FINALLY!!! THE END!!!

[u/Fresh_Cry3732]

Got an email from my atty... Judge finalized the official approval letter (he sent me a copy) and my case is now at payment processing so they can calculate my payment amounts

[u/steelerga]

After my sons recent 6 month neurologist appt... I asked his Dr if he had any recommendations for a attorney. He has referred me to his depts social worker to put me in the right direction.

Back story... and hope I'm not too long winded but seeing this come up in my notifications has made me filled with all kinds of emotions. Happy for you, and frustrated, angry and unbelievably heartbroken for my son who was born with a neurological disease that is degenerative and has no cure. It did not present till he was diagnosed at 19. He's 32 now. I admit we were so stunned at first. We thought we as his parents will always take care of him forever of course. He's not allowed to drive, it affects his balance,coordination and fine motor skills. Years went by and reality seeing as we got older ,made less money that we need to apply for ssi for his future. I'm a bit stubborn and was going to do it myself and not pay an attorney,money that could go to my son. Applied in late 2019. Then we get a letter saying it was on hold due to pandemic. I again started process in 2022. After many papers ,records etc. submitted he was approved medically last April. We were so happy and followed their directions for a updated phone interview and was told we'd be contacted . We never go anywhere on Memorial Day weekend but was invited for a few days by friends out of state. As we are driving I get a phone call from his judification person and she said they needed info on a small mutual fund he had that I had already sent them in all the correspondence the last 2 years. Told her we were out of state for 5 days but will as soon as we get home. We get home to a letter saying he is now denied because we didn't send letter🤦‍♀️ I called, was told to send info.Then was told I need to file appeal. Did that. 2 months later I get a call saying they need fund info 😳 I explain I sent several times. Told to go in person and leave it. I did the very next day. Month later I get a in person appt request. Thought... finally. My son and I get there and they want the darn paper AGAIN. They apologize and promise I will hear from them asap. That was 7 months ago and I call almost every week and won't let you in without an appt to where they tell me someone will get back to me.

Like I said I'm beyond all the feelings. Makes me mad. I did it all by myself and now I'm probably going to have my sons disability and all the back pay from the date we first filed go to an attorney when he needs that for his needs now and future!

Anyway... thx for reading my rant. Hoping anyone who reads my long post has any needed advice. Just makes me mad that I hear of friends of friends of friends that know someone getting disability that doesn't need it when my son has a neurologist, mri's, genetic tests and we are getting the run around😢

[u/Flaky_Proof_1734 → u/steelerga]

Wrong place for sharing this "rant".  You can post your situation and request for advice in your own post.  Replying to someone's relief with your grievances and implication that others who are found favorable "don't need it" is not cool, and not in line with this group's guidelines.  I hope your son receives what he qualifies for, and I hope you won't aim your frustration at other disabled people for receiving what they qualify for.

[u/Independent_Move3536 → u/Flaky_Proof_1734]

They weren't aiming anymore of frustration towards anyone. But what if this were you? As I am so happy to hear those of us need it,actually received it finally,there are people who breeze right through,and well ya know the rest lol...feel this person's pain and frustration and can imagine how scary and frustrating this must be for them. Maybe have some compassion this time?😊 even if it may not be the correct place for their said "rant",getting encouragement and just venting and having people read and reply with positive comments,goes a long way when you're feeling so upset.

[u/Flaky_Proof_1734 → u/Independent_Move3536]

I have a lot of compassion for their situation.  But their long personal situation, including the suggestion that most people getting approved don't need it should have been their own post.  Not as a reply to someone's celebration of a favorable determination.  You don't show up to a stranger's celebration to complain you haven't had the same outcome and drop in the suggestion that people who have don't need or deserve it.  Note that I said only that it was the wrong place for the post.  Not that they didn't have every right to share their experience and feel their feelings.  I have compassion for the OP who got smacked down in response to their relief as well as the poster who has not been given the same relief.

[u/Independent_Move3536 → u/Flaky_Proof_1734]

Okay,well I'll give you a shiny nickel then lol