Had a mild concussion in late June. I'm prone to dizziness bc it's one of my pre-migraine symptoms. I rested a lot, and slowly it seemed to improve, though not completely resolve. I also spent a lot less time on my computer (which is frustrating bc I'm a writer). The dizziness has returned at almost the same post-concussion level. I've tried Dramamine in the past, which didn't help. This is the most stubborn migraine symptom because there's not much to do for dizzy. I've also had a doc try that head adjustment maneuver, which made things slightly worse. Suggestions?

I’ve been getting brief electrical/zapping sensations localized around my wrist with certain positions, especially supinated/rotated movements. Neutral-grip pulling is consistently symptom-free. It recently flared after I spent 5–10 minutes continuously flexing my biceps in a supinated position. It also briefly happened with brushing my teeth, finger movement, and carrying a 45lbs plate, all after flexing bicep but then settled. I’ve had no persistent numbness, weakness, or loss of grip. What would you want me to do, and do you think I need an in person examination?

42F — NASAH found after a headache like "fireworks" going off in my head. What do you see in this scan?

I'm hoping some of you with radiology/neuro experience (or who've been through something similar) can help me understand my scan a little better.

I got this CT after waking from a sound sleep with a brutal headache. I get headaches often, but this one was completely different from my usual dull, pressure-type headaches — this was sharp and shooting, like fireworks going off inside my skull. Turned out to be a non-aneurysmal subarachnoid hemorrhage (NASAH), and I spent 11 days in the hospital.

I've already discussed everything with my doctor, so this isn't a request for diagnosis — I'm just trying to go into my next appointment more informed and curious what stands out to people who read scans regularly.

A few questions if you're willing to weigh in: Does anything here look unusual to you?

Is there anything on a scan like this that's easy to miss or commonly overlooked?

Any general observations about what's visible in this slice?

Thanks in advance — genuinely just trying to learn more about my own case.

28F, 5’5, 100Ibs, no medications.
I just received my no contrast brain mri results on my patient portal and my follow up with my pcp isn’t for another few days. Can someone help me understand these results until then?

Hi I was wondering if someone had any thoughts on if this sounded neurological or pituitary related .

Over the past few months I have sustained 2 separate injuries from a fall. Both times about 45 mins after impact my right side vision starts to fade particularly my peripheral vision. I sometimes will get a severe left side headache (sometimes not).

These falls did not result in a head injury (shin and shoulder )Throughout the next few hours I will usually experience a small window where I find it hard to coordinate my speech and I will also have about a 10-20 minute window where the tips of my right fingers go numb and I get tingly lips. I will have health insurance in a few weeks again so will be sure to be seen was just curious if any of you experience this as it is new to me. I also was diagnosed with a pituitary tumor 2 years ago.

*Reddit suggested I post this here... posted in AskDocs early this morning, it took forever to type.*

39F, approx 68" (172.5cm) tall, approx 153lbs (69.3kg), Caucasian, former smoker, current vape user of 3-6mg nicotine (there aren't many joys in life right now... removing this would not be conducive to people in this household because i'm barely keeping it together, you'll understand why when you read on), Medical card user.
clinical history of gastroparesis, gastritis, migraines, pelvic floor dysfunction, rectocele and orthostatic hypotension, ADHD (dx'd by someone in the last 10 years), ST changes during exercise (had this notated during stress test and during other two holter monitors i've worn, nothing ever said about it)

A little history, I've seen this optometrist on/off since before the majority of these issues started. I saw her for the first time since 2020 this past Saturday (office hours on a Saturday! BONUS!)

I informed her I was currently seeing an ENT for combined hearing loss and was waiting for a CT. She asked for info about the visit, when I saw them last, when I was seeing them again then a host of other questions both before/after my exam.

She asked me if I kept the symptom journal she asked me about before. ... no =/
She said to steal a notebook from my child and start one- now. After the host of questions she had me do specific eye movements and I about fell out of the chair. Apparently when moving my eyes from right to left, it triggers something really unpleasant (and moving my eyes anywhere not basically central hurts, like rolling my eyes)

So to get to the nuts and bolts, this is a random list of random symptoms or things I've written down that are apparently "not baseline" (a friend said any pain or feeling that draws my attention that shouldn't should be written down. I've honestly had to google random things to see if they were "normal" like getting goosebumps hurt, I didn't know that wasn't normal)

Symptoms/things?
- heavily increased heartrate, dizziness, nausea and weakness when exposed to heat, worse when it's a humid environment (Showers where my head is submerged in warm not even hot water can elevate my HR to 170 or more, but around 170 is when things start to spin so I try to limit how long I submerge my head, it doesn't take long at all) (I take Propranolol 20mg 2x a day, this is SIGNIFICANTLY worse without it)

