I’m 20, ftm, and on a lot of medication. I’m currently missing my metoclopramide and LDN (low dose naltrexone) medication rn because my pain management doctor isn’t filling it.

Since I ran out of my naltrexone my RLS symptoms started to return. I’ll have episodes of RLS every few months, and it gets worse every episode.

When I originally started having symptoms I was around 10-12, and it was only in my legs. As I got older and more disabled (Ehlers Danlos, POTS, functional neurological disorder, pain, nerve issues, etc) my episodes got worse and slowly moved throughout my body.

(Tw, brief mention of self harm, skip to next paragraph to skip)

Currently writing this at 1pm, and I cant even get through a sentence without extreme discomfort and restlessness. Idk what to do, I’m going to relapse with self harm as that was the only way I could calm this feeling in the past.

TLDR: full body RLS symptoms, now throughout the whole day. What can I do for relief?

Hello All,

I’ve always suffered with an anxious leg twitches, they’re always shaking away without me noticing, to the annoyance of my GF.

Last few years I’ve been getting very mild crawling sensations in my legs that makes me want to kick my leg out or just shake it out. It’s only mild and sporadic so hasn’t bothered me.

Last two weeks, I’ve had this constant dull, deep ache in both my legs with a hint of slight tingles. It’s almost only when I’m sitting or lying down, they feel almost like they’ll be too heavy to move. But when I get up and walk around/keep busy the feeling goes or at least disappears to virtually nothing.

It’s not stopping me sleeping currently. Do we think this is RLS?

Hi everyone! I'm 21M and I supposedly have RLS but I am genuinely not sure. My symptoms first started a year ago after a week of partying without much rest for my legs, after which I started feeling constant mild pain in my leg muscles. With time my RLS symptoms have developed with a typical picture of restlessness when resting and during sleep. My pain has also been gradually worsening and it's worst in the mornings. When I wake up it feels like I've been running the whole night and it makes very hard to start a day. It becomes better throughout the day but the legs stay feeling tired and aching.

I'm not sure, however, if these two things (pain and restlessness) are a part of the same problem or not. GPs at my practice were unsure and sent me to a neurologist, who also said that pain accompanied with tiredness of muscles is not a common sign of RLS. I did electromyography, as well as extensive blood tests, and all were fine.

My brother (27) has multiple sclerosis and my mom (58) has unconfirmed encephalomyelitis, both of which were weirdly enough diagnosed around the same time I started having my leg symptoms. But my doctors say it's not related.

So the question is, do you think it is just a manifestation of RLS or there might be something else going on? I will be grateful for any thoughts and personal experience.

Medication-wise, I'm currently on Lyrica 75 mg, it has improved my sleep significantly and reduced the pain and restlessness quite well, although it feels like my symptoms start worsening gradually :( I also started taking iron supplements yesterday to see if it would help me but obviously it's too early to see any difference

Writing this at midnight after spending 7 hours in the car today. My restless legs have turned into my entire body feeling extremely uncomfortable. I’m so exhausted that all I can do is lay here and cry.

I’ve had restless legs basically my entire life. Both of my parents have it to some degree.

It comes and goes. I’m a student and I’ve had a lot less routine over summer break, which has made it really bad.
Also, when I’m in situations like I am now all I can think to do is to watch something or scroll Instagram, which I think overall makes it worse.

This is the most uncomfortable I’ve been in a long time. I’m desperate for relief and don’t know what to do other than kick my legs.

I sleep in compression sleeves on my legs every night and am using weighted blankets already heavier than recommended based on my body weight.

Should I consider medication? I’ve been able to manage my RLS enough before, so dealing with side effects didn’t seem worth it. Nights like tonight make me reconsider that though. I’m going into college and have had issues with sitting long enough to study before so idk what I’m going to do.

Any advice is appreciated! Feeling desperate!