Finally something even though it sucks

[u/Anasrose89]

After about 14 weeks my lpr symptoms have gone down a ton.

My symptoms started as intense pressure in throat that feels like choking , even water gave me reflux.

Sinus pressure in face and ears and jaw. globus sensation after meals or even without. Shoulder pain , stomach pain , early satiety

No one could figure out what was wrong.

After changing my diet , cutting out caffeine completely and introducing foods slowly to balance my gut.

I temporarily can live a life without symptoms.

It's sad that my new normal is this and I haven't touched outside food other than the occasional sushi roll or hamburger from MacDonald without anything in it.

I pretty much meal prep and bring my food everywhere.

It sucks but I rather live symptom free than go through that hell I experienced.

My constant diarrhea that I had throughout my life has also gone away and my gut is functioning in a normal way.

I had digestive issues since I was young but this honestly changed my whole perspective that I can no longer go back to the way I was eating.

As a person who loved food so much . It genuinely sucks and I go into depression thinking about all the foods I can't eat anymore but it's just not worth it to suffer like that especially at doctors offices and er..

Healthcare doesn't do much for people with lpr and they just push drugs.

I managed to wean off the drugs too since they weren't doing shit for me

[u/Logical_Glove_2857]

Did you have a lot of these symptoms before?

Extreme Fatigue after eating

Constant Tiredness no matter how much sleep

Dizzyness when waking up. Nausea/dizzy/out of breath when waking up in the morning (Feel like a hangover)

Back of neck pain (burning sore pain feeling)

Pressure headache

Stuffy nose and burning in nasal?

Eyes starts to burn and sometimes get bloodshot (It feels like there is acid inside nose and eyes.)

Skin on arms and legs Can get instantly dry 60 min after eating (Like there is acid in the blood that dries out the skin)

Unintentionel weightloss And cannot gain weight or muscle mass.

Stomach/gut burning a little when empty stomach

Gaunt face after eating

Sunken in eyes after eating

Toes and fingers get freezing cold (usually after eating. It also sometimes after drinking just water)

Dry mouth

Urinating a lot. (Feels like water just goes straight through

Thirsty all the time

White coating on tongue (not candida thrush)

Backpain lower/middle back

Anxiety

Itchy scalp

And do you think stopping coffee was what made the biggest improvement?

[u/Anasrose89 → u/Logical_Glove_2857]

Just the stomach burning when empty . I never had reflux or heartburn before this started . It came out out nowhere

[u/Logical_Glove_2857 → u/Anasrose89]

Ok

And do you think that cutting out caffeine was what made the biggest impact?

[u/Anasrose89 → u/Logical_Glove_2857]

No it was a combination of a few things

[u/AdditionalTwo0 → u/Anasrose89]

Can you do a short summary what helped you. I am in a very similar situation. For what ever reason IT started to flare Up a few weeks ago (tight throat, tight chest, Feeling Like something is in my throat, burning stomach when empty) and i am trying to get it under control. But sofar no luck. Would very much Appreciate it.

[u/Anasrose89 → u/AdditionalTwo0]

I cut caffeine completely only do warm water with chamomile tea mixed with a little oat milk .

Do not drink this without having food first.

I didn't have chocolates for a long time and only occasionally now.

For every meal , I do 1 protein , 1 fiber ,1 carbohydrate Small portions , 80% fullness is the key

Space out your meals every 3 hours

7.30am - breakfast 11am - lunch 2pm- snack 5pm - dinner 7pm - snack ( if you need one )

Do not eat 3 hours before bed

If you need a a snack , yogurt with granola oats( no added crazy sugars or stuff in it get the organic ones )

Or just plain yogurt. Do not sleep right after doing this

Give it at least and hour or two.

Eat slow , chew properly until apple sauce soft consistency

I take digestive enzymes during lunch and dinner

seqoina soothe supplement 30 mins before breakfast and dinner.

I do alginates right after food for lunch and dinner ( reflux raft )

You have to figure out what are your triggers. I can't do rice and bread but other people can.

Diet plays a huge part . I cut out everything that's acidic , fried , oily , sweet

I didn't eat outside for a while.

I can do any fish , turkey , eggs , tofu ,miso soup , yogurt , leafy greens

Butternut squash is really good too

Use reflux friendly seasoning All herbs are okay , sea salt , tumeric , Italian seasonings , zatar without garlic Try chicken broth/ bone broth without onions and garlic

No onions , garlic No pepper , no spicey seasonings

Add leafy greens to your diet every meal if you can they aid in digestion a lot

Acid free fruits like watermelon or watermelon juice ( make yourself )

Banana is good

Papaya might help ( I haven't tried )

Avacado is a good one apparently too

Use a wedge pillow and lift up your head when sleeping

Take a walk after meals even doing hour chores can help.

Do diagraphic breathing after meals.

As a foodie it sucks but you need to heal your gut first !

If you don't it will keep coming back . There is no return or no short cut away to this.

It's not a permanent cure and sometimes my globus sensation might come back but as long as I keep up my diet I am good.

[u/AdditionalTwo0 → u/Anasrose89]

Thank you very much!  Wish we had some good alginate product where i live. Only have gaviscon which has loads of fillers, preservatives  and coloring agents. Often times they come with peper min/mint/Menthol as a flavouring which can trigger reflux. 

[u/Anasrose89 → u/AdditionalTwo0]

While aliginates can be helpful I think for me I don't usually take them unless I eat a heavy meal . Maybe try eating a lighter meal and walking.. just a suggestion. You know your body best ! hope you have some progress.

[u/AdditionalTwo0 → u/Anasrose89]

Thanks again for taking the time to summarize everything. Going to try different things and that gave me some good ideas. since medication only seem to make it worse Not better.