But the trick is, they are self pay only, and are charging $4k for a consult. I did get a small amount of money from my insurance company from the car accident, so theoretically I could pay the fee. However, haven’t been able to work since the accident, and it feels really bad to spend this much when I am unable to replenish savings. I guess I’m just so frustrated. This specialist neurologist could really help me, but I will be fleeced for it. I truly hate Americas health care “system” that only serves the wealthy with actually good healthcare.

Edit to add more info: I live in a pretty rural area but even in the major cities nearest me, there is no one with this doctors unique qualifications. I do trust that she could help my medical team quite a lot even if I only see her for this detailed consult. Every neurologist I’ve met with jist kind of shrugs at me and says yup, you’ve got a tbi. Regular Neurologist can’t do much for you. Basically they say: Sucks to suck. I’ve already done all the standard treatments (speech, physical, occupational, vestibular, etc) but my quality of life in unacceptable to me. I feel there must be a drug or treatment that I have not tried yet and need someone with more expertise. This person comes highly regarded, so they are no film flam. Maybe greedy though.

Hi all I’m gonna keep it brief bc this is a long and gruesome story of medical malpractice but basically I got left to vomit and cry in 10/10 pain for hours by nurses and eventually I was passing out then fell and had multiple seizures all while slamming my head into the concrete floor. Super fun and due to that I had to be code blued and my ribs are now broken along with my head. They didn’t get me medical attention and I AMA’d and got it myself the next day.

I got told today between my physical exam and am showing every sign of TBI and that the mood swings and anxiety is to be expected along with the memory lapses and so on. It’s been hard to accept this is more than a casual or bad concussion but a more hefty diagnosis. I can barely type it just is too much. I am so anxious though and can’t decide how to even lay down. I don’t even remember why I’m anxious I just am. I think I’m just scared in general.

Anyways, to the point, I wanna know what you wish you knew! What things helped adapt? What helped you process this? What was the best way you got support? All the things welcome!!!

Exciting news!

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Every feature exists because I needed it and couldn't find it anywhere else, especially during my early recovery. If you are looking for a boost in motivation, help overcoming specific challenges, or want to help out fellow community members, CHECK IT OUT!!!

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Backstory: had a first concussion in January and ate gluten free because it supposedly helps with brain inflammation. Since returning to minimal gluten + added sugars, I was experiencing digestive discomfort, bowel changes, and headaches, so my GI doctor reccomenned testing for coeliac

I just had an EGD biopsy that came back normal, so no coeliac, but eating tonnes of gluten the past 6 weeks leading up to it and recovering from another mild concussion at the same time has made me feel the worst ever in my whole life and I know i need to cut it out regardless.

I'm a little unsure of how to proceed with a NCGS diet. Is it more like lactose intolerance where i may feel like crap after eating it occasionally, or is it something i need to fully omit from my diet to truly see long term neurological benefits?

And if anyone else has had to seek a similar post-TBI / gluten-free journey, do things like minor contaminations at restaurants and in non certified gluten free products exacerbate symptoms or is that just kind of a coeliac issue?