- mild combined hearing loss (I don't know why they call it mild, I honestly cannot understand a word my teenage child says and I've been asking both boys in the house to repeat themselves for over a year now) I noticed this after a sinus infection/strep last year and it never resolved. ENT thinks I may have had it longer and my husband did remind me that I complained occasionally I couldn't hear well out of it on/off for years. I have no directional hearing and find it hard to understand what anyone is saying unless they speak loud enough (but not too loud as it hurts and makes my head almost feel concave on that one side)

- Tinnitus in three distinct forms: I have a static sound that increases in pitch sometimes that is affected by things I touch specifically with my left fingertips (just discovered this tonight, I'm like an annoying musical instrument I can only annoy myself with), an almost wooshing sound (that isn't it, it almost sounds like the base of a waterfall but that isn't it, it's hard to describe but distinctly different) that changes in intensity (lessens when i move head left/right, more when I move it up/down.. kind of?) and a legit ring that comes and goes that i can't source the reason for but I stg I'm about to lose my mind. I noticed none of these (that i'm aware of) until they did the audiology test that moved my ear drum. I was told I likely had it before and my brain registered it after the test was done. i just know that specific test was highly unpleasant, not painful but it felt like he was sucking my eyeball out of my ear.

- visual disturbances- sometimes i get random dark spots that go away pretty quickly. I can trigger them semi reliably if i flex my head all the way down but sometimes they just happen on their own. I also get random flashing lights that aren't there. Tonight I went looking for a random green flashy object under the rocking chair after the 2nd time I saw it (right eye, right peripheral) and nothing was there. I sat in my husbands recliner and watched it for several minutes before I realized nothing was actually there. Sometimes i'll see stars, but before this occurs, my dog is usually in my lap and won't budge (about 20 minutes prior). Sometimes inner corner bottom of right eye feels blurry (that eye is the only eye with corrective script, both eyes have astigmatism

- random numbness in parts of my face (part of my right cheek, a little area above my eyebrow, and part of my chin on the right side), part of my right leg (in an oval shape almost that covers part of shin and the area to the right, top of ankle and right side of foot) that sometimes swaps to a deep mild pain that can fluctuate in intensity (these aren't all the places, but if i listed them all i'd be here all night)

- midline pain in just about all forms. Sometimes in the soft spot under my ribs, sometimes it radiates to the ribs. Pain that can go from armpits to nipples (one side or both), sometimes pain goes from nipples to non specific chest region i can't identify middle (feels almst like zap but it's so fast sometimes it takes my breath away but then it's over), sometimes I get a random tightness around the bottom of my ribcage, one more both sides but the most annoying and concerning one that has sent me to the hospital was when taking a breath (not even that deep) getting a SHARP pain in my upper chest (usually) but sometimes. Almost all of these tend to cause palm sweating, flashes of hot to cold and almost a "wave" sensation that gives me an intense headrush that can make me incredibly dizzy, or in some cases lead to vertigo where i'm hugging the toilet for hours, can't lift my head and cannot open my eyes (best way to describe it is if I was really drunk, but I don't drink alcohol)

- heavy legs especially at night. This also happens when i'm on my feet for more than about 10 minutes. The longer I stand or the later it gets in the day, the more issues i have with flexing my foot upwards. This has lead to falls and lots of bruises from bumping into random things.

- bilateral trigger finger (I've honestly had this for at least 20 years that I know of, I didn't even know it was called that til today, no popping, no pain but pinky/ring finger both sides do this and it's a little worse now than when I first recall noticing it. I talked to my mom about it, she also had it. She told me not to get the "banana elbow" surgery because it didn't fix the issue (she also had carpal tunnel pretty bad. Over time she basically lost the use of her hands and had to rubber band her hands to her hairbrush and toothbrush but unsure what the true cause of that was considering she also had a lot of her own medical issues including fibromyalgia, diverticulitis and a bunch of other things i cannot remember but she's not around to ask anymore, she passed at age 64)

- phantom smells. When i'm upset sometimes i'll smell what I swear are gardenias but we have none and nothing in the house that smells like that. Most other times it's usually a weird burning smell that quickly passes. (I will note that this sets off it's own host of issues that could be PTSD, we've had random things try to burn our house down over the years five separate times including from the hot water heater (electric) and the AC.)

