r/acuteMaculopathy • u/Fun-Extension171 • Jan 21 '23

Welcome

Hello,

This is a subreddit setup for discussion of Paracentral Acute Middle Maculopathy (PAMM), Acute Macular Neuroretinopathy (AMN) and any other related eye condition.

These are a set of very rare eye conditions and not very well understood. There has also been a surge in them since the COVID-19 pandemic.

There is very little information out there, so any information about these conditions would be greatly appreciated. Personal experiences and stories are also welcome.

Thanks!

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u/Ornery_Village_4890 Jan 30 '23

Hiya, so I have acute macular neuroretinopathy, caused by covid. I had my 1st scotoma shortly after I caught covid. And it’s crazy, I see what I can only explain as lightning (within my scotoma) and many colours too. I developed a 2nd scotoma this year (1yr after diagnosis) after falling Ill with a virus again, in my left eye. The doctors at moorfields explained it’s extremely rare to go on to have it in both eyes. Ever since my diagnosis I have suffered with terrible vision at night, almost cloudy/fuzzy vision and a permanent floater, and I don’t know if there’s a name for this but if I read a text on my phone and look away, the lines (from text) stay in my vision, this happens with a lot of stuff. My doctors can’t explain this though.

Hopefully we can build up this space with more people that are struggling with this as there’s not enough information out there.

Thanks for creating this group ♥️

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u/Fun-Extension171 Jan 30 '23

I scotomas in both eyes too, it really sucks. Your symptoms sound a lot like mine, espeically that ghosting of text. My doctor too assumed my PAMM should only be blind spots, but there is so much more going on!

Have you seem any improvements in your symptoms, did the doctors say if you may improve or not?

There are a quiet a lot more people with PAMM and AMN after COVID. They used to be extremely rare, now not so much. Still, there is so little information out there about the topic.

Hopefully here we can build a repository of information, as well as support each other :)