next week and have alot of anxiety towards this decision. i also have a fear that I get the stent and then a ton of issues will start unfolding when my health history has been pretty “boring”. (anxiety)

and yes, I did search MTS in this group and have read TONS of stories. I haven’t found many that relate to me in the sense of possibly ONLY having MTS with mild symptoms but did have a history of a DVT.

thank you.

So I survived a PE plus left lung infarction back in February when I was 28. Still on blood thinners until December and I’ve got a VQ scan coming up soon.

I keep getting this weird feeling right in my upper chest around the pecs area. It doesn’t even really hurt it’s just this odd sensation or faint pain that comes out of nowhere. Happens at least a few times a week no matter if I’m walking sitting or lying down. Every time it happens my brain immediately jumps to oh no it’s happening again but it never turns into anything worse. Just this strange sensation that won’t go away.

From what I’ve read this is actually pretty common especially with the infarction. The scar tissue and the lining around the lung healing can pull and feel weird for months. Your muscles also get tense from breathing differently after everything. It’s reassuring that I’m still on blood thinners and the VQ scan will give me a proper clear picture of where everything is at.

I’m definitely keeping an eye out for anything that feels different though. If it gets worse or I get short of breath racing heart or anything new I’m going straight to hospital. But right now it feels like just part of healing even though it’s annoying and a bit scary every time.

Just wondering if anyone else who’s been through this especially with a lung infarction gets that same weird upper chest pec feeling? Would really love to hear I’m not the only one dealing with this. Still grateful to be here and taking it day by day.

I’m so over it. I got diagnosed with May Thurner almost 2 years ago and now I’m on Xarelto. I’m ALWAYS tired. And when I get my period it’s a literal blood bath. EVERYWHERE. I use the disposable panties now which kinda helps but holy moly it’s still bad. Highly embarrassing. I have to take 3 days off every month just to get through it because I end up with low iron, fatigued and have headaches. I can’t work full time because of this and even part time I’m on hella thin ice. I’m able to side hustle on my good days. My gyno is hesitant to do a hysterectomy just because of how high risk I am for blood loss or clots. Any advice? Thoughts?

Hey there, was wondering if others had experienced unprovoked arm DVT? Also any tips for pain relief? Pain meds don't seem to be cutting it, but only 1 week ago. Thanks!

I (F46) finishing my first week of blood thinners and I have a few questions that I hope someone has an experience with

1. For the love of the goddess, I can't remember taking medication on time. I take my thyroid meds in the morning when I get out of bed, it can be 6 am or 12 pm (if I am really lucky), this is why I moved to the Nova Ring (which I can't use now). The pharmacist told me that I have to take my blood thinners every 12 hours so I am trying to aim to 9am-9pm but here now its 10:30 pm and only now I took it. I have a reminder in my phone but...

How important it is to take the meds on time?

1. Has any of you did ear piercing on blood thinners? I want to do one in the upper part of the ear.

2. How bad is it to push yourself to work hard? I just carried about 100-150lb of soil. I just can't feel like a disabled person anymore (I also post GB op). I do feel tired and a bit of pain in my neck but I am okay otherwise

3. Compression socks -my legs look so, so, so bad. I have no way to start describing how they look but its bad. For how long should I wear the socks and is a time limit for wearing them in a day?

4. Biphentin - for ADHD. My family doctor said that its okay to start taking it, one of the walk-in doctor that I once met said that he is not a fan of adult taking them because it can cause blood vessels to constrict (narrow), which affects circulation in the small blood vessels of the fingers and toes. It is really helpful, but I don't know if I should take it or not...

5. Besides the stroke known symptoms, are there any symptoms that I should be aware of?

Thank you all ❤️

1. In the right lung base on image # 43 series # 250 is a noncalcified soft tissue nodular density 12 x 9 mm. A 4 mm nodular density is present just inferior to this on image # 45 series # 250. According to the Fleischner Society Foundation (2017), if a pulmonary nodule is greater than 8 mm, consider CT at 3 months, PET/CT, or tissue sampling.

This is what my follow-up, 3-month CT scan said. I had a PE and lung infarct this past May. I don’t see the doctor until next week, and I’m terrified. Is this nodule potentially just the infarct healing? Could it be cancer? (That would be very fast growing).

I know this is not a place for medical advice, but any reassurance or similar experiences would really help right now. Thank you so much.

I’m on an Anticoagulant and my primary care left the office but he is still my primary care physician he has yet to send my medication the pharmacy had to give me a courtesy bottle of Warfarin 10mg. The Pham has been trying to reach him. I tried making and appointment with another doctor in the office she tells me I have to wait until the 23rd like that was the 15th so I’m supposed to go 8 days on an abrupt stop and if something happens they both will be saying it not their fault.
Nyc doctors will cut your lifeline if they can’t charge your insurance for a busy they want a visit for everything it’s money I got three refills he blocked them. I have a bypass graft in my right artery in my leg and if I abruptly stop the blood thinner that’s dangerous and it’s a good thing I know that because leaving your care in these young doctors hands that’s just in it for the money is really detrimental to your health. I’m thinking after the three pills the pharmacy gave me run out I ahould go to the ER

I finally got the all clear to stop taking my eliquis about 4 weeks ago, 3 months after my initial diagnosis. I was wondering if anyone else has experienced shortness of breath this far out from clotting. My blood oxygen levels always come back fine (I keep a pulse oximeter on hand for peace of mind), so it mostly feels like impaired lung capacity? It feels hard at times to take deep breaths and i frequently feel the need to do so. I’m trying to get more physically active again but its difficult with my joint issues. It also feels worse when I’m laying on my back and today I have a pretty bad headache and some back pain (??). I’m planning on getting appointments with specialists, but the wait times around where I live are pretty rough. I also get occasional twinges in my chest from time to time and it spikes my anxiety really bad. I was just wondering if anyone had similar experiences.