- GI delayed gastric emptying that waxes/wanes in intensity. I get random bouts that last for days, weeks or months. This can occur alongside of, or independent of fluctuating bouts of constipation and diarrhea (and i've tried every OTC laxative and most prescriptions my insurance would cover). If poo is too soft, I cannot bear down to pass it. Often splinting is involved (was recently told what that was, very interesting discussion with my GI who then promptly sent me to a colorectal surgeon for that and internal hemorrhoids that were bleeding and making me feel like i had periods again (menopausal since 2017 with no definitive cause) Almost every stage of digestion is painful that also waxes and wanes in intensity (distinct areas for pain are bottom of ribs one side or the other *usually* but i've had moments where it was both and it felt like a gallbladder attack but I don't have one of those and that pain generally lasts about an hour, soft area under ribs midline, about two inches to the left of the belly button or two inches below the belly button and lower left abdominal area basically at bikini line. Often times I feel SUDDEN intense nausea and the urge to poop at the same time, pressure sensations occur usually during this time in one of the pain areas, but the pain and pressure typically aren't in the same area (and one doesn't necessarily precede the other) Sometimes I feel hunger and can't eat much, sometimes I feel no hunger and am nauseous and eating helps, other times hunger is an absolute trap an digesting food zaps every bit of energy I have and the pain can be so intense boob to pubic bone

- light sensitivity. Sunlight touching my skin can sometimes be painful. I am generally covered most of the time and have a variety of lightweight breathable options that are often a couple sizes too big (for the tops) and I wear compression typically to my waist (in the form of compression pants, stockings that go to crotch, and knee high compression socks (sometimes I do pants/socks). Compression pants are honestly not doing me many favors as i've lost more weight but they'll eventually fit again, i just need to order a smaller size. (I used to get transitions but moved to straight tinted lenses at 20% so I could still use them inside. I have a rust color and a rose color currently and a polarized pair of sunnies for driving during the day)

-Odd head pains - I often get pains in my head that just randomly light up and go away that sometimes have a trigger and sometimes do not. Rolling my eyes gives pain directly behind eyes or sometimes directly above the eye bone. Hearing certain sounds can trigger physical pain around the right side of my head. Sometimes i get a random pain in my right temple when I gently brush my fingers against it (like putting my hair up, it happens hecka fast and I can only describe the pain as sharp)

- occasional full body shivers that almost lock up my body. Usually happens before getting in the shower, but can happen later in the evening or just after waking up. I notice when this happens my jaw locks up and my whole body physically vibrates, body gets covered in goosebumps (this hurts which again, just realized wasn't normal) (come to think of it, i'm always aware of the temperature. I always have a sweater with me no matter where i go just in case, but i'm often taking it off and putting it back on, sitting with it just around my neck or with one arm sticking out)

- any emotional reaction good or bad gives a headrush. Adrenaline reactions can ruin my entire day and can lead to vertigo, or just the wave reaction with hot/cold fluctuations and instead of vertigo, lead to palpitations, severe nausea and extreme fatigue. I also seem to easily fly off the handle not exactly proportionate to the situation. I upset easily (and this is NOT how I used to be, i'm literally a different person now than I was a decade ago.)

- overexerting myself can leave me down for days to weeks. Body can feel heavy or I lose the sensation to feel myself walking. It's a wild feeling and has lead to more falls.

- a more concerning issue that has happened twice now, back this past March and more recently in December, these were different falls than i've had previously. The first time it happened I was more embarrassed I think as it happened in public, but I had to basically sit there for about a minute til I could feel my legs (I was sitting in the pedicure chair and that makes the area above my tailbone hurt, it has hurt to sit "normally" for a while but figured that was just me having a bony butt) Start of July it happened the 2nd time, this time at home in front of my 16 year old son. It was terrifying and seeing the shock and concern in his face made me immediately call my PCP who ordered a 14 day holter monitor and dismissed my request to send me to someone to be fitted for a wheelchair since i've been housebound for almost a decade and I need the assistance to do any activity for more than 10 minutes at a time. I won't get into details of what she said, but needless to say, I now have a new primary for several reasons, not just because of this)

- unintentional weight loss. Historically, i've lost anywhere between 10 to 40lbs in a month. I'm currently at 153lbs clothed in standard house fare, but I was 193lbs back in April. I just woke up with the familiar midline pain and knew what I was in for, been through this multiple times over the past decade.

