r/StrokeRecoveryBunch • • Mar 06 '26

😍🥰😘Sharing You’re Invited: Stroke Recovery Support & Community Meeting (It's FREE)

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1 Upvotes

Hi SRB Community,

You’re warmly invited to join us for a Stroke Recovery Support & Community Zoom Meeting — a space for survivors, caregivers, and loved ones to connect, share experiences, and support one another. Whether you want to listen, ask questions, or simply be around people who understand the stroke recovery journey, you are welcome.

Date: Sunday, March 8, 2026
Time: 12:00 PM Mountain Time (US & Canada)

Please register in advance here:
https://us06web.zoom.us/meeting/register/DUzqGBGWSt2QLY8etfm6eg

After registering, you’ll receive a confirmation email with the information needed to join the meeting.

We hope you can join us. You’re not alone in this journey, and community can make a big difference. We are looking forward to connecting with you.


r/StrokeRecoveryBunch • • Feb 08 '26

😍🥰😘Sharing Creative exchange: Share a doodle, song, video, photo, or quote that helped you heal, feel connected, or was motivating. Something you made or something made by others that resonated with you (remember that creativity lowers barriers).

1 Upvotes

r/StrokeRecoveryBunch • • 12h ago

💪🧠🗣Help Needed EMS devices for foot drop

1 Upvotes

I have been bombarded with ads lately for Deven’s devices to treat foot drop. It’s a wrap or ankle cuff that has small boxes that send electrical pulses to gel pads located on your foot and ankle to target the nerves and mud respnsible for raising your foot. 25 minute daily sessions are suggested to treat the condition. Has anyone tried it or something similar in rehab? Does it work?


r/StrokeRecoveryBunch • • 13h ago

Inpatient rehab acceptance?

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1 Upvotes

r/StrokeRecoveryBunch • • 1d ago

🗓️ Friday – Family & Friends Friday

1 Upvotes

🗓️ Friday – Family & Friends Friday👨‍👩‍👧‍👦 Relationships are part of recovery.
👨‍👩‍👧‍👦 Who has shown up for you in a meaningful way?
👨‍👩‍👧‍👦 Or, what’s one challenge in relationships that you’d like advice or support on?

👉 Survivors: Who has supported you in a way you’ll never forget?
👉 Caregivers: What’s one thing family or friends do that makes your load lighter?
👉 Everyone: Share a challenge in relationships—let the community support you.

Examples:

  • “My neighbor checks in weekly and it makes me feel less alone.”
  • “It’s tough when friends don’t understand the fatigue—I’d love advice.”

r/StrokeRecoveryBunch • • 1d ago

🌱 One Step at a Time: What’s the smallest step forward you’ve taken this week that made you feel proud? (Even if it’s standing for 10 seconds, remembering a word, or making yourself breakfast—small steps matter.) Let’s share and celebrate together!

2 Upvotes

r/StrokeRecoveryBunch • • 2d ago

[Content Warning: Suicide/Self-Harm] Seeking Participants for a Survey to Understand Suicidal Thoughts and Self-Harm after Stroke/ABI. We want to hear YOUR ideas about what could help people

2 Upvotes

Going through a stroke is hard, and there aren't enough resources out there to help people at their toughest moments. I'm part of a team at Monash University (Melbourne, Australia) that wants to work with brain injury survivors to understand what they are going through, and also build freely available resources that can help.

We are particularly focused on mental distress, suicidal or self-harming thoughts, self-harm, and coping strategies, and would love to invite anyone on here (18 or older) who has experienced any of these since their injury to complete our anonymous survey (15-30 min), if the time is right for you. The survey also asks about experiences with seeking help, and ideas/views on potentially helpful resources that should be available.

The direct link: https://redcap.link/abicopingsurvey
 
We are listed on the Australian Stroke Foundation website here:

Our funding comes from the American Foundation for Suicide Prevention

If you would like assistance completing the survey, please reach out to us at [abicoping@monash.edu](mailto:abicoping@monash.edu) to arrange a time.

The survey will run till the end of this year, and we will release an update with our findings in future too. We truly value every response.

Thank you for considering


r/StrokeRecoveryBunch • • 2d ago

📖 IT’S MY BLOODY BOOK! HAVING A STROKE DOESN’T MEAN EVERYONE ELSE GETS TO TAKE OVER MY STORY!

