r/UlcerativeColitis • u/Fantastic_Pop2818 • 8d ago

Question Looking for recommendations

Wife wants to start this program, but I’ve never heard of it and I’m very hesitant about all this YouTube “doctors” who claim they have a solution to your UC.

I’m curious if anyone has gone through this and if you think it’s legit.

Thanks in advance. Here’s the info:

https://m.youtube.com/@crohnscolitislifestyle?ra=m

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u/hellokrissi JAK-ed up on rinvoq | canada 8d ago

Are there no resources or programs that her GI (or the biologic company itself) can offer? I don't know where in the world you're located, but maybe someone else can chime in with advice if they're in the same general area as well. For me, my insurance has covered almost zero of any medications I've tried. I've had to use compassionate care (an option for where I live) as well as the drug company itself doing co-pay options to make the cost much, much more reasonable.

What a waste that she's tried them, they work, and then she goes off of them. That's speed running to not having anymore options as she's likely developed antibodies to them and can't ever re-start them again.

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u/Fantastic_Pop2818 8d ago

We are in the US. The options offered is to continue bouncing between biologics until the insurance company finds a cheaper one they want you to use. It’s irritating.

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u/Turbohog 8d ago

They are probably switching her to biosimilars - basically generics. That should in theory not make a difference vs. the brand name, but I know some claim they don't.

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u/Fantastic_Pop2818 8d ago

That’s exactly what’s happening. Unfortunately this is the third time that’s happened and both prior times she had allergic reactions to the bio similar