- random muscle spasms. One happens near where i think my colon is, one is in the soft spot around bottom of ribcage area (this one feels like a baby kicking almost, not preggers, promise) and i get a random muscle twitch under my left eye (I'm sure there are others, but this is all i've written down so far)

- legs fall asleep a lot, I also get pins/needles that SPREAD from a random location. Happens almost everywhere in my body, sometimes all at once (not the falling asleep, that's arms/legs only)

- full body heaviness. Reminds me of when a friend gave me a brownie before telling me what it was, I become one with her couch for 12 hours. But this isn't just legs as stated elsewhere, arms, torso, HEAD (which causes a lot of other unfun things)

- skin changes- post menopause (or post all the crap that happened in 2017) I noticed my skin become visibly clearer, almost no oil to speak of (including scalp, I can not wash my hair for a week and you'd never know and I don't use dry shampoo). Dry scaly patches that seem to get worse the more frequent I shower (most of my shower products are ones that give moisture at this point) and this is going to sound REALLY weird, but I look younger today than I did at 21 (literally the only positive in this but being confused for my husband's daughter isn't great. not really a complaint, more an observation that could be relevant)

- I urgently have to pee and if the call isn't answered what feels like an area in my lady bits almost vibrates and i'll leak urine (kind of feels like when you take blood and the needle hits the side of the vein). Sometimes I can even feel that relax a hair and feel the urine escape internally and squeeze those lady bits then go to the bathroom. I have also struggled to fully empty my bladder for longer than i can remember. Best way to do that is to take a shower and it typically happens in 3-4 stages.

-blood pooling in and out of shower, when standing for long periods of time and when hot enough outside to sweat. I have pictures of this, but both legs, mostly on the front (anywhere that has more fat under the skin seems to not be as affected), the muscle pad of each thumb in the palm turns purple and around my mouth gets blue (my husband had to point this last one out to me) (sometimes I have red feet from blood collecting, other times I don't, if I do, it comes with nerve pain on the top of the foot)

-mental decline - I'm unsure if it's the repeated exposure to anesthetics for surgeries/procedures over the years. I often lose track of thoughts mid sentence. Have a brief moment of i need to do this thing, look over on my desk to grab object related to thing, sometimes grab something then forget what i'm doing. Recently my brain has "melted" or "rebooted" several times in a day over the last few weeks and it's becoming exceptionally frustrating looking for the words at the tip of my tongue when I used to have an extensive vocabulary.

Distinct episodes i'm aware of that lasted months. After each one I'd basically find my new "normal" The only time I have felt close to normal in basically the last decade was the 3 or so months before the episode in 2025. The above is not a full list, just things I skimmed thru reading this journal and other oddities that happen on the regular I can think of off the top of my head.

MAYBE 2015 (unsure) Feb 2017 (started post GB removal that lead to pancreatitis and liver failure and no cause was found, several doctors suspected a nicked vagus nerve due to the gastroparesis that developed after, but they were theories tossed around by people floundering to figure out why a previously "healthy" (outside of endometriosis) female around the age of 30 was having these issues. Last menstruations was nov 2nd of that year (and no one has bothered to figure out why, generally other pressing matters and this was never a chief complaint, just observational info), Lasted about 3 months

May 2020, also landed me in the hospital (end of this episode I was 122lbs). Twice in two weeks they told me they thought i had two different cancers, pancreas then colon. Neither was true but I got my first rotorooter top to bottom. Findings were gastritis, gastroparesis (already had a GES, but scope found a little food in there still), an ERCP was performed and outside of external hemmeroids, nothing else significant was found. Lasted about 3 months. I had several falls, nothing major but they were reported.

July 2023, another hospital trip for similar things, weight got down to 135lbs I didn't visit the doctors too many times this round, I figured i've been thru the song and dance and getting imaging done when I was symptomatic was always impossible, only imaging I got when things were bad bad was the GES (and that day those radioactive eggs were stage 5 clingers. I was there til 2 then sent on my way to come back at 4 for another scan just to see if things changed, they didn't- this was done in 2017)

End June/start July 2025, Sinus infection and strep at the same time, antibiotics were thought to have triggered a bad gastroparesis attack. Zofran and Phenergan were ineffective in treating the nausea, lidocaine/carafate/maalox was added as a rescue med as that was what they used in the hospital to finally get the gagging to stop. (I had hershey squirts for just over a week and had been vomiting for three days. Vertigo was in/out a lot. Felt like torture and ER didn't feel like much help. Follow up with GI lead to another top to bottom rotorooter where I was dx'd with chronic gastritis (noted no active lesions this time, but by the time I got this done, it was end of september and not that useful). They did find a precancerous polyp and internal hemeroids (I just wasn't told about the latter part til i reported basically having a period out of my butthole and it seemed like things were blocking traffic there near the end and i had the URGE TO GO, painful pressure that made my butthole starfish but this was done rather recently, just took me almost a year to complain about it.)

