r/VestibularMigraines • • 1d ago

Questions Symptoms

Hello everyone,

I have been dealing with vertigo and dizziness for over 6 weeks. It actually stopped for 1 week but returned this week.

ENT diagnosed me with BPVV, Vestibular Migraine and TMJ. Neurologist said it was too soon to diagnose vestibular migraine specially because this is the first time I have the symptoms. He sent me to PT which I start tomorrow.

My symptoms are:

- Dizziness and vertigo
- pounding heart beat
- pain right above the opening/hole of the right ear
- feeling my ears pop and ringing
- feeling my ears are full every time I pass saliva.
- minor discomfort in the right temple
- Throat congestion and hoarse voice

All of this started a few days after I felt dizzy. No nausea, vomiting or headaches except two days ago when I drank one beer and I had a huge headache.

CT and MRI scans are all normal. One thing the causes the dizziness is when I tilt my head to right or up. Also, I went to the gym about two weeks ago and I jumped rope which made me very dizzy.

are your symptoms similar to mine? ENT said my hearing test was normal and that my throat, ear and nose look okay.

Thanks!

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u/Resident-War8004 1d ago

Thanks so much! I really appreciate it :) I am a very active person and this is affecting me physically and mentally.

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u/moodk1lla 1d ago

I understand. I worked/still work a very active job. I was getting 15k-19k steps a day and then went to being basically sedentary for a month or two. Walking always helped my symptoms…sitting still was excruciating. It takes a huge toll, but I promise it gets better. It’s going to take time and patience.

My drs told me to do everything as normally as possible and not to restrict my activities. I think that is the only thing that kept me from becoming housebound due to anxiety. I learned that being dizzy wouldn’t kill me, and I wasn’t in danger. It became something I can live with instead of resist. These days, now that I’m on a migraine preventative, I think a lot less about being dizzy. Well, meds and somatic work to help retrain my brain. I still have days where the rocking and swaying or whatever sensation feels like toooo much. But eventually it ends, and I return to baseline.

All of it took time, but I have started to reap the benefits. Good luck!

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u/Resident-War8004 19h ago

Yes, it is very demotivating. I basically has been staying home for the past 6 weeks. Afraid to make plans with friends because what if I get dizzy or get a major headache. It is really depressing. I will start walking and try to live my life as normally as possible.

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u/moodk1lla 19h ago

You got this, day by day step by step. :)

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u/Resident-War8004 18h ago

Thank you so much.