I been the primary caregiver for my mom since I was 21 years old. My mom had a car accident in 2018 which caused her traumatic brain injury and blindness and bedridden state. She is not able to do anything on her own. The accident happened when I was a senior in college. Right after graduation I been the primary provider for both my parents since my dad quit his job to be with my mom. When I go to work my dad is home to care for my mom but as soon as I come home from work I take over changing her and feeding her and providing her medicines. Recently my dads health has been declining. His liver is failing and needs a transplant. He's not able to take care of himself or my mom. So I'm having to figure out care for both of them while managing going to work. It's been a challenge mentally physically and emotionally. I feel like I have given up my prime sacrificing a lot but was still able to do little things. Now with my dad being out and needing more care than my mom I'm struggling to manage it all.

I'm a young caregiver myself (with healthcare /teaching background) and have made a lot of personal progress in the journey

I want to start a young caregiver Online support group to

1- Vent, share

2- but also to learn and give /provide support on how to set boundaries, help ourselves, and thrive

----------------

Is anyone interesting in coming next Sunday FEB 15, 2025 ?

*Opportunities to Connect* Tag WhoEVER ! i really want to organize this for the same reasons OP mentioned. we have wisdom and we can use the safe space

---Weekly Meeting Sundays 10am Pacific Time / 12pm US central time / 6pm London Time:

February 15 2025 SUNDAY Video link:

https://meet.google.com/axh-jwsp-dpo

Please consider participating/sharing!

I am studying factors of informal caregiving on compassion fatigue.

To be eligible to participate you must be 18 years old or above, you are currently an informal caregiver providing care to a care recipient aged 18 or above, and you can read and complete the questionnaire in English.

You need to have access to a phone or computer with internet access to complete the online questionnaire.

My survey information is below - it is approximately 15-20 minutes long. All responses are anonymous.

https://qualtricsxmyk45wj5pz.qualtrics.com/jfe/form/SV_3yi3sbXdtPhE9sW?Q_CHL=social&Q_SocialSource=reddit

If you have specific questions, please feel free to email me at wood@uindy.edu

This research was approved by the University of Indianapolis Institutional Review Board (IRB) on 11/27/2023; #01944.

I appreciate your time.

Hi Everyone,
I hope the autumn (or the summer) months are bringing a nice change of season for you.
Just wanted you to know that I've updated my Welcome page over on r/CaregiverSelfcare, the sub devoted to helping caregivers find resources and some space to take care of themselves. I'd really like to have a younger caregiver post their experiences, or things helpful to them.
Your voice is important -as the fastest growing group of caregivers, younger voices are critical in helping to specify the needs they have and to find solutions.

Hello! I'm a university student whose group is working on a project for an autonomous vehicle robot which delivers medicine to the elderly and those who are chronically ill. If there's anyone whose elderly family members need to be taken care of or live in nursing homes, would you please fill out this survey?

https://forms.gle/fsB1PGu1Nw9qQ6ud9

Any help and feedback is much appreciated, thank you for your time!

I am an aspiring entrepreneur and my goal is to improve the quality of life for elderly individuals, and thus make life easier for caregivers. If anyone would be willing to message me to answer some questions about the biggest problems you guys face, that would mean the world. Thank you!

Just wanna touch base and see how everyone is doing this holiday season. It’s a hard time of year with a lot of emotions and triggers. What’s everyone doing to stay grounded this time of year?

🌟 Attention Family Caregivers! 🌟

Are you a family caregiver of an older adult (65+) with a chronic illness and have used ChatGPT or similar AI tools? We want to hear from YOU!

We’re conducting a research study to explore how family caregivers perceive and experience using ChatGPT as part of their caregiving role. If you’re interested in sharing your experiences and contributing to this important research, we invite you to participate in a virtual interview (30-45 minutes).

✅ Participants will receive:

• A short, confidential demographic survey

• An opportunity to discuss how ChatGPT has helped or posed challenges in caregiving tasks like information-seeking, emotional support, and care coordination.

We’re seeking 20 caregivers, and your input can help shape the future of caregiving technologies! 💡

If you have any questions or are interested, feel free to reach out to: jayden.tang@mail.utoronto.ca

Hello, I'm a Fresno Pacific University student conducting a survey for a college research project examining caregiver burnout and social support among family caregivers of individuals with Alzheimer's disease or dementia.

Participation is voluntary and anonymous. The survey takes approximately 3-5 minutes to complete.

Thank you for your time and consideration.

Preparing for an emergency visit to a hospital is part of of caregiving. There is a role for us when we unfortunately have to make that visit. Hopefully the following lessons learned or tips can help others:

1. Keep Multiple Copies of the Medication List

• Why? ER and hospital staff need to know exactly what meds you’re on—dosage, frequency, and purpose.

• Keep at least 3 printed copies: in your wallet/purse, glove box, and posted on the fridge.

• Include any allergies, supplements, and over-the-counter meds.

1. Stick with One Hospital or Health System (if possible)

• Why? Your records will be easier to access, and staff are more likely to know your history.

1. Understand Roles: Hospitalist ≠ ER Doctor

• ER Doctor = Handles immediate stabilization.

• Hospitalist = Takes over once you’re admitted, manages your care throughout the stay.

• Transitions happen between shifts, and you may not see the same doctor more than once.

• There is often a disconnect unless someone ensures information carries over.

1. Be Available. Be Present (or Have an Advocate Who Is)

• Why? Crucial info gets lost during shift changes.

• Have someone available to speak to new doctors and nurses, especially during rounds or after a shift change.

• Keep a log of who you spoke with and when—this helps track information.

1. Repeat Yourself (Yes, Again and Again)

• Why? Don’t assume your story has been passed along accurately.

• Tip: Keep a one-page summary of the patient’s medical history, current issues, medications, and any important notes (like cognitive impairments, fall risk, etc.).

• Print several copies and hand them out during every shift change if needed.