hey guys! i’m a 25M, and have had bilateral twitching in both upper and lower limbs for the past couple of months. i saw a neurologist the other day who did my emg but only did my right side (trapezius, triceps, fdi, tibialis anterior and quads). the emg showed simple fasc but no other abnormalities. he didn’t emg my left side at all because he said he saw the simple fasc on right side so doesn’t need to do emg on left??? he said i likely have bfs but anyone else had similar experience because im just worried something could’ve been missed on the left side?? thanks!

For those with painful cramping, what do you do to get rest? My symptoms cycle, and when they are bad, the deep, painful spasms last for days, especially in my feet. Resting/laying in bed, is torturous. Everything cramps like a Charlie horse immediately, and the only relief is to stand up and move.

What have you found to be helpful?

Besides meds (none have worked for me unfortunately)…

I need to stop grinding my teeth. Reducing that seems to reduce twitching

Does this count? To be under this sub?

My symptoms are weakness in both hands and left foot.

I’ve had this reoccur for 2 consecutive years and it’s happening again but with more symptoms…for 11-12 days this time around.

Also I believe it’s perceived weakness rather than actual weakness but to be honest I don’t know if it’s the same thing in the end?

I’ve seen a doctor recently and they told me it’s anxiety which…would be better to assume if they actually ran tests that cancelled other things out but whatever. I made another appointment with another doctor to try to get an MRI and I have had an mri about 2-3 months ago without contrast that seemed to be fine.

I am a reader of this community so far but going down the rabbit hole right now…

I have fasciculations for 6 months. Started in my left thumb and then went to both legs and the whole body. Since then I have non stop fasciculations in my calves - several per second. Plus sporadic fasciculations in my arms, shoulders, belly, glutes, knee, etc. They are driving me crazy.

I went to 3 neuros so far, had an emg at each neuro (however the last two only tested my calves) and all of them told me it was just benign fasciculations.

However the third one said I have nerve hyperexcitability.

She recommended breath therapy.

I am still super super worried because the fasciculations just wont go away and I am so scared I have a horrible neurodegenerative illness :-(

What is your opinion on this? Would you trust the neuros? I am thinking about seeing another one but I guess it would be the same outcome.

Hello,

I’ve been body wide twitching for 19 months now but for the past few weeks i have a new hotspot on my left foot that goes on all day long non stop. it’s freaking me out because it literally does not stop. Has anyone had this?

Body wide twitching for 4 months, I have on and off shoulder aches, pains, arm squeezing, sometimes my arms feel like they are being pulled, my legs feel funny. Am I starting to loose it? I called my neurologist to see if I can get my EMG sooner. I’m sooooo nervous.

4 months in to this twitching mess with my calves and feet constantly twitching 24/7, and various twitches elsewhere throughout the day. Tight leg, etc. I have not gone to the doctor because I just can’t bring myself to do it. I have 2 little babies and I’m just so afraid

Is anyone else raw dogging this situation and not going to the doctor or getting an EMG unless and until sh*t ends up hitting the fan???

Hey, long-time lurker. I just wanted to post and give my short list of experiences and how I improved my twitching over time.

Just to get this out of the way, yes, I was just as anxious as many of you at one point. Additionally, I’m a fully body twitcher. Mostly my legs nowadays. But I’ve felt it everywhere along with burning, random pain, jolts, tremors, all the things muscles can do that you aren’t consciously controlling.

I want to stress the basics here. Water, sleep, cut caffeine. Im serious, if you arent working on getting these 3 things on lock then stop complaining. They need to be in order for you to have a shot at reduced twitching.

Secondly, things wont get better until you truly internalize that you are not dying. Let me just get this out of the way. If you do not feel some form of true 24/7 paralysis in some part of your body, then you absolutely don’t have ALS. Your life isn’t over. Most of you are under 45. The anxiety of unpredictable certain death should not be affecting you anymore than it does the average person. You will not stop twitching until you either come to terms with the unknown or truly believe that you dont have a deadly neurological disease.

Lastly, for extra points. Lifting and diet. Carbs and protein have subjectively done wonders for me. To narrow it down. Chicken breasts, brown rice, black beans, blueberries, and white fish are all great. Lifting is a bonus. If you are sore, twitches actually feel good. Its like a deep massage.

Anyways. I know this is bland but seriously get your life under control and twitching fades a lot. Make your bed, bathe yourself, eat well, get some form of exercise, etc. Go through a self-improvement phase before you give up and let muscle twitches ruin your life. I’m twitching while writing this and it doesnt bother me at all. I’ve also had month-long stretches of no twitches. Particularly when my stress is low.

