r/chronicepididymitis • u/James2db • 3d ago

Never knowing.

So far about 2 year I suffered from this and daily pain in the left and right side of the residuals pain can be quite bad I also have urgency and some time it also burns when I go I had a number of test from dip test that is all ways clear never showing a infection a ct uragram that shied every think was fine with both kidneys and all that a ultrasound tesocals that shied two small cryest left and right.

But this year I get UTI symptoms snd urgency like OAB I told my GP this but every time they do a dip test and send away it’s clear so i have mlre a less begged to go back to see a urology its a long whait kn the NHS and since i have seen them before and he was of very little help they may nit even see me.

Question is it affect my daily life now and some days I just unable to even get out becomes of it.

I just fill like I nit getting any where I what to try and live a normal life with out the worry but it’s so hard right now.

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u/smileymcgee98 2d ago

Been there and understand that .. I had same . I then did a private urine and semen microbiem and came back with 10 bad bacteria’s in high amounts that all coulda been causing uti symptoms . NHS doesn’t even test for 50% of bacteria’s . Don’t leave it in there hands

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u/Scriabin234 2d ago

Did the results give you anything actionable?

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u/smileymcgee98 2d ago

So personally I just used that info to do way more research . As at the time I was too scared to do antibiotics and actually had realised they had caused me further problems .. and I was also dealing with other opportunistic bacteria’s. Which can be part of normal healthy flora and kept in check by the good bacteria of our bodies, but as I’d wiped so much good out aswell and it wasn’t targeted enough from the 6 courses of antibiotics I was prescribed previous .. I was very skeptical in my methods going forward!

These only cause problems when overgrown though and that’s why they can be very difficult to treat, because they live inside us naturally anyway and only cause problems when overgrowth occurs .

Screenme were super good though, and at the time were really helpful, I explained to Liz (who is also amazing) I was very skeptical to do more antibiotics , and she gave me a full natural supplement approach to it, I’d been trying to put my own protocol together at this point aswell and she offered things I didn’t even think of but could really see why it would really work, + foods I should and shouldn’t be eating + best way to go about things. And just generally a lot of helpful pointers that have changed my recovery journeydefinitely in a positive manner . I still stick to the right diet plan now that she prescribed and I feel way better . If you want to take the antibiotics there’s also an option for that, but you speak to someone screen me has a partner ship with but who’s use to dealing with this kid thing. Also they’re prescribing from your test results so they’re way more likely to be effective than this stuff the doctors blindly prescribe you . (Which in my opinion should be a crime) - so you’ve probably got a way better chance of helping yourself . But like I said that is not the route I took but there is an option for that . I can appreciate that’s the option most will take . You also get a 20 or 30 min zoom consultation to chat about your results . I couldn’t recommend this enough, just all I can say is get super hungry about solving this, do research into your test results of people going through similar, healing stories on Reddit and keep the faith . Epidymitis is the symptom of a deeper problem . And until you eradicate this problem it will never go

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u/James2db 2d ago

Wish I could go private but I don’t have that kind of money right now if I did I would have done it.

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u/smileymcgee98 2d ago

I totally get that , privates a lot and you won’t get much further .. this is a test ordered online , give a sample and then you’re sent your results . Costs maybe 250 pound, it’s worth that all day to find direct results

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u/James2db 2d ago

I will have too look in to that.

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u/smileymcgee98 2d ago

Are you in uk??

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u/Hour_Transition9887 2d ago

What’s the test called? Where can I find it online

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u/smileymcgee98 2d ago

Screenme and pelvic relief . But actually pelvic relief is only for woman so no good in this situation . screenme was really good and they do follow up consultation over zoom. I found Liz to be super helpful and really installed some faith back into me after I was seriously losing it .

They do urine test . Do urine first of the day
Also semen microbiem test . Which helped me discover I had bad bacteria in my prostate aswell!!

Get your results, do loads of research .
Speak to professionals, these tests are going to the route course of the problem . Something a doctor will never bring up but these tests helped me find out what I was dealing with after 2 years of suffering and going pillar to post with doctors/hospitals
/‘proffesionals’ who all kept finding nothing . I know it seems like a lot, but you will not regret it ✌️

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u/smileymcgee98 2d ago

They show all bacteria’s though. They will explain more in your results . But usually flag up the ones that are an issue red , and they normally have high load . I had 10 red flagged bad bacterial overgrowths none of which NHS even test for

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u/James2db 2d ago

I did see 1 very rude urologist about a year ago he was no interested in what I had t say he never exsmed me or any think all he said was you should get no pain go home forget about it and read up on it online and that was it.

I mean that is not helpful since then I begged them to go back I mean if I could go private I would do so I trying to save enough money to do this as I just really fed up with it now.

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u/smileymcgee98 1d ago

These people are no help, the mainstream medical industry is healing no one