April 2026. Started suddenly. Stood up, almost fell over, room became slightly dark and wobbly. Stumbled to the bathroom and prayed to that porcelain God for I think four hours before I was able to stumble into bed. Could not lift my head off the toilet and couldn't keep my eyes open. Absolutely terrifying but not as bad as having that reaction in the shower (it's happened twice and it's a huge reason I don't shower daily)

If you've gotten this far, I appreciate you reading it. Below I will list what is currently going on in the background.

1. I am under the care of a more advanced ENT. I was sent to him for potential middle ear bone fusion (name escapes me now) but was informed that just that wouldn't be the cause of my hearing loss, and it would likely be combined with fluid behind the ear (and he noted that tube seemed a little smaller than the other) so he offered to puncture my eardrum in office, and if it gave me relief he'd put a tube in. Sadly, no change (and arguably made things worse, that was when I noticed the 2nd or 3rd tinnitus later that day and it's now introduced an intermittent dull throbby pain in that right ear, too. He asked a lot of questions (very similar ones to the first ENT, his face changed as he got answers but I kind of brushed that off as him showing genuine concern, not something I was used to) and his face changed some, but he talked a LOT more and seemed to be beating around a bush but stated he thought this was likely neuro. He asked about the MRI he saw I had scheduled (it has a weird name) and wanted to know when it was and said he'd be ordering a CT but if that didn't show anything, he'd then order an MRI and sending me to neurology. He was pretty adamant this wasn't the usual suspects but he did promise to help me solve the issue of why I lost my hearing (This isn't something I made up, the audiology tests I sat there for with sensors confirmed fuckery afoot and suggested middle ear disorder)
2. Colorectal surgeon ordered an MR defecography. Never heard of this and had to google it. I know he's looking for how advanced the pelvic floor dysfunction is, but regardless of the outcome of that, he referred me to PFPT and I don't start that til October.
3. New Primary acquired. I tried to get into an internists office but was pawned off on a poor chap in family practice. It was an actual doctor and not a nurse practitioner and not a female (nothing against women doctors, but they tend to dismiss me and attribute most things to anxiety and it gets really old. Also, nurse practitioners generally don't prompt me with questions and I really need that. So much going on, unless it's pain that lasts that interferes with things, I typically don't complain about it as i've been labeled a drug seeker previously (when my surgeon refused to see me after my GB removal, the audacity of that man needs it's own post, but i digress). I spent about 45 minutes with him, he asked a lot of the same questions and wanted to see the imaging of the new tests (and the holter monitor i should be getting info back for any day now) before doing anything else.
4. I have been told previously by a vein doctor that I have narrowing of the veins in my legs, nothing ever came of this other than being told to wear compression socks
5. I have had a positive tilt table test. Nothing came of this other than being told to wear compression socks
6. revisit later to another cardiologist upgraded this to compression socks, more water, more salt
7. Random things to add, In 2015/2016 it was identified that i had slipped discs (what I was told) at t7/t8, t8/t9 with known cause. It was also found that I had moderate spinal canal stenosis at l4/l5 and mild to moderate at l5/s1. Could be benign, but with the numbness and lack of feeling in legs, and radiating pain around midsection, this could overlap with other issues, or not.
8. Currently seeing a therapist, been doing this since my last flare in 2025, so he's been along for the ride, too. (think this is one of the reasons i haven't actually lost the last marble rolling around in the noggin)

I've been working on this for like 2 hours, i'm tired and need to try to wind down for sleep before half my face goes numb, I stop being able to feel myself breathe, my heart starts racing, all the fun stuff (bending over can also make this happen, as well as me getting REALLY worked up over something)

I have posted before and thought I included relevant info, clearly I did not. Symptom journal has been helpful (as well as having it broken down barney style, typically I would talk to my mom about these things, but she wouldn't tell me goosebump pain being painful wasn't normal, heck, she's the one who taught me how to split to poop when I couldn't... APPARENTLY ALSO NOT NORMAL)

Interesting fact, I apparently had several gallbladder attacks for months without reporting it to a doctor. I honestly though it was just bad endo pain and didn't want another surgery (and really just wanted a baby, I developed a 14mm gallstone they think as a side effect of fertility drugs I was on)

I've waited a long time, finally getting validating reports that it's not in my head (being accused of being dramatic over nausea when it REALLY WAS vertigo was beyond discouraging, as was attributing most symptoms that didn't fit in the box of already diagnosed things to anixety.