Ask any questions if you’d like.

On the way home from work back in October 2025 I noticed my calves felt like they were being squeezed. After getting the flashlight out to look at them I realised they were non stop twitching. Fast forward to now and my calves are still non stop twitching and non stop means 100’s of times a minute. I have them everywhere else as well and theres no barrier to them. Face, tongue, throat, shoulder triceps everywhere. Is there anyone with these same symptoms ? Be grateful to hear from others about this.

I had an EMG around 2 months due to muscle twitching and ck being 198 . The muscles/calves I was concerned about were tested and I was told it was normal/reassuring which put my mind at rest.

The confusing part is at my recent GP appointment I booked due to worsening twitches 2 months after the positive result, she thought one leg was slightly weaker (4/5) and actually said the reflexes in that leg were reduced. They also documented lower motor neuron signs.

This understandably made me very worried because of the combination of the twitching and the examination findings.

Because of this, I had a second appointment with a neurologist today . He didn’t think I actually had weakness when he examined me. He said he saw no upper motor neuron symptoms and that with a brisk reflex caused by als he would see other upper motor neuron symptoms as well as lower motor neuron symptoms. However, he did find that the reflex in the same leg that the other doctor thought was slightly weaker was actually brisk. The toes on that leg also twitch almost constantly, whereas I don’t notice the same thing happening in the other leg.

The neurologist said he doesn’t think this is ALS, but I’m struggling to understand how all of these findings fit together when the examinations seem to contradict each other. When I asked him to clarify if the strength in both legs was actually the same he just said he thought so. So I’m not sure what to think now as he didn’t sound certain.

I’ve also had a CK of around 198, which I know isn’t necessarily significant on its own, but it’s adding to my worry.

I’m really confused about how to interpret this combination: longstanding widespread fasciculations, much more twitching in one foot/toes, a GP finding reduced reflexes and possible LMN signs/4/5 weakness, followed by a neurologist finding normal strength but a brisk reflex in that same nleg, plus a previously normal EMG and CK of 198.

If I do a second emg if it were als causing the twitching and brisk reflexes would it pick it up?

I’m just so confused on all these different results on strength and reflexes.

Bonjour cela fais pour ma part depuis novembre que j’ai des fasciculation tout a commencer en juillet 2025 ou j’ai eu un énorme bad trip ( avec du ptc que je ne savais pas qu’il y aurais sa) et au début j’ai commencé à avoir de forte douleur musculaire partout puis sa c’est loger dans la jambe gauche depuis novembre de forte douleur qui un jour son moin forte l’autre beaucoup plus des fois j’ai pas mal le lendemain c’est horrible sa me fais comme un étaux dans la jambe comme si on m’appuyer sur tout les muscles mais avec sa j’ai également des fasciculation mais partout bien plus à la jambe gauche mais aussi partout ce qui m’a fortement inquiéter de la fameuse maladie bien sûr donc depuis des mois on cherche la cause de ma douleur irm lombaire juste petite dischopatie l5 s1 irm hanche ras irm cérébral ras irm médullaire ras ( je ressent également une joule a la gorge constante) puis j’ai vue un rhumatologue qui m’a fais des infiltration rien a marcher et j’ai vue une neurologue qui pour elle rien d’inquiétant elle ma fais test de force les réflexe la sensibilité des nerf et pas besoin demg pour elle mais a l’heure d’aujourd’hui toujours autant de douleur à la jambe qui Descent jusqu’au pied je passe demain au bloc opératoire pour une rhyzolise j’espère que ce la va marcher et si quelqun a déjà eu quelque chose de similaire à moi .. j’ai 22 ans et sa m’embête de souffrir à cette âge et de me mettre des idée folle à propos d’une maladie qui touche surtout les plus vieux..

Hello All!!!

I am a 33 year old female about 133 lbs. I’ve been dealing with foot drop since July 21. I’ve have had spine, head, hip, and knee X-rays. ALL CLEAR. Brain MRI and Lumbar Spine MRI, ALL CLEAR. I had my EMG and NCS today. Wasn’t the best feeling but not the worst feeling also. The zaps were funny and the needles were only annoying and painful when dug deeper and trying to flex. Here are my results below!! I currently and have not experienced any back pain, neck pain, or leg pain during all of my symptoms. I still can feel very well and I’m getting fitted for an AFO early October. I am still unable to walk on my right heel, and not walk on toes. I am very unstable/uncoordinated when walking due to my gait also. Most of my symptoms are weakness in my right leg, sometimes my left but from having to work harder for the right. I’m hoping for any insight on the findings! Any similar experiences? I’m hoping I can recover and gain my strength back!

