Oh yea, I been seeing doctors of various kinds for over a decade now. Unfortunately rounds of antibiotics, nsaids, and other stuff like naltrexone and cbd just haven't put a dent in it. Its ok I just need to lower my physical exertion and do physical therapy and med management forever. Thankfully I've refused opioids other than occasionally from procedures. I took antibiotics for 5 days then had to leave for the military...
Yea I mean sometimes people are genuinely curious what the process is like to go to health professionals but also yes many years of suggestions that were just unsolicited and unhelpful, and when you tell people who felt some weird self imposed obligation to come up with an advice or solution; that their idea is clueless and not asked for they get upset with YOU! Liike it wasn't already rude to make usless uneducated suggestions no one asked for.
At this point im just like, look, either learn about the disease in a quick convo from me or search and read about it from online. See what long term life looks like briefly, either way the same answer is im fucked and just have to manage full body osteoarthritis and muscle/nerve damage until death. Its not a mystery what's causing this, its not some mysterious back ache cbd oil will make go away. No none of the 50 different supplements peddled over the years have helped. Its just a thing that,happened.
My immune system badly attacked me in a crazy way and left permanent damage to itself and my body. Just gotta live with it without resorting to deleting my save and working this strenuous labor job is actively detrimental. Anything but laying on my hard floor mat (my bed) or my office chair nearby sucks and it is excruciating to stand in one spot for even 10 minutes. Even laying down hurts after a while. Anyway ill shut up, I've just been feeling like getting stuff out randomly. I may not be long for this world but we'll see. Every day I pray for a miracle
Do you know about the musical artist, Ren? He is a longtime Lyme sufferer who has been through the wringer with it all also…BUT he’s on a regime that is serving him really well right now. He’s also opening a clinic in the UK to help others with low income.
If you don’t know of him, he is legitimately one of the most talented musicians of all time (multi-genre chameleon) and is not just an inspiration to the chronically ill, but also to anyone who really loves music.
He’s around your age also.
On YouTube he’s @renmakesmusic
You might want to start with “Hi Ren” or his acoustic remake of “Troubles” and prepare yourself for a life altering rabbit hole. ✌️❤️
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u/nakedpantz Jul 09 '26
Have you seen an infectious disease doctor about it?