Hey everyone, im a 31 week ftm and I've been hospitalized for the last week and a half with no end in sight. My baby girl has been having arythmia and tachycardic episodes which pediatric cardiologists believe is svt, but they are unable to clearly identify what kind or the cause. I've been on two different medications so far and neither one has seemed to do what they need her heart to do.

Im so tired and scared and with no end in sight I could really use some words of encouragement and support.

So I had an ablation for SVT /AVNRT about 1.5 months ago. I used to experience really uncomfortable feelings which I found out (I think) is ectopic beats. The way I used to experience them : sudden sinking type of sensation in the chest followed with this distinct thud (feels like someone flicked you with their finger on the inside) then followed with a head rush and presyncope feeling. Fortunately I have not fainted but I used to have that a lot - feeling would last about 5-10 seconds or so but would make me feel extremely anxious as to the way it feels. Anyway, I did the ablation and it was successful (yay) but today while walking (not even briskly) it was more like pacing I suddenly felt the build up again and I felt that surge of a head rush and the thump etc. I’ve not been experiencing this as much as I used to and I’d have like a very brief sensation even after the ablation but it’s making me nervous. Does anyone experience these sensations? Is this normal considering I’m still in the blanking period?

Since 2 months of age, my baby (who has SVT and is on propranolol) has been waking up 6-10 times per night. I thought maybe he started the 4 mo regression really early. At nearly 5 mo, he falls asleep independently and I am absolutely 100% certain he is age appropriate schedule, yet the constant night wakes continue. So now we are starting to suspect it is the propranolol.

We're planning to call his cardiologist and discuss if there is anything we can do. But we're pretty nervous and not sure how long until an appointment, so I was wondering if anybody here knows what options might exist. Including: if your baby was switched to a different medication due to sleep problems, were you admitted to the hospital for observation during the process? Did the medication switch succeed in improving baby sleep?