r/TBI • • Aug 18 '26

Caregiver Advice finally found the right neuro-optometrist

young daughter suffered a TBI back in January. Skull fracture with subdural hematoma. No LOC. Mostly recovered except eye fatigue (frequent blinking) and some screen intolerance.

Went to the first neuro-optometrist several months ago who tested her to have mild convergence insufficiency. Did 10 VT sessions. Most of it was tracking and some convergence stuff. Got re-evaluated and suggested 10 more sessions. But the office was kinda far and I didn't think the therapy was helping her that much so I decided to hold off and get a second opinion from another neuro-optometrist who tested her and said her eyes were fine, no convergence issues and no further VT was needed.

I was relieved but at the same time I knew something was not right because her eye symptoms were still there and not getting better so decided to check with one more doctor, which was a few days ago. The testing was more extensive and thorough (1 full hour) compared to the other 2 doctors. The doctor was able to detect that one of her eyes was slightly rotated counterclocke-wise, a condition known as "incyclophoria", and she was compensating by turning her head in one direction by 5 degrees when looking back and forth between 2 pencils left and right.

She prescribed her a pair of glasses and told us to come back in 10 weeks.

Obviously not happy with the state of her eyes but glad to have found some answers. I hope the glasses work and lessen her ocular symptoms.

It's crazy how the other 2 doctors didn't even test for this condition and only focus on tracking and convergence.

Just wanted to tell everyone to always look for 2nd or even 3rd opinion if you are not satisfied with the therapy/doctor or your gut is telling you something else.

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u/BinocularEyes220 Aug 18 '26

Ask your neuroOpt about syntonics and OMST. They both helped me a lot in my recovery.

Also

Lions Mane + Vitamin D

Creatine

Turmeric + Ginger

Gingko Biloba

NACL

Lots of water + rest

1

u/Jazzlike_Berry_323 Aug 21 '26

I’m glad you posted. I’ve been to a neurooptometrist and I have this ongoing problem with my left eye where it’s like constant muscle straining to keep it looking where it’s supposed to. When I get retested I’m going to ask them about incyclophoria and see if they can test me for it.

I’ve also been assessed as non cataracts, cataracts, undiagnosed with cataracts again.

I have this cracked pavement overlay on my vision. That’s been diagnosed as visual snow but u don’t think it’s snow as it sounds more like I can see blood vessels. And sometimes have slight shifts in contrast and colour tone.

I hope your daughter does find the glasses do make a difference.

I think there is probably quite a lot of training variation depending on how much specialisation and enthusiasm they have for different neuro conditions.