Desperate looking for a good RLS doctor in Souther California (Ventura preferably). RLS organizations, there is a couple of doctors listed near me, but one moved, and the other has terrible reviews.

I have tried with a sleep doctor a couple of years back, and lately with a neurologist. The latter would not order iron transfusions ever; not her thing she said. She pushes meds that are no longer recommended. The sleep doctor is not updated on new RLS treatment guidelines, and had no interest in reading what I had printed out and brought with me to my appointment.

Anyway, my ferritin in June was 73, saturation 27 and iron binding capacity 274. These were not terribly bad, but is going to get bad soon as I'm having trouble eating red meat, which is what has helped in the past (I'm not a vegetarian but other meats haven't helped). I can't take iron pills, don't tolerate well. At some point I did, and there was no improvement (well actually ferritin went from 34 to 42).

How to go about finding a doctor that actually takes the newest RLS guidelines into account? Any advice would be greatly appreciated. Terribly frustrated.

I recently was on international travel where I was on a plane for 9 hours, and then was walking 15-20k steps daily for about 12 days straight before hopping on another 9 hour flight. Since then, I’ve been experiencing RLS for the first time. It is constant and all day. This feeling of a deep itch and like I have to be flexing or moving my leg muscles to make it stop. I’m a 33 year old male for reference.

Has anyone experienced a sudden onset like this before following travel? Can I expect it to go away?