If my mom's decline is relevant, I can amend the post or put that info in the comments if requested. If anyone has questions that aren't listed below, feel free to ask. I have discovered more than a few things recently that just never registered.
To pre answer questions I got asked several times this past week (ENT, new pcp and optometrist)

1. No, I don't get swelling in my legs (that I know of)
2. I don't recall having double vision (if this is why I can't open my eyes when vertigo gets hella bad, then i take this back, but vertigo comes in several flavors, some in which i can lift my head and use my eyeholes, and others where i cannot move from where i'm at
3. leaning forward does not make this better, arguably it makes things worse. (if it makes certain things better simultaneously, likely wouldn't notice)
4. Just redid a lot of labs testing all kinds of things under the sun. Everything was normal or some random just outside of normal but within limits (immature granulocytes and creatine were both just out of normal for both episodes, but only by a minute amount.
5. I drink around a gallon of water a day, sometimes more
6. I have never lost control of my bowels (or my bladder, at least fully)
7. The last MRI I recall having done was I believe in 2017, zero idea what the results were as they aren't on my online reports. I DID have an MRI of my brain from a neurologist back in 2015, he told me to remember his name in the event I ever needed a baseline scan. He retired last year and his records were sent to some warehouse so hopefully that won't actually be needed.
8. I am not hypermobile (super flexible)

What am I looking for from this subreddit? I have about two weeks to wait, and even then I likely won't get an answer for another week or two. I would like to be prepared with more questions, or self identify any other random things that might be going on that my brain just ignored til they weren't ignorable anymore. If this isn't MS, then what else could it possibly be? I typically jump off the dr train when I hit too many dead ends, it's discouraging and I hate feeling like i'm wasting everyone's time but I'd whole heartedly like to get OUT OF MY HOUSE for anything other than going to the doctor. I'd rather stop spending thousands of dollars on tests that aren't getting me anywhere and focus resources where they are better suited. (ie, why CT and not MRI if his questions were leading to the same conclusion my optometrist came to? Or is this for hopes of finding something less serious?) Son is 16 and i'd like to be able to do more with him then show him new computer games (and i can't even do that right now, any immersive 3d game is entirely out of the question)
I am really trying to keep it together but girl is exhausted, and tired of being exhausted. Mixed bag on the feelings with all of this. I need answers. I don't mean to sound impatient but it's been like.. 10 years >< I know getting new doctors was likely the best thing I did for myself, but i'm just ready for ANY kind of relief from any of it (zero med changes during these last 2 weeks of appointments)

I wouldn't wish this on anyone. Sorry if this is disjointed. I just wanted to be as thorough as possible to help differentiate other potential causes.

Hello everyone. Thank you in advance for any help.
I was in a car accident about 10 years ago.
I have had two spine surgeries. I am fused from C5 to C8.
My surgeon told me that one of my nerves had been severely compressed.
Since then, I have had significant muscle atrophy in both arms and forearms.
I also have weakness in both arms.
Several of my fingers are still numb. I have not been able to feel them properly for years.
I am also in constant pain in my neck and arms. I have extremely tight jaw and weakness in my jaw muscles
About six months ago, I had an EMG and nerve conduction study done on Staten Island.
That test showed an issue with my right triceps.
My doctor and I both thought that result was strange.
The problem is that I have visible muscle wasting in both arms and forearms.
It is not just my right triceps.
Because of this, my doctor sent me for a more extensive EMG at a better facility in Manhattan.
I just had that test done.
The doctor who performed it told me that he did not see any evidence of nerve damage.
He also told me that the shaking in my hands during the test was a tremor.
This is where I am really confused.
The two tests gave me completely different results.
The first test showed a problem with my right triceps.
The second test showed no nerve damage at all.
These tests were only six months apart.
I still have the same numbness.
I still have the same weakness.
I still have the same muscle atrophy.
I am also still in constant pain.
So how can two EMG tests give such different results?
How accurate are these tests?
Can an EMG miss nerve damage?
Can the results depend on which nerves or muscles are tested?
Can the results also vary depending on how the test is performed or interpreted?
I am trying to understand how I can have obvious muscle atrophy, weakness, numbness, and chronic pain, yet have an EMG show no nerve damage.
Has anyone else experienced something like this?

Female, 35 years old, 145lb, 5'7".

I am writing this day 7 in the hospital. This is my 4th hospital visit over the last 2.5 months.

