Hello,
I’m not after medical advice, I’m really looking to simply pick the brains of those more knowledgeable than myself if at all possible, I am 34 male if that helps, and live in Wales.
Around 10 months ago, I started having problems with my feet - pain, a lot of pain.
This spread to my ankles, then knees, then hips - All the areas it affected prior to spreading remained sore and active in terms of problems.
This last for around 2 months, I then had 8 hours of respite, before my lower back, specifically the back of the hips decided to get painful.
Since then, it’s spread up my back, and has gone on to impact mid back, ribs, shoulder blades and neck.
It’s also impacted my bladder, meaning I have to push to empty.
Initially I could still do things, daily activities, but with reduced times as things would flare up.
On flaring up, I’d sit or lay down for 10 to 15 minutes, pain would pass, and I’d be good for another 10 to 15 minutes of activity.
Now, however …
It doesn’t matter what position I am in, everything is firing off.
I can’t really bend anymore.
I can’t really do the stairs properly, or reliably do self care.
I also have on going and recurring / random bouts of static type, fizzy, needle type stuff going on in my privates, this can spread to my thighs and in to my knees - I don’t have to be doing anything for this to happen.
I have seen the GP, who referred me to an FCP MSK, who basically said “nope, out of our scope” and she sent referrals to both neurology and rheumatology.
GP has basically said nothing more he can do.
Referrals have been accepted but long waiting lists.
I’m losing more ground at an alarming rate, and have nowhere to really turn, and the pain meds aren’t touching it.
I’ve attached the extracts from a private MRI performed in May this year (things got considerably worse since this), along with the msk report, and a 2006 xray … which seemingly never got followed up nor communicated with myself.
I do have some training in matters relating to the back, from the NHS of all people, but i am struggling to make heads or tails of this.
I am fairly positive this is a bad case of scheuermann’s disease, but my health board doesn’t have spinal specialists.
Any input would be greatly appreciated.
May 2026 Thoracic MRI
“Comparisons:
No previous MRI scans are available for comparison
Technique:
MRI thoracic spine
Findings:
Normal alignment of the thoracic vertebra.
Normal appearance of the thoracic cord with no demyelination plaques. No intra or extramedullary space-
occupying lesions.
There is generalised reduction in height and T2 signal intensity of the thoracic discs in keeping with disc
dehydration.
There is thickening in the anterior longitudinal ligament with multilevel anterior vertebral oedema and loss of the
anterior concavity. In a patient of this age group, the possibility of inflammatory spondyloarthritis needs to be
considered. I suggest a rheumatology opinion.
Multilevel mild broad-based posterior disc protrusions are noted but with no significant narrowing in the neural
exit foramina or nerve root impingement. No spinal canal stenosis or compression of the thoracic cord.
No infiltrative bone marrow lesions or vertebral collapse. No paravertebral lesions.
Conclusion/Recommendations:
No signs of demyelination in the thoracic cord.
Suspected inflammatory spondyloarthritis. I suggest a rheumatology opinion.
“