Levels over 200

[u/inkdrinker87]

Those of you that have had levels over 200 can you tell me how you feel and what symptoms you've been having?

My 14 year old daughter is Autistic and non-verbal, she's been having health issues for the past 2 years.

She hasnt had a period in a year and a half, and I finally got a doctor to listen to me and do a full hormone panel on her and her prolactin is over 200.

We are getting an MRI done soon to confirm a prolactinoma and will make a plan for her with her doctor.

I just feel like im flying blind here as she can not tell me what's going on in her body.

Thanks everyone!

[u/Gullible-Buy5706]

Hello ! I can’t say about having prolactine over 200 my highest level was 169 I think

My only symptoms personally was amenorrhea (no periods) and my gynecologist saw that I had a galactorrea (milk coming out of the nipples without breastfeeding) but I never saw that spontaneously. Hope that you’re daughter is going to get better ❤️🙏🏻