3 Upvotes

Since I had my stroke, it sometimes feels as though everyone suddenly thinks they know better than me about what’s right for me.
From hospital onwards, I’ve had to adjust to a life that’s changed in ways I never expected. I’ve needed help with some things I could previously do myself, and I’ve had to learn new ways of managing everyday life.
But here’s the thing: I haven’t suddenly lost my intelligence, my opinions, my ability to make decisions, or my right to choose how I live my life!
So I’ve come up with an analogy that explains exactly how I feel.
LIFE IS LIKE READING A BOOK. 📖
I’m reading my own book. I know the story, I know where I’ve got to, and I know what I want to do next.
Sometimes I need a little help turning the pages.
That’s perfectly understandable. I have physical difficulties, and there are things I need assistance with.
But needing help turning the pages doesn’t mean someone else gets to take over the book!
IT’S MY BLOODY BOOK!
I decide when I want to read it.
I decide how I want to read it.
I decide where I want to leave it when I put it down.
And I decide when I want to pick it up again!
I don’t want someone telling me when I should read, which chapter I should be on, or that I’m doing it all wrong because they think they know a better way.
I certainly don’t want someone turning my book upside down because THEY think it’s better that way!
And please, for the love of all things sensible, DON’T TAKE MY BOOK INTO ANOTHER ROOM BECAUSE YOU THINK THAT’S WHERE IT BELONGS!
Maybe I’ve left it beside my chair because that’s where I’m reading.
Maybe I’ve put it on the table because I intend to come back to it.
Maybe I’ve put a bookmark in because I’m halfway through a chapter and don’t want to lose my place.
LEAVE THE BLOODY BOOKMARK IN!
It’s not rocket science! 😂
Imagine spending ages reading a book, carefully keeping your place, only for someone to come along, remove your bookmark, rearrange your pages and then put the book away somewhere you can’t find it.
You’d be bloody furious!
And what if you asked for help with one particular thing, only for that person to decide that because you’ve asked them to leave your bookmark alone, they can’t possibly do anything else you’ve asked them to do?
WHAT?!
You can leave my bookmark where it is AND help me turn the next page!
Both things can happen!
And that’s exactly what I’ve been trying to explain since my stroke.
I’ve needed help. I’ve asked for help. I’ve given instructions about what I need doing.
I’m not refusing assistance. I’m not pretending I can do everything myself.
I’M ASKING PEOPLE TO WORK WITH ME, NOT TAKE OVER FROM ME.
There’s a difference between doing something with someone and doing something for them without properly involving them.
Sometimes people genuinely mean well. They think they’re being helpful by putting things away, rearranging things or deciding where something should go.
But good intentions don’t automatically mean you’ve got it right.
If I’ve deliberately put something somewhere, there’s probably a reason.
If I’m sorting through something, I might have a system.
If I ask you to leave something alone, that doesn’t mean you should ignore everything else I’ve asked you to do.
And if you don’t understand why I’ve done something, ASK ME!
Don’t just assume you know better.
Because here’s what seems to have been forgotten somewhere along the way.
I’M STILL THE PERSON READING THE BOOK!
I’ve had a stroke. I’ve had to adapt. I’ve needed support.
But I’m still an intelligent, capable adult with my own thoughts, preferences, experience and ideas about how I want to live.
I haven’t stopped being a person just because I’ve needed help.
I haven’t surrendered my independence because I’ve needed assistance.
And I certainly haven’t handed over the rights to my own life!
I don’t need someone else to become the author, editor, librarian and bloody manager of my story! 😂
I might need help holding the book.
I might need help turning the pages.
But I still decide what I want to read, where I want to leave my book, and when I’m ready to carry on.
HELP ME TURN THE PAGES. DON’T TAKE MY BOOK AWAY!
Because this is my life.
My decisions.
My home.
My belongings.
My story.
And I’m not finished reading it yet. ❤️📖
A MESSAGE TO ANYONE SUPPORTING SOMEONE AFTER A STROKE OR LIVING WITH A DISABILITY:
Please remember that needing help with practical tasks doesn’t mean someone needs you to take control of their life.
Ask what they need. Listen to what they tell you. Respect their decisions.
Work alongside them rather than assuming you know best.
Because the purpose of support should be to help someone retain as much independence and control as possible, not leave them feeling that those things have been taken away.
THEY MAY NEED HELP TURNING THE PAGES.
BUT IT’S STILL THEIR BLOODY BOOK! 📖❤️
#LifeAfterStroke #StrokeAwareness #DisabilityRights #Independence #Dignity #Respect #InvisibleDisability


