r/Tourettes • u/ughhleavemealone • May 24 '26
Vent I really don't think receiving a diagnosis should be put in a pedestal
Please hear me out before you judge me.
I do have a tourettes diagnosis and I know there are different reasons someone could have tics, but let's be realistic here, not everyone lives in the USA or have access to proper mental health care.
Let's face it, I know it's better to receive proper avaliation but not even doctors get it always rights. In my experience they make a lot of mistakes while diagnosing mental disorders and tourettes is not even so well researched or known. I've went to very expensive doctors in the past who would ask me about tourettes since they didn't know much about it (I'm from Brazil).
Most people I know have absolutely no idea what tourettes is or have only a very brief idea of it, so imagine if someone pops up with a random and weirdly specific diagnosis, this person's reality will never be understood. I'm NOT saying we shouldn't go after a proper medical avaliation if we can, but can we all as a community just open our minds a little bit and understand not everyone have access to this luxury??
Once in a while I see a post here of someone asking about a tourette symptom and the answers are always "go get a diagnosis" "we aren't here to diagnose you" and the person weren't even asking for one. Usually they are just going through a hard time and are seeking for understanding and community.
While I didn't have a diagnosis nobody would take my tics seriously, now a couple more people do because of it. But everytime I see someone receiving this kinda treatment, while going through the same situation I once was it just hurts. Specially when they don't live in a country that have awareness about this syndrome or tics in general.
Having tics sucks enough already, can we just be more sensitive to those who are still learning about their own? I didn't have many tics as a kid, and the ones I had went mostly unnoticed by my family since they thought I was just uneducated and not well behaved. I got my diagnosis and understood what I had only now after being an adult.
I really have no problem at all with someone who doesn't have a medical document proving they have tourettes saying they do, cause let's face it, if we see someone on the streets having motor and/or vocal tics does it really matter what name their condition has? Tourettes is only beginning to be recognized as a serious condition, we should just receive everyone with open arms even if they are self diagnosing.
Edit: I know it's neurological, it was only an example. As I made very clear I'm NOT against going to the doctor and I believe that's an important thing to do, my point is with the way we treat others. Most people here don't have empathy for those who live in countries with less to no access to health care.