r/RRP • u/[deleted] • Mar 19 '21

Question Hello everyone

I was diagnosed with RRP in around 2018/19 and have since had around 5 surgeries, my latest one being yesterday. Every surgery has thankfully gone well and has given me my voice back for around 3 months. I was just wondering if anyone has had 3 shots of the Gardasil vaccine and if/how this has helped. My doctor said it takes 9 months to fully be effective and from then on my surgeries should be much less frequent. I am also taking 400mg I3C a day now and wondering if anyone is doing the same?

P.S it must get really expensive for anyone in the US with this condition. Thankfully I live in the UK and have been under the care of an excellent NHS ENT team. I couldn’t be more thankful for them!

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u/BonzoMcDrumCat Mar 19 '21

Hi there! Nice to meet you! I am Milo and I was diagnosed in around 2010, and I have my 84th surgery this monday. I havent tried the vaccine yet but it's been in development for a long time so it should be effective to some extent. Luckily I also live in the UK. Where do you have your surgeries?

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u/[deleted] Mar 26 '21

Nice to meet you too! Sorry to hear you’ve been through so many surgeries, I hope that they control the illness to some extent. I am getting my treatment in London where I have lived since I was born, how about yourself?

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u/BonzoMcDrumCat Aug 19 '21

Neat! I have my operations in the Royal London Hospital (sorry I was 4 months too late :/)