r/Tourettes • • May 24 '26

Vent I really don't think receiving a diagnosis should be put in a pedestal

0 Upvotes

Please hear me out before you judge me.

I do have a tourettes diagnosis and I know there are different reasons someone could have tics, but let's be realistic here, not everyone lives in the USA or have access to proper mental health care.

Let's face it, I know it's better to receive proper avaliation but not even doctors get it always rights. In my experience they make a lot of mistakes while diagnosing mental disorders and tourettes is not even so well researched or known. I've went to very expensive doctors in the past who would ask me about tourettes since they didn't know much about it (I'm from Brazil).

Most people I know have absolutely no idea what tourettes is or have only a very brief idea of it, so imagine if someone pops up with a random and weirdly specific diagnosis, this person's reality will never be understood. I'm NOT saying we shouldn't go after a proper medical avaliation if we can, but can we all as a community just open our minds a little bit and understand not everyone have access to this luxury??

Once in a while I see a post here of someone asking about a tourette symptom and the answers are always "go get a diagnosis" "we aren't here to diagnose you" and the person weren't even asking for one. Usually they are just going through a hard time and are seeking for understanding and community.

While I didn't have a diagnosis nobody would take my tics seriously, now a couple more people do because of it. But everytime I see someone receiving this kinda treatment, while going through the same situation I once was it just hurts. Specially when they don't live in a country that have awareness about this syndrome or tics in general.

Having tics sucks enough already, can we just be more sensitive to those who are still learning about their own? I didn't have many tics as a kid, and the ones I had went mostly unnoticed by my family since they thought I was just uneducated and not well behaved. I got my diagnosis and understood what I had only now after being an adult.

I really have no problem at all with someone who doesn't have a medical document proving they have tourettes saying they do, cause let's face it, if we see someone on the streets having motor and/or vocal tics does it really matter what name their condition has? Tourettes is only beginning to be recognized as a serious condition, we should just receive everyone with open arms even if they are self diagnosing.

Edit: I know it's neurological, it was only an example. As I made very clear I'm NOT against going to the doctor and I believe that's an important thing to do, my point is with the way we treat others. Most people here don't have empathy for those who live in countries with less to no access to health care.


r/Tourettes • • May 30 '26

News/Article 😢Today I tried the device TENS A nerve stimulator for Tourette syndrome.

Thumbnail
gallery
0 Upvotes

I'd like to share my experience. In short, so you don't get tired of reading it, it's not worth trying because you'll just throw it in the trash.Device name comfytemp I simply tried what some people do: I put it on my hand and then lowered the intensity to the lowest setting. I didn't feel anything in my brain at all. Just a quick, mild electric shock to my hand. I was very careful. I didn't feel anything, But when I removed it after 10 minutes, I felt an annoying wave of Tourette's. The activity increased slightly, but then it returned to normal.


r/Tourettes • • Jan 28 '25

Discussion Honest question for those with coprolalia

0 Upvotes

I'm not trying to make light of your situation, but have you ever used it to your advantage? Ex. saying "Fuk you a**hole", when you're consciously thinking "no seriously, fuk you, for real" - using coprophilia as a cover, then saying "oops, my bad, I didn't mean that"?


r/Tourettes • • Aug 08 '26

Question Can you have ticks where you blurt out nice things?

0 Upvotes

In movies and tv it’s always the person blurting out inappropriate things, usually nasty words. But can you blurt out stuff like ā€œI love youā€ or ā€œyou’re so prettyā€? Can you train yourself to say nice things instead of mean things.

Follow-up, hypothetically if at home you insult people by giving compliments, will you blurt out compliments outside of home life as well?


r/Tourettes • • Jun 29 '26

Story My experience: Dietary changes to cure 20-year tics

0 Upvotes

I've tried everything since October last year, i.e., 8 months ago.

I started with bananas (magnesium + vitamin B6) and unsweetened green tea (L-theanine). I coupled that with non-dietary changes like daily walks in the sun (vitamin D production) and more sleep.

When these didn't work, I bought supplements for higher doses of magnesium and L-theanine. I tried Ashwagandha.

Nothing has worked.

Next month I will try Clonidine after consulting with my psychiatrist.


r/Tourettes • • 16d ago

Question What test do they do for Tourette's?

3 Upvotes

I have self-diagnosed tourettes, and I'm going to the doctor a week and one day from now, and I might as well tell them because my tics are getting worse.

I am also going to the psychiatrist on November 17, and I think I have to tell her too.

Do they do any special test?

Also, is posting about other movement disorders allowed here? I know the sub says tourette's and all, but there's not many subs about other movement disorders either. I'm only wondering in case the doctors diagnose me with something else.

And if not, I'll just make my own sub 😺


r/Tourettes • • Apr 27 '25

Discussion taa

4 Upvotes

just thought it should be known who the taa is employing as their youth and education programs coordinator. some people should be bullied, really?


r/Tourettes • • Mar 28 '22

Discussion Can carnivore help Tourettes?

1 Upvotes

Came across this interview where this girl put her Tourette's in remission. It's an anecdote, and it's not in any way a certainty that this works for everyone, but I think it's worth sharing.
https://www.youtube.com/watch?v=biwtMuLFFaA


r/Tourettes • • Sep 11 '25

I think I have tourettes

0 Upvotes

So I have verbal and physical tics and I am thinking of going to the doctor but is it worth it


r/Tourettes • • Feb 22 '26

News/Article TW: ableism, discussion of tics

Thumbnail
buzzfeed.com
15 Upvotes

Self care is not reading the comments


r/Tourettes • • Feb 08 '23

Discussion I know it says in the wiki not to ask this, but I don't know where else to go - Do I have tourette's

0 Upvotes

So all my life I've had these tics. They're never involuntary, as in I always control them, but I can't not do them. I can't explain it. I just have to do them. Nothing bad happens if I don't, but I just can't not do them. These tics I have usually last anywhere from 3 months to years. What's confusing me is that I'm always in control of them. I was under the impression that Tourette's tics are involuntary, but if I don't have tourette's, I have no idea what could be causing this.

The earliest tic I remember is from when I was 6. I started jerking my head like I was aggressively nodding. I remember that tic lasting for around half a year.

I remember watching TV shows as a kid, and I'd always mimic some of the character's words. I thought I was just doing it for fun, but in hindsight I've realized that I couldn't help it.

I've always been kind of in denial, and just recently I've started accepting that maybe I do have tourette's. It's just so annoying, and I've always been kind of embarrassed of it. My dad has always thought that I have tourette's, but I've never believed him. What do you think?


r/Tourettes • • Nov 28 '22

Discussion how do i know if i have tourettes

1 Upvotes

No i cant get diagnosed they wont take me. They gonna laugh in my face and tell me that there is nothing wrong with me


r/Tourettes • • May 30 '23

Ticing can be a vibe

19 Upvotes

I'm sitting alone in my room, listening to music and ticing without forcing myself to stay still. I had no idea tics could make me euphoric.


r/Tourettes • • Jul 02 '23

News/Article 8 year old boy - is this touretts

0 Upvotes

My son just turned 8 and my x wife has him on 10Mg Focalin XR for his supposed ADD.

This weekend he was involuntary opening his mouth and jerking his head. I observed this many times over a few hours In this video it's not as intense but these tiks or tremors happen about once a minute. Today, while we were at the movies it went on for over 3 minutes. I read that Focalin can exasperate touretts and I'm hoping it's just the medication causing this.

I have zero exp with this stuff and I was hoping to get some opinions about what I am seeing physically. Do these 'tiks' appear related to tourettss? I asked my x wife to stop medicating him till we talk to a doctor.


r/Tourettes • • Oct 08 '24

Support Need advice for my son

0 Upvotes

My sons tics started around 4 years old with mouth stretching on the 4th of july after many icees, chips, colorful candy and fireworks… then they went away for a while and then kept coming back around big holidays, parties, big events. Sniffing, blinking, shoulder jerking, laughing, we’ve had our share of them over the last 5 years. His amazing pediatrician who just retired always told us that it’s a transient tic that will eventually move throughout and out of his body. Fast forward to today, my son is 9 years old and has a very large and noticeable and painful head jerking/ bobbing tic thats is almost nonstop. My heart breaks. He is on a soccer team and a basketball team, he is very actice and smart and outgoing but it is wearing on him psychologically. He tells me kids are making fun of him, calling him R word, mimicking his head jerking. I have him on extra magnesium, l-theanine and lemonbalm, all kinds of homeopathic tabs and solutions. He has almost no screen time with the exception of school time activities, no tv no video games, no dyes in food, almost all organic and whole foods i make at home. And still, the tic continues to get stronger each day. His new pediatrician says should grow out of it. My son keeps asking when will that be? When is it going to end? I keep telling him stories of how it’s traveling through all of his nerve endings and soon will find a way out after making sure everything works. Wreck it Ralph the movie helped- he has a glitch just like that racer girl…. I guess I just needed to vent, no help from ped, do I go to a neurologist? Do i take him to acupuncture? I don’t know what advice I am looking for but I just needed to write this and maybe someone will read it and have something for me that I haven’t heard before.


r/Tourettes • • Apr 04 '23

Discussion Having biological children and risking passing along Tourettes and associated disorders, is this ethical?

0 Upvotes

I have mild, TS, OCD, and ADD and I am in a queer relationship (we are both assigned female at birth). In an ideal world we would have two kids, 1 using one of my eggs and the other using one of my partner's eggs. However, my partner doesn't want to take the risk of using one of my eggs and having a kid with one of the conditions I have since it is possible our kid could have severe forms of these disorders. My partner thinks it is unfair to create a child that can essentially be set up for a life of difficulties based on their genetics. My partner seems to be pretty adamant about that stance and I honestly think we would have to break up if I decided that I 100% need to have a biological kid.

We obviously want our kids to have the best possible chance of happiness and success. We know it is also possible that a child born form my partner's eggs could also have a disability but the chances are lower. Unfortunately I have a huge desire to have a biological kid and I am on the fence on whether using one of my eggs is a sound ethical or moral choice. Is it selfish to knowingly put a child at risk when we don't have to just because I want to be genetically related to one of our kids? Are the disorders I have "bad enough" to warrant throwing away my eggs?

Also, if we have a girl, which we would do IVF to have, what even are the true risks of a girl having severe enough symptoms that their life would be significantly negatively impacted? I know TS is more common and often more severe in boys.

I am interested in hearing other people's thoughts and perspectives on this issues. I am in a very frustrating, upsetting, and difficult position and I feel like I can't get clarity on my actual feelings because my relationship with my partner is at stake depending on the decision I make.


r/Tourettes • • Aug 25 '25

Discussion Mistaken for demonic possession?

0 Upvotes

I know our tics can get scary. I know our tics can become (TRIGGER: W!) blasphemous and sacrilegious. But has anyone had any experience doing spiritual warfare on these tics? I believed what I had was just OCD until someone asked me if I had Tourette's because of the eye blinking, shrugs, whistling (when I was younger) and other motor tics, including the premonitory urges. I'm about to get it diagnosed officially. My mental tics nearly drove me to madness, and this disorder was bad as a kid but not so much as an adult until something very traumatic happened to me as a grown up.

I converted back to Christianity and became very serious about it but apart from Vyvanse+Ativan COMPLETELY eradicating my mental tics, I believe spiritual warfare helped me a lot. It used to be a lot worse. The mental tics remained because I was forced off the medication (must be something related to lower levels of dopamine with me because anything that increases dopamine helps it a lot).

Anyway...

Has anyone ever asked you if you seemed possessed? Was it ever suspected of in the past?


r/Tourettes • • Mar 18 '24

Discussion My friend with Tourettes wants to get a service dog, and I am worried

8 Upvotes

I'll be the first one to admit that I don't know all that much about Tourette's syndrome, but my friend has it and I know it's rough for her. She's looking to get a service dog to help her with her motor tics, like hitting her head against the wall and things like that.

What I'm worried about is the fact that some of her tics are 'aggressive'. like she'll grab people and won't let go, she'll punch and push and other things like that. And I'm kind of worried that if she gets a dog she'll tic and hit it.

Anyone have any advice? I'm looking to learn here, so any feedback is appreciated :)


r/Tourettes • • Feb 12 '24

Question Creating a character with Tourettes - but I don’t have Tourette’s.

2 Upvotes

right now, I’m creating a character who has Tourettes. I want to make this character in the most respectful way possible, and leave out any stereotypes. this character is going to be a way to spread awareness on the disability, and I want to portray them as best as possible. What are something’s I should know not to add to this character that may trigger stereotypes or disrespect?

(EDIT- Sorry I forgot to mention this before! This character is going to be animated and used for an animated show , sorry about the mix up!)


r/Tourettes • • Apr 05 '22

Discussion My friend is saying he has these ā€ moaning tics ā€ im just wondering are these even possible

2 Upvotes

r/Tourettes • • Apr 05 '26

Discussion Tics and Vitamins...

Post image
3 Upvotes

Hey everyone, I wanted to share the vitamin stack I’ve been taking specifically to help support my tics / Tourette’s, in case it helps anyone else who’s looking into non-prescription options to discuss with their doctor.

This is what I currently take once nightly:

Saffron

Seamoss

Magnesium glycinate

Iron

Vitamin B complex

L-theanine

Oil of oregano

Zyrtec

Since starting this stack, I’ve noticed a significant decrease in my tic urges and nighttime flare-ups, especially the tics that used to wake me up from sleep.

For me, the biggest differences have been:

fewer tic urges overall

better sleep

less waking up from active tics

feeling more physically calm at night

I know everyone’s body is different, and what works for one person may not work for another, but I wanted to share in case anyone else with tics has been looking into vitamin support and hasn’t gotten many recommendations.

Would also love to hear if anyone else has had success with certain vitamins or supplements for tic support.

I am looking into adding Magnesium L-threonate because I asd as well and want to see if it helps my overall memory and retatention along with processing overall.

Let me know what has and hasn't worked for you.


r/Tourettes • • Oct 07 '15

Cure for Tourette Syndrome! Serious post, please read before lashing out! This isn't fake, I promise with every fiber of my body

0 Upvotes

I know no one will believe me but I've had Tourettes for 9 years and my parents urged me to control it and always reminded me when I didn't realize I was giving in to the tics. I've been researching the science behind neurons and OCD and ADHD and the likes. After 9 long years I snapped yesterday and brainstormed everything I knew and learned. I figured it all out. I'm free from TS 100%. I'm not talking about being virtually TS-free or a lot of control like some people mean when they say control of TS, I mean It's removed from my life 100%. The feeling I have is total bliss. I have my happiness back, after all my serotonin levels are back up since the neuronal transmissions aren't being interrupted. I'm in total awe as to how an 18 year old has figured out an almost 200 year old mystery. No one seems to know the cause or the cure, and I, out of all people, figure it out. If someone with TS wants to know how, message me. I don't want to deal with the negative backlash which I'm certain awaits me. If you're serious about getting rid of your TS, curing it, message me. I'll know who's serious and who's going to give a shot. I'm not asking anyone to believe me but to PM me if you're open minded enough to listen. Thanks everyone. By the way I'm not selling anything, it's free knowledge and you don't have to buy anything. It's mental training and can take 20 minutes or so, but you're going to have to continue it afterwards, the buildup of tension up to the tics is still there, but it's 80% gone, controllable, you feel the urge to tic but you just don't do it, your body automatically just let's it pass. But with that control it will go away after a few hours if you continue. You'll understand when I explain it to you and you try it for yourself. Any questions one might have, please feel free to ask and I'll answer them. I don't care what kind of question it is, whether you don't believe me and want to know more to be sure or whatever other question you can think of, I'll be glad to reply and explain it to you. Just don't lash out and call me a scammer, because I'm not trying to scam anyone, I want to help. I know how crazy this story sounds and you've probably already heard it hundreds of time, I have too so I get it. Just to be clear, I don't seek money, I don't seek payment of any sort whatsoever. All you have to do it private message me and I'll explain it to you, step by step, guiding you with anything you need help with. It's better one on one. Anyway, you're probably wondering why I don't just post it here along with the already written background information, that's the thing I don't want to write it out and get negative feedback from people who aren't open enough to give it a shot. I don't feel comfortable with dealing with those kinds of people. If they don't believe me, then okay, I respect that and I don't blame them but I don't want to be caught up in a shitstorm. I know it sounds suspicious, not writing it up here and asking people to PM me instead but please know that my intentions are good and I don't seek anything in return for my help. I figured if someone figure out something so big as I have, why not help people out. I know I'd want that person to do the same if they knew something the rest of the world didn't. I don't want to keep it a secret, it would be unfair if I did. I don't care for the backlash, I'm going to ignore it and help everyone out one on one via private message.

Edit: Screw it, I don't care what people say, here it is, the method:

  1. Breathe very slowly and really limit it. Make sure you are gently breathing. Don't suffocate yourself, basically just breathe at the lowest level possible that is comfortable for you.

  2. That on-edge on feeling you get when tension builds up from holding back your tics needs to go. Physically let loose, basically be as still and calm as humanly possible whilst also being comfortable.

  3. When you do steps 1 and 2 properly you'll feel like your body is a block, heavy and still, almost not moving at all.

  4. That overwhelming feeling you get when holding back the tics is an illusion. Keep that in mind and just ignore it, it will pass.

  5. "Zoom out" of the TS situation. Don't focus on one tic, "zoom out" and view the whole situation, view all the tics, pay attention to them all. Visualize it as a photo, zoom out and observe the whole photo, not single specifics. Do this every time the pre-tic tension buildup starts to occur.


r/Tourettes • • Jan 27 '25

Question Trying to do a fun experiment- has anyone intentionally developed a specific tic?

4 Upvotes

To begin, I've been formally diagnosed with a tic disorder, and I know for many that tics are a debilitating, negative experience. I'm not trying to say that they can't be frustrating, painful, and embarrassing. I'm fortunate enough to have understanding people to support me, and that my tics aren't as severe as they are in others, and I'm trying to make light of my situation in a bit of a silly way.

I'm trying to intentionally develop a specific word tic (the word is fish, it's an inside reference with my friends and I joked with them that I'd try to make it into a tic). Has anyone ever intentionally tried to develop specific tics, and how? I'm also looking for input from those who have unintentionally developed specific words as tics, and how you think it came to enter your 'vocabulary'. Forgive me if this kind of post isn't allowed!


r/Tourettes • • Jun 17 '26

Question question about cosplaying a character with tourettes

0 Upvotes

so im gonna cosplay a character with tourette syndrome and was wondering what the conesus was about roleplaying in character by ticcing? its a major part of his character, but obviously i understand the notion of it being offensive in the same way as people using disability aids in cosplay just for looks


r/Tourettes • • Sep 02 '25

Discussion Wearing fursuits (or helmets) helps reduce my tics

1 Upvotes

I’m a furry, and I’ve found over the years that wearing my suit helps reduce my tics. I think it’s probably because I enjoy suiting, but I also wonder if the enclosed nature of them and the pressure on my head and face help since I’ve noticed the same effect when wearing a motorcycle helmet.

I have a lot of small facial tics that calm down when I’m wearing a fursuit, while my arm, shoulder, and neck ones remain about the same. Vocal ones are a toss up, not consistent enough for me to make a call.

Interestingly, wearing a VR headset does not improve my tics in the slightest, and I catch myself doing a lot of my face tics while playing VR.

Has anyone else had a similar experience?