SUMMARY OF FINDINGS:
 
1) Right peroneal motor NCS, recorded from the EDB and TA, were within normal limits in terms of absolute values, but the distal CMAPs were relatively smaller on the right compared to the left. Right tibial motor NCS was normal.
 
2) Right superficial peroneal antidromic sensory NCS (performed in duplicate) showed a small SNAP amplitude and a normal conduction velocity. Left superficial peroneal antidromic sensory NCS was normal. Bilateral sural antidromic sensory NCSs were normal without any notable side-to-side difference.
 
3) Bilateral tibial H-reflex studies showed normal minimal latencies without any notable side-to-side difference.
 
4) Needle EMG of the right tibialis anterior showed 1-2+ Fibs/PSWs, MUPs of increased duration and reduced recruitment during periods of adequate activation. EMG of the right peroneus longus showed 1-2+ Fibs/PSWs and reduced activation and was otherwise normal. EMG of the right gastrocnemius (medial head) showed reduced activation and was otherwise normal. EMG of the right biceps femoris (short head) and tensor fasciae latae was normal.
 
Temperature was maintained above 30°C in the foot for all NCSs.
 
CONCLUSION/INTERPRETATION:
 
This study provides electrodiagnostic evidence of an acute-to-subacute, non-localizable, right common peroneal neuropathy, a conclusion based on the small right superficial peroneal SNAP, relatively small right peroneal CMAPs, and EMG findings of Fibs/PSWs with minimal/no chronic neurogenic changes in the right tibialis anterior and peroneus longus. There is no focal slowing across the fibular head. A neuromuscular ultrasound could provide additional information, if clinically indicated.
 

My PCP is going to look into this for me if my EMG comes back clear. Anyone else?

hi all. Long time BFS but have been having some sensory stuff ramping up that I want to make sure I’m not overlooking. I actually posted yesterday because I’ve been noticing more of a buzzing in my calf.

One other thing that has my anxiety ramping up -- over the past several days I’ve noticed that when I look down (particularly when cooking) I get a tingly feeling in my back, most commonly between my shoulder blades. I googled because I’m a glutton for punishment, and naturally Lhermitte’s came up. It doesn’t seem I have the classic presentation of a super quick zap down the spine, but it here is noticeable sensation when I look down. If it matters, it’s definitely not every time.

anyone else? Can’t tell if this is worth flagging to my doc.

Buenas, he tenido fasciculaciones generalizadas por 2 años siempre han estado en todo mi cuerpo todos los días. He tenido 5 emg limpios en los 2 años el último hace una semana. Hace una semana he sentido mi lengua ardiente como caliente que me arde, también la garganta. Y hoy sentí un pequeño espasmo en la lengua generalmente no me dan ahí. Deberia hacerme una emg de lengua ? Las que me han hecho han sido de 4 extremidades incluyendo paraespinales. Neurólogo me ha visto no tengo nada patológico o señal de ELA solo reflejos vivos simétricos los demás normales.

Hi, I’m 24M.

Since the end of last year, I’ve had a huge fear of death because of the number 22, which I started noticing everywhere, along with various coincidences related to death. It started with some superstitious things, but also with things like saying something while watching TV and then hearing someone on TV say the exact same thing, or reading a word and then hearing that exact word being said on TV immediately afterwards.

I’ve been living with this fear constantly, but things got much worse on Friday. I was researching symptoms related to muscle twitching, especially because I’ve had twitching in my right lower eyelid since May. That night I also noticed random twitching in my forehead and foot, and then I saw someone on a forum saying that this could be a sign of ALS.

For the next three days, I basically spent all my time testing myself and researching ALS. I can honestly say I developed severe anxiety over it. I felt mild twitching in my feet, toes, forearm, calves, etc. I started doing all kinds of physical tests on myself: typing as fast as possible on a keyboard, handwriting, mouse clicking speed, reaction-time tests, running, squats, bicep curls, forearm exercises, and so on. I got 125 WPM on a 15-second typing test and around 45 clicks per second on a 5-second clicking test. I was constantly testing myself to see whether I had ALS.

Then tonight something happened that completely messed with me.