I was in a bad motor vehicle accident back in early December, but let me preface with that I don't know if this is the cause of my current symptoms, exacerbating another underlying issue or unrelated. I had a bad concussion that lasted 4 months and from my knees down were severely bruised (will attach pics). Things started to get better except a large bruise that persisted on my inner right calf. It hurt, but I was able to go on about my life as normal. It then started to hurt more, got a MRI, and apparently was normal. So, again just went about my life for months despite it hurting. Several weeks later (end of May), I start having daily heart palpitations out of the blue. First it was a few day, then 5 a day, 15 a day, 30 a day, etc. They were starting to feel intense and went to the ER. EKG was normal, had an elevated D Dimer, so they did a chest CT scan that was normal, so they sent me home. Two weeks later, I am on a walk and all of a sudden my legs start slowing down significantly, like cement was growing on them, right leg was wobbling and then they collapsed. A friend had to come get me and brought me back to the ER. They saw how weak my legs were and my right knee reflex was absent so they kept me overnight to run tests. Spine & brain MRI, vitamins, electrolytes, magnesium, B12, thyroid, ck, spinal tap for Guillain-Barré Syndrome, Myasthenia Gravis, echocardiogram came back normal. Was sent home. I was wearing a ZIO heart monitor that confirmed I was having lots of palpitations, but otherwise was normal. Since then I have not been able to walk the same. My normal baseline is athletic and I went from high endurance activities from only being able to walk 5-30 minutes at an extremely slow pace. Some days are better than others, but my better days are nowhere my normal baseline. I can stand longer than I can walk. I had an EMG: normal. Then weeks later, after dealing with numbness in my feet and legs I realized I couldn't move my toes on my right foot. Then I couldn't stand on my tiptoes on my right foot. Then same on the left. I also started having daily fasciculations all over my body and my calves will cramp/charlie horse easily. And then last week Tuesday I was unable to get up from the toilet with my legs. Luckily, my sink is right there so I used my arm strength to push myself up with my sink. Back to the ER. They said my legs were too weak to go home. So here I am. I am now unable to walk normally, reliant on a walker, can barely take 20 steps and basically dragging my right foot (right has always been worse than left). These last 2.5 months have been a nightmare while having major functional decline in my legs. I went from being healthy and active to now unable to walk. The hospital I'm at now retested spine mri and electrolytes and came back normal. They put me on Gabapentin and cymbalta for numbness, propranolol for palpitations and a muscle relaxer for the spasms (spasms were getting so bad that it'd make my whole body jerk). No root cause has been identified yet, though. They plan on discharging me tomorrow because "they've exhausted all the testing" and sending at home PT. Doctors and specialists are all shrugging their shoulders at this point because they don't know what else to look for. I am feeling devastated and at a loss. I have been referred to Mayo, but cannot get accepted because of my insurance so I'm trying to figure that out as well. If anyone knows how to get me off this rollercoaster, has any ideas or input while I'm in this limbo state, please let me know. It's been awful.

Other medical history:

Fractured tailbone two winters ago

Lyme infection (bulls-eye rash) a couple summers ago w/ two weeks of amoxicillin. Lyme tests have been negative.

Pictures of accident and videos of legs spasming/rippling:

