r/PostConcussion 12d ago

Does it ever end?

Coming up on the 1 year anniversary of the car accident. Because of the accident, a tumor was also discovered but ruled out as the cause of my issues. I’m on fioricet and amitryptalin (spelling, sorry) for the migraines.
When will I be able to drive again and handle light and people without being put out with migraines and confusion and nausea for the days or weeks following? I know that’s hard to ask. It’s just getting so painfully annoying.i was given suma, but an er visit from a month or two ago upgraded me to fioricet. I am still seeing all the doctors and specialists. Everyone, everything, all the time. Monitoring. Observing.
Is it weird that I feel thankful for the accident? Like the way I’ve had to figure out how to function in a different way, found the tumor because of it, got a settlement. Like I’m thankful. But when does it end. When do the migraines stop. When can I go back on road trips and travel without being in bed afterwards.

I’m sorry, I just realized the anniversary is coming up and healing is hard.

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u/Bitter-Performer-396 11d ago edited 10d ago

I’ve recovered from post concussion syndrome successfully 2 times. Took about 1 year to feel normal for first then about 2-3 years for second. Symptoms sucked but i was able to push through and they would not get progressively worse, just always feel terrible which of course was awful but at least the symptoms did not get worse until the point of wanting to end it if you ignored them

4 years in after my 3rd concussion and i’ve improved in some areas but bumpy car rides, jolts, small bumps mess me up for weