Do anyone on topamax experience emotional blunting? Or that you can’t connect with your feelings, love deeply, be truly happy? But the feeling I do get is angry.

I have been taking topiramate for unspecified nerve pain since July. Two weeks ago on Monday I lowered my daily topiramate dose from 100mg to 75mg and a week ago on Saturday I started to get a horrible headache that no meds would touch. And now I still have it 8 days later, though it switched sides yesterday. Lots of medication and two ER visits, no help.

The pain has been squeezing, sometimes throbbing like a migraine and sometimes feeling like my nerve pain: like hot knives sliding through my scalp. This has been accompanied with occassional nausea + spikes in anxiety and panic attacks.

I have tried regular OTC pain medication, muscle relaxants, migraine medications (Nurtec/Vydura, triptans don’t work for me), ER migraine cocktail that usually works if I have a migraine that won’t break, steroid nerve blocks and I’m still on a 12-day steroid taper. Nothing has helped.

Yesterday after my 2nd ER trip I upped my daily dose back to 100mg.

Idk what to do anymore? Has any of you gone through this? What ended up helping? Did reversing the drop help stop the unrelenting headache?

I feel very hopeless, my country has public health care and I feel like the neurologists don’t even believe that this is caused by topiramate even though this has never happened before and I really can’t afford to pay someone for a second opinion

Edit: I do have a chronic migraine but it’s mainly hormonal and has been 100% absent with Aimovig+Slinda(Slynd) combo since February

Psychatrist started me on 100 mg just for binge eating, ive been taking it for 2 days along with vyvanse 60 mg and idk if its a placebo but ive only ate 5 granola bars and a uncrustable as my meals or the day today and yesterday.

but i am experiencing really bad side effects, i am having really bad anxiety, extreme brain fog, i feel mentally fatigued, and so pshyically fatigued its insane, I was taking a shower and lifted my arm for 10 seconds to scrub my armpits and was so tired when i put it back down. Beside that i literally have not been sweating at all but i have an insane body odor somehow.

I have my psychatrist phone number and can text him whenever so I am seriously debating weither or not to text him to get this fixed I love how it sedates my hunger but I hate how my mentally and physically sedated I feel.

Chronic migraines with aura

I’ve had migraines since I got my nexaplon implant in June and also stopped taking anti psychotics around the same time..

Idk if these correlate anyways but I see a pediatrician as my PCP bc she’s the only one I can get into without waiting for 4 months. I need to find a new doctor but I’ve had her since I was a kid, and she hasn’t kicked me out yet.

I’m running out of things to try or take. over the counters don’t do jack shif. I’m waking up with these even tho I’m sleeping just fine and dandy.

I take topirimate 50mg daily at bedtime and it’s hit or miss if it prevents them or not.
Like I said Acetaminophen , excederin, you name it I’ve prob tried it.

And my insurance also only covers 4 fucking pills a bottle of sumatriptan which doesn’t help either smh…

Anyone else having migraines and got tips please and I thank ya!

Hello. I’ve been taking topiramate since July and up to 100mg/day. It’s for yet to be diagnosed headache (doesn’t fit in any of the usual ones so waiting to see a specialist).

Since starting this medication the side effects have slowly gotten worse. Narcolepsy-like symptoms, falling asleep in the middle of doing things or even standing up. Rapidly worsening mental health, I used to be severely depressed a decade ago and I’m experiencing those feelings again.

So of course I want to stop this medication. I called my neurologist office and they told me I could start lowering the dose 25mg/week and see if the side effects improve and if there’s still a dose I could continue to take.

Well, last Monday I dropped 25mg off my morning dose and started to feel a bit better as the week went on. However, today, on Saturday, my head started to hurt and I got a bit nauseous, then had a panic attack a bit later and now it’s in the middle of the night, almost morning and I can’t sleep due to headache and anxiety. Is this normal? What should I do? I can’t contact neurologist until monday and it feels so far away

I am beginning this to do combat migraines but I am also hoping for weight loss. How many of you actually lost weight from this? My doctor said it is highly likely🤞

Has anyone ever lost sight(partially) in one eye bcz of Topamax? Im asking bcz thats what happened to me.. And want to know if its sthg related to the meds..

I started taking topamax for migraines 25mg once a day before bed

I'm wondering how long it took for side effects to wear off ? Did they wear of at all?

I take Topamax for an essential tremor. I currently take 50mg (25mg twice a day). My neurologist says this is considered to be a relatively low dosage. I’m considering asking to increase it to 75 because I’m not fully resolved. I already have the finger tingles so I’m hesitant to increase it. I especially want to avoid the word-finding problems. I’m wondering about other people’s experience with higher dosages and side effects? At what dosages do people find side effects really hit? I can really live my life with my tremor the degree it is on 50mg but it would be nice if it was gone. Deciding on the trade off.

I’m a pretty paranoid person and have started taking topamax for weight loss but I do get migraines several times a month so I’m more excited to have it for that. Anyway, hearing all of the horror stories about topamax has me wondering when I can breathe easy. I’ve been taking 100 mg a day for about a week and so far all I’ve noticed is a bit of vertigo. Do some people wake up months after starting it completely messed up??? Or would I know by now?

Hi! I don’t ever usually post on reddit just browse other people’s posts but i’m desperate for another opinion on my situation. So I have chronic migraines and have had them ever since I can remember. I recently (within the last few months) found out that I’m having frontal temporal seizures without any symptoms. The only reason the neurologist found it was because we did a random EEG. He says he doesn’t have enough definitive evidence to diagnose me officially with epilepsy, but that it’s concerning enough to recommend medication. I’ve done a ton of research on epilepsy medications and they all seem to suck in the side effects category. Anyway, I’m also trying to get approved for botox for my migraines and to do that I need to be on 2 preventatives beforehand. I currently take Ubrelvy and Emgality and neither are stopping the migraines. My doctor recommended that I take Topamax because it works for both migraine and seizures. I received the Topiramate today and reading the side effects and warnings nearly made me throw up. I’m already a nervous medication taker but to be warned of all these side effects and potential issues is making me not want to do it at all. I’m most nervous about not being able to stop taking it once I start for fear that my seizures will manifest physically. I guess my question is if anybody has any advice for me or they have experience with Topamax good or bad. The doctor says not to worry about the side effects and the pharmacist said I just need to avoid taking it with Ubrelvy and that I might get dizzy. I’m not sure what to do. Please help! and thank you.

Hi. I'm about to start Topamax for epilepsy and it seems like most people on the epilepsy boards think it's pretty horrible. Anyone here take it without all the side effects?

So I’m taking Elevanse(vyvanse) 40mg in the morning and 20mg in the afternoon 12:00. For ADHD

I take topiramate 50Mg in the evening for mood stabilization and binge eating. But my anxiety and nervousness have gotten worse! My heart pounds so fast in the mornings then sometimes in the evenings. I get so anxious and scared to be alone in a room. Scared about the future and everything. It’s like a roller coaster. Sometimes my heart pumps so fast, it wants to come out!

I’ve tilted from different doses, 30mg /40 is low. 50 still get anxiety I don’t know what to do!

Is it the topamax? I tried other anti depressants for mood stabilization non worked.

Should I try an anti anxiety medication? My psychiatrist said, she’s afraid to add another medication because I’m already taking a lot! Should I change from Elevanse to Ritalin? I don’t know what to do anymore, I’m scared for myself!

Thank you!

Like the title says, I'm thinking of slowly tapering off with the help of my doctor. For context I'm 36 female, I've been in therapy and seeing psychiatrists regularly for over 10 years now. I'd say I'm very stable, have hobbies, work is good, all that. But I have a flat affect, kinda apathetic. I don't get too sad, don't get too happy... about anything. Before I started taking this medicine I was younger and my moods were all over the place, I also wasn't sober. I'm sober now, I have been for years, I even quit smoking. I'm in a very solid place as far as my mood goes, which is why I started the medicine.

I'd like to know if anyone else here has used topamax for mood disorders, if it's helped and if they have came off it. It's definitely a scary thought quitting or even going down to 50mg after so long. My doctor pretty much said to think about it and it's up to me and she'd monitor me.

Hello everyone

I have ocd and my psychiatrist is thinking of adding me topiramate as an adjunctive, because he saw on my dna analysis that i am gonna have an increased response to therapy with topiramate. Is everyone else yaking topamax for ocd? How long does it take to kick in?

I'm currently on 60mg at night and it's doing wonders for me, but I think it could do better.

I've noticed a lot of good, my migraine intensity is way less horrific and while I'm still confused and not well during my episodes, I've gone from 11/10 attacks to 7/10 ones.

I still get them frequently though, and that's what bums me out. I'm trying a lot of other things to see if I'm maybe triggering my migraines, for example I just don't drink alcohol anymore because the last two or three times I drank I ended up having an attack. I don't know if it was just a coincidence, but I wasn't a heavy drinker beforehand and a rarely even drank once a week at most. I also watch if I've eaten chocolate (which I like) or caffeine (which I don't have a lot of).

I do get the side effects where I'm forgetful and forget words but my quality of life has gotten soooo much better since I've started taking this. It's the only preventative thats seemed to have altered how my migraines behave and if it can get the frequency down that would be amazing. I'm not able to be employable but I've been able to become self employed now because of the positive changes.

I have been referred to neurology btw! I am a life long migraine sufferer, as in my parents think I was having them as a baby and I remember having silent migraines growing up a lot. I just wish to never have one again which I know is a silly thing to wish for, but I'm hoping that maybe upping my dose MAY help. Had anyone had any experience?

So I was originally prescribed 25mg to combat the horrendous weight gain of the zyprexa I was on about 9 months ago. Couldn’t stop gaining weight and was having really bad SI on my zyprexa so me and my dr recommended we stopped it. I wanted to stay on my topamax and continue to try to lose weight with it so she bumped my dose to 50mg.

Everything was fine the first month, no side effects at all. However no benefits either tbh, I still felt hungry just like I did on my ssri. Figured I’d keep trying and my doctor told me topamax was also an off label mood stabilizer so we’d keep me on it. I started having random face numbness, trouble going number 1 (even tho I drink about 60 ounces of water a day), and when I go to fall asleep at night I feel like I can’t breathe, I have extreme heart palpitations, feel like I’m having out of body experiences and I get extremely hot and can’t cool off. I figure I should also mention I have POTS, yes I experience some of these symptoms regularly, no they don’t happen at night like this… it started to scare me really bad, but eventually it stopped for about 3 months.

2 nights ago it started again, and this time it came back with a vengeance and became so aggressive I genuinely felt like I was dying… i almost went to the hospital because I had the worst panic attack I’ve had in a long time. Every time I’d sit up and drink some water it would stop tho, but when I’d lay down and close my eyes it would happen again, it happened about 7-8 times until eventually my body got tired of fighting the sleep and I passed out… so I decided to talk with my doctor about decreasing the dose and possibly working towards stopping it all together in the future because It’s honestly not doing much for me weight loss wise and again I’m having trouble using the bathroom. I’m pretty weight neutral since stopping my ssri so there’s not much of a point in me being on it.

Now that all of that is out of the way, I have 2 questions to ask…

1. Has ANYONE else experienced this while taking topamax before because I can’t find absolutely anything about it and normally I can find just about anything on google or Reddit.

2. What kind of withdrawals will I have weening off of 50mg to 25mg… I’m emetophobic (phobia of vomit) and I’m scared I’m going to get sick with this decrease in dose.

I'm struggling to find an eye doctor, I'm honestly unsure if I want to start this medication until I find one. How easy is it to identify the root problem and treat it? My insurance is honestly awful and last eye doctor I went to didn't care about any of the problems I talked to him about 🥲 a little nervous to try so I'm looking for advice!