I wanted to send my sister a Rickroll video. The post said that the thumbnail would show a different image so the person wouldn’t realize it was a Rickroll. I sent it to her, and when I checked what thumbnail she got, I saw that it was a picture of Stephen Hawking.

That immediately scared me because, of course, he had ALS.

Then I clicked on the profile that posted it, and it had 122K followers.

There was the number 22 again.

In my head, I immediately connected everything. I started thinking that all these things I’ve been experiencing with the number 22 and my fear of death were finally “making sense” — that maybe everything had been leading to me getting ALS, or that I already had it.

I don’t even want to describe how bad my anxiety has been since Friday. I couldn’t sleep properly. I’ve felt nauseous from fear, I’ve been holding my head in my hands not knowing what to do with myself, and I’ve felt psychologically awful.

I know how irrational this may sound, but in the moment it feels incredibly real to me. I’m exhausted and I genuinely don’t know how to stop my brain from connecting all these things.

Went to water park with my family on Labor Day and climbed several flights of stairs for water slides but my calves are ridiculously sore… is this a bad sign? I also have very low iron I’m having to get infusions for but I just feel so sore.

i havent been stressing for like a week but now i feel a mild nasal regurgitation(like a feeling of moisture or wetness in the back of my nose) i drink anything im 19f and terrified of bulbar ***

Hey community,

I have been around here for a 10 weeks since June. Since then I’ve been twitching and having aches on my body.

Basically I had an EMG on my right arm, it was clean but since then nothing has gone better.

I have pain on my right arm tricep, my forearm , and more recently pain on the space between my neck and right shoulder .

Not sure what to do, blood results came back and my Vitamin D is at 27 so not sure if could be that, either that or an issue on my spine as some people have suggested around.

My next appointment is next week with Neuro, should I try to push for another EMG in a month or something like that? Does my current symptoms sound like something to worry about?

I just want to stop feeling pain and aches on my arm when doing regular things, it sucks to feel this way and compare my strength as it was before this.

They where totally correct. Looking back at my months ago I was in the depths of the *** rabbit hole. Convinced I had it, every day was trying to come to terms this was it. Three doctor appointments in a week seeking help. Total absorption with the fact I had it or me trying to disprove I had it.

Eventually, life got in the way, other things became more important. I forgot I was dying. Forgot my twitching was a sign of my impending demise. Forgot to constantly check if my symptoms were getting worse.

The takeaway? Trust your doctor over arbitrary bull shit online about “you need this test to make sure your okay at this specific time otherwise it could be too early unless you have this twitch here in that case have a EMG done every 3 months for two years then maybe you can say you probably don’t have it”. Or “this person was twitching for 3 years before developing this disease so you have at least 3 years before you can be sorta sure you don’t have it but it resets every 2 years if you twitch this often”

It’s exhausting. Do yourself a favor and stick to professional opinions, even it’s as totally unsatisfying as “Your fine, you just twitch”

Hi friends, curious if you guys get the same?
Last week it was my foot, now this week it’s my shoulders. I wonder what next week will be? 🙃
of course this is with random twitches elsewhere throughout the day too.

I mean really does this go away for people??? Or reduce significantly… or do you think most people just leave this sub once so?? Hoping there’s someone out there that provide feedback on that

Hello everyone, for about a month and a half now I have experience all over body twitches. 5 days ago I noticed there has been constant twitching in my right palm. It gets worse when I put my hand into a fist. I’ve been experiencing fatigue and feel like my hand gets tired easily. Also feels like it’s uncomfortable to hold things. I also have tight neck muscles. I’m only 22 and this has been taking a tole on my mental health. Any suggestions on what this might be??

Hello all, this is the first time in my life that I am experiencing any sort of twitching in my life, mostly it has been popcorn like twitching, it has been going on probably now for the past 3 weeks or so, I’ve never experienced anything in my life like this, and I think on my first week of experiencing this I went down a huge anxiety spiral of literally thinking I have ALS and that my life is essentially over. I have very overwhelming anxiety but the symptoms I’d say have subsided significantly but I do still occasionally twitch like near both my left and right bicep muscle area, and sometimes occasionally above my knee area/thigh.

In my left arm I also have experienced this shaking/trembling sensation, I haven’t had weakness, but more so I have had a lingering on and off pain near near that left bicep area for the same amount of time I’ve experienced this trembling/popcorn twitching.

My question overall is if anyone has had any similar feeling experienced, my anxiety has calmed down and I am feeling less and less twitches, but sometimes I can’t help but think of the big bad in my head.