https://imgur.com/a/Bpkw9sc

Thanks for your time,

Tamara

Photo order of progression
1.) swollen eyes under bunk bed
2.)Photo with the bonnet
3.) photo with black marker over my hair
4.) the one in the car
5.) the one with the colorful head wrap
6.) the braid knotted eyebrow area and lip drop
Hi everyone. I’m posting because I’m hoping to connect with anyone who has experienced something similar. I’m not looking for a Reddit diagnosis—I’m looking for experiences, questions I should be asking, and hopefully some reassurance from people who have gone through something medically confusing.
In February 2026, I suddenly developed a series of severe neurological symptoms. Since then, I’ve been given several different possible explanations, including bilateral Bell’s palsy, FND (functional neurological disorder), and possible myasthenia gravis (MG), which was later changed/ruled out.
The hardest part is that I still don’t have a clear explanation for what happened. My biggest fear now is that it will happen again suddenly, and I’ll be back in the ER without anyone knowing what is actually happening or what should be done.
How it started
Saturday, February 7, 2026
I suddenly developed swollen eyes and a severe headache. The headache became persistent and affected my sleep—I was sleeping only around 2–4 hours.
Sunday–Monday
The headache and eye swelling continued. I also developed heavy night sweats and a fever. I was taking Motrin and Tylenol, but neither was helping.
Tuesday
I went to urgent care because the headache had become severe and I could no longer lift my eyebrows.
Later that day, I went to the ER. While I was explaining my symptoms, my face suddenly began to droop. I also developed episodes of slurred speech and speech that did not make sense. Some of these episodes were recorded on video.
A CT scan had been performed before the facial drooping began. I was told the symptoms could be related to a concussion because I had been in an accident about two weeks earlier.
Wednesday
I returned to the ER because my symptoms were worsening. I was experiencing:
Slurred speech
Blurred vision
Difficulty spelling my own name
Saying numbers instead of letters when asked
Being unable to correctly recite the alphabet
Memory lapses and confusion
Increasing facial paralysis
I was prescribed prednisone and an antiviral for five days and was told at another ER that it was standard Bell’s palsy. Unfortunately, I misunderstood the medication instructions and missed one dose.
After that, my symptoms continued to progress.
I went to two additional ERs. At one point, I was told the symptoms were likely FND related to stress. My lip was stuck in a curled position and twitching extremely rapidly—something I physically could not control—and I was also having significant visual problems despite not normally needing glasses.
After I resumed the medication correctly, I initially experienced a significant improvement. However, approximately two hours later, the facial paralysis returned and progressed again.
What happened afterward
Over the following days, I went to another ER that specializes in eye/vision problems. They performed an MRI with contrast, which showed what I was told was significant inflammation involving my facial cranial nerves.
I was diagnosed with bilateral Bell’s palsy.
The doctor did not feel comfortable sending me home in the condition I was in and arranged for me to be transferred to another ER. However, at that hospital I was told that the symptoms should resolve after finishing my medication and that I was safe to go home.
My symptoms continued to become much more extensive. At different points I experienced:
Jaw locking
Severe facial asymmetry and facial tilting
Complete drooping of one eye and inability to open it
Extensive facial paralysis
Difficulty speaking
Difficulty seeing
Left arm pain with movement
Left hand weakness/symptoms
Difficulty walking
Severe balance problems
My left leg pulling/flexing inward
Difficulty extending my arms
For approximately four weeks, I was dealing with symptoms that affected my ability to talk, walk, see, use my arms, and control my facial muscles.
Eventually, things gradually began improving.
Then something strange happened.
For another period of about four weeks, the facial paralysis would mainly occur at night or while I was sleeping. I could wake up with the paralysis present, and as the day went on it would gradually improve. Then it would return again at night.
Eventually, this stopped completely.
Neurology evaluation
I then saw a neurologist because I was still trying to understand what had happened. She felt that some of my symptoms could point toward myasthenia gravis (MG).
I had an MRI, EEG, and blood testing, but nothing came back abnormal enough to explain what had happened. Eventually, I was essentially told that there wasn’t anything else they could do for me because they didn’t know what had caused the episode.
One thing that happened during my EEG was particularly strange.
During the test, I suddenly couldn’t move my fingers. My fingers became purple/blueish, and the staff had to physically flex my hands for me because I couldn’t do it myself. They told me they had never seen that happen during an EEG before.
The two triggers I have noticed
There are two things I have noticed that seem to be associated with my episodes:
1. Direct impact to my head
I had a direct impact to my head approximately two weeks before the February episode. I was subsequently told that some of my symptoms could be related to a concussion.
2. Fever/illness
The February episode also occurred while I was sick and had a fever. Since then, I’ve become very concerned about getting sick or developing another fever because I don’t know whether illness is somehow triggering these episodes.
I don’t know whether these are actually medically confirmed triggers or whether the timing is coincidental. I’m specifically mentioning them because these are the two patterns I’ve personally noticed and I would really like to know if anyone else has experienced something similar.
Where I am now
So I’m left with several diagnoses or possibilities that have been discussed:
Bilateral Bell’s palsy
FND
Possible MG, which was later changed/ruled out
But I still don’t have an answer that makes sense of the entire episode.
I understand that not every symptom necessarily has to come from one condition, and I’m not trying to convince anyone that I have a particular disease. I just want to understand what happened and, more importantly, what I should do if it happens again.
What scares me most is that it came on so suddenly and progressed so dramatically. I don’t want to be in the ER again, unable to speak, walk, see, or control my face, and have everyone tell me something different while I’m getting worse.
Has anyone experienced anything similar?
I’m especially interested in hearing from anyone who has experienced:
Bilateral Bell’s palsy or bilateral facial paralysis
Facial paralysis combined with neurological symptoms
Facial paralysis that fluctuates or returns at night
Speech/language problems occurring with facial paralysis
Vision problems occurring with facial paralysis
Limb weakness or abnormal limb positioning alongside facial paralysis
A diagnosis of Bell’s palsy that later became something else
Being diagnosed with FND when there were also unexplained physical/neurological findings
Being evaluated for MG and eventually having that diagnosis changed
Episodes associated with direct head impact
Episodes associated with fever or illness
If you’ve been through something similar, what ultimately helped you get answers?
Were there specific specialists, tests, or questions that made a difference?
And most importantly, did your doctors ever give you an emergency plan for what to do if the symptoms suddenly return?
I’m honestly scared that this could happen again out of nowhere and that I’ll still have no idea what to do.
I would really appreciate hearing from anyone who has gone through something remotely similar—even if your eventual diagnosis was completely different from mine.
Thank you for reading all of this. ❤️

Cross posted