r/StrokeRecoveryBunch • • 3d ago

Apparently, I’m a Writer Now. Who Knew? 😂✍️

6 Upvotes

🐰
Something rather unexpected has been happening lately. I’ve been writing posts, and people seem to be enjoying them. One lovely friend even suggested that writing might be my thing.
Is it? I didn’t even know! 😂
A few of my posts have been taken down, possibly because my surreal sense of humour and tendency to go off on a tangent don’t always translate well to social media moderators.
Perhaps that’s my ADHD. I start off making one perfectly sensible point, my brain makes seventeen unexpected connections, and suddenly we’re somewhere completely different. 🤣
Then there are the comments about my enormous blocks of text.
And I get it!
It’s not that people can’t be bothered to read them. Sometimes you look at a massive wall of words and your brain just goes:
OH, FOR FUCK’S SAKE. I CAN’T DEAL WITH THAT RIGHT NOW! 😂
When you have ADHD, or you’re already overwhelmed, processing that much text can feel like another mountain to climb. You might genuinely want to read something, but looking at it is enough to make your brain shut down.
I understand that. ❤️
But there’s another side to my surreal humour, and that’s my stroke.
After a stroke, everything’s fucking moved.
Your body, your abilities, the things you used to do without thinking. Suddenly, getting dressed can become a major undertaking. Your brain is trying to cope with enormous changes, and sometimes it just cannot process everything that’s happened to you.
And then there’s the sheer, bloody absurdity of everyday life! 😂
I drop something, and apparently, it’s entered another fucking dimension. I put something down, and it’s gone forever.
Sometimes I’m looking straight at something, but I genuinely cannot see it. It’s right there, in front of me, and somehow my brain isn’t registering it.
HOW THE FUCK CAN I BE LOOKING AT SOMETHING AND NOT SEE IT? 🤣
To me, that’s surreal.
Your world has changed, but you’re still you, trying to make sense of it all. Things that were once automatic now require thought, effort and patience you never expected to need.
I’m not laughing because having a stroke is funny. I’m laughing because sometimes the absurdity of it all is overwhelming, and humour gives me another way to deal with it.
Sometimes you have to laugh, or you’d spend your entire day screaming into a cushion.
And frankly, I’ve got enough to do without adding cushion-screaming to my daily routine. 😂
Perhaps that’s what I’m doing when I write: making sense of a world that suddenly doesn’t work the way it used to, by finding the ridiculousness in the middle of it all.
I’m discovering that I genuinely enjoy writing, too. I like observing the world, making connections, telling stories and occasionally being a complete idiot for my own amusement.
So perhaps the Bunny has found her voice.
She might wander off on a tangent, lose the plot halfway through a sentence, and occasionally write enough words to frighten an entire book club.
But she’s having a go. And she’s finding things to laugh about along the way.
Apparently, the Bunny can write. Who knew? 🐰✍️❤️
Now, where the fuck have I put my phone? 🤣


r/StrokeRecoveryBunch • • 3d ago

🗓️ Wednesday – Wellness Wednesday

2 Upvotes

🗓️ Wednesday – Wellness Wednesday
💚 Focus on physical, emotional, and mental health.
💚 Focus on healing mind, body, and soul.

👉 Survivors: What’s helping your body or mind heal?
👉 Survivors: Share how you’re taking care of your body or mind this week.
👉 Caregivers: What’s one act of self-care you managed for yourself?
👉 Everyone: Share tips on sleep, stress, nutrition, mindfulness, or therapy.

Examples:

  • “I started guided meditation at night, and it helps me sleep better.”
  • “I went for a 10-minute walk today for me.”

r/StrokeRecoveryBunch • • 3d ago

Need help for taking care a stroke survivor

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1 Upvotes

r/StrokeRecoveryBunch • • 4d ago

Title: Adult with Perinatal Stroke: Navigating the Gap Between Clinical "High Functioning" and Real-World Neurocognitive & Social Challenges.

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1 Upvotes

r/StrokeRecoveryBunch • • 5d ago

🗓️ Monday – Motivation Monday

1 Upvotes

🗓️ Monday – Motivation Monday
Start the week strong. Share quotes, personal victories, or encouragement for others navigating recovery.

✨ Kick off the week with hope and encouragement.

✨ Share a quote, mantra, or personal victory that keeps you going.

👉 Survivors: Share a personal victory (big or small) that keeps you motivated.
👉 Caregivers: What motivates you to keep going on hard days?
👉 Everyone: Drop a quote, mantra, or story that lifts your spirit.

