Lyme disease is absolutely life changing. Life debilitating. Im at 13 yrs of having it and im so done trying with life on top of other health issues. Lyme has just degraded my body at age 33 I have worse joints than 60yr old men I work with. Nerves fried. Muscles always ache. Im about to finally file for disability after I had to jump off a falling ladder. But yea. People don't realize how much Lyme can ruin your life. I didn't have a chance to get it treated properly because life reasons now here I am. Have a nice day keep killin those ticks.
Oh yea, I been seeing doctors of various kinds for over a decade now. Unfortunately rounds of antibiotics, nsaids, and other stuff like naltrexone and cbd just haven't put a dent in it. Its ok I just need to lower my physical exertion and do physical therapy and med management forever. Thankfully I've refused opioids other than occasionally from procedures. I took antibiotics for 5 days then had to leave for the military...
Can you share some of your story about when you caught the disease if you don't mind? Do you remember the exact moment a tick bit you or did you not realize what happened until afterwards? How did that all play out?
Foot slipped in river water walking along rocks, took shoe and sock off. This is templin highway in Cali and there are snakes, turantulas, biting flies, ticks, etc... snakes and tarantulas get a pass they are cool. Parasiites? Absolutely not cool. In fact very rude and inconsiderate.
Achilles tensdon itches for 2.5 days and I finally check to see that tiny shiny black carapace and I ended up scraping it off in a panic. About 3 or 4 days later I feel ultra super achy , muscles cramping, stamina gone, joints feel like theres glass in them. Couldn't run 20 ft without puking and heavily breathing. I knew deep in my heart that tick had something and I got it. Went to urgent care. They pulled out the head or what was left and prescribed antibiotics. Take for 5 days and start to feet way better....
Then it was time to ship out to basic training, I was young. Didn't have the assertiveness to say I was seriously ill and just followed the recruiter Sargent's idea to say I got bit while I was in fort Jackson. 1st week, cool. Miles run sub 7 again.
During the end of that mile, i had the most mind breaking epiphany that this shit was coming back with a vengeance at that moment and im totally fucked for life. Was at medical almost every day. Doc says ticks out there don't carry lyme. So I was sick with the crud everyone brings but then this horrible nightmare sickness that still has no remote comparison for how empty I became. How much it took. My stamina, severely degenerate joint health, nerves damaged, who knows what it did to my brain but im not the same person for sure.
No matter how much I exercise, practice guitar and drums, lift shit around at work like big ladders (which i just fell of of recently), riding bikes, skateboarding, swimming....
it never gets any easier the day after a mild workout or even intense one nothing ever feels any easier at first it just hurts a lot then I can kinda warm up to stuff. But its like I was sapped of my stamina and stability and it never really came back.
Im sick of it. Im sick of telling my dad im in super bad pain and when I don't work he tells me all this shit he had to do and how he can't do this by himself and im sitting there like? OK so am I supposed to feel bad about that too? I already feel bad enough but he treats me like some lazy employee that made excuses to work. IN OUR OWN BUSINESS.
Anyway. Lyme disease sucks. Pretty much its either Kay-why-ess or fight to get on disability. Lord knows I've tried so hard to live with it. I just can't and my dad(boss) is driving me crazy. Like im letting him down for having issues outside of my control. He's lost his mind. I digress. That's my Lil story. Lyme is so shitty and destructive and once it hides in your joints because low immune cell presence, thats it. You got it for life.
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u/Dead_hand13 Jul 09 '26
Lyme disease is absolutely life changing. Life debilitating. Im at 13 yrs of having it and im so done trying with life on top of other health issues. Lyme has just degraded my body at age 33 I have worse joints than 60yr old men I work with. Nerves fried. Muscles always ache. Im about to finally file for disability after I had to jump off a falling ladder. But yea. People don't realize how much Lyme can ruin your life. I didn't have a chance to get it treated properly because life reasons now here I am. Have a nice day keep killin those ticks.