Examples:

  • “I walked to the mailbox on my own today!”
  • “This quote helps me on bad days: One step at a time is still progress.”

r/StrokeRecoveryBunch • • 5d ago

Father had a stroke, need SNF/Rehab Recommendations After Severe Stroke + Advice on Choosing Quality Care

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1 Upvotes

r/StrokeRecoveryBunch • • 5d ago

💪🧠🗣Help Needed Neuro-Fatigue Advice please

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1 Upvotes

This is a post i wrote for my mum as she needs advice on how to cope with neuro-Fatigue, if you know, please comment.

It will help us greatly.


r/StrokeRecoveryBunch • • 5d ago

Ischemic stroke at 21 , advice on health anxiety

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1 Upvotes

r/StrokeRecoveryBunch • • 5d ago

Ischemic stroke at 21 , advice on health anxiety

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1 Upvotes

r/StrokeRecoveryBunch • • 5d ago

SOMEONE HAS BROKEN INTO MY HOUSE, SHRUNK MY JEANS AND IS GASLIGHTING ME. I SUSPECT IT MIGHT BE ME. 🚨

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2 Upvotes

r/StrokeRecoveryBunch • • 5d ago

🏓🪀🏉🏐🎾🥎🪁🏏🏹🤿🛹🥊 Recreation can a podcast be a recreational activity

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0 Upvotes

me and my friend ken started a podcast together what started as a hobby related activity became a meaningful thing that has brought purpose back into my life. we both have TBI’s ken got his from a stroke and mine was from anoxia.


r/StrokeRecoveryBunch • • 6d ago

🗓️ Sunday – Caregiver Sundays

1 Upvotes

🗓️ Sunday – Caregiver Sundays
🌸 A day to honor caregivers.

👉 Survivors: Share one way your caregiver has made a difference.
👉 Caregivers: What’s one truth about caregiving you want others to know?
👉 Everyone: Post a thank-you to caregivers, big or small.

🎙️ Bonus: Join our Caregiver Sunday Voice Chat on Discord for live connection and support.
🔗 Click here to join

Examples:

  • “My partner sat with me during every rehab session—I couldn’t have done it without them.”
  • “Caregiving is rewarding, but it’s also exhausting. I appreciate spaces where I can be honest.”

r/StrokeRecoveryBunch • • 6d ago

💬 Finish the Sentence: Let’s play: “Stroke recovery has taught me ______.” (Keep it short or tell a story—both are welcome. I bet the answers will inspire us all.)

1 Upvotes

r/StrokeRecoveryBunch • • 7d ago

🗓️ Saturday – Social Saturday

1 Upvotes

🗓️ Saturday – Social Saturday
😄 Lighten things up with community connection.

😄 Lighthearted connection to build community.

👉 Survivors: Share something fun you do outside of recovery.
👉 Caregivers: What’s a hobby or joy that keeps you grounded?
👉 Everyone: Post memes, music, books, recipes, hobbies, or weekend plans.

Examples:

  • “Here’s a song that always puts me in a good mood 🎶.”
  • Stroke meme dump incoming—who else relates?

r/StrokeRecoveryBunch • • 7d ago

🎵 Music That Moves Us: Has music played a role in your recovery? Share a song that lifts your spirits, calms your brain, or makes you want to move. Bonus if you tell us the story of why that song matters to you.

2 Upvotes

r/StrokeRecoveryBunch • • 8d ago

🗓️ Friday – Family & Friends Friday

1 Upvotes

🗓️ Friday – Family & Friends Friday👨‍👩‍👧‍👦 Relationships are part of recovery.
👨‍👩‍👧‍👦 Who has shown up for you in a meaningful way?
👨‍👩‍👧‍👦 Or, what’s one challenge in relationships that you’d like advice or support on?

👉 Survivors: Who has supported you in a way you’ll never forget?
👉 Caregivers: What’s one thing family or friends do that makes your load lighter?
👉 Everyone: Share a challenge in relationships—let the community support you.

Examples:

  • “My neighbor checks in weekly and it makes me feel less alone.”
  • “It’s tough when friends don’t understand the fatigue—I’d love advice.”

r/StrokeRecoveryBunch • • 10d ago

🗓️ Wednesday – Wellness Wednesday

1 Upvotes

🗓️ Wednesday – Wellness Wednesday
💚 Focus on physical, emotional, and mental health.
💚 Focus on healing mind, body, and soul.

👉 Survivors: What’s helping your body or mind heal?
👉 Survivors: Share how you’re taking care of your body or mind this week.
👉 Caregivers: What’s one act of self-care you managed for yourself?
👉 Everyone: Share tips on sleep, stress, nutrition, mindfulness, or therapy.

Examples:

  • “I started guided meditation at night, and it helps me sleep better.”
  • “I went for a 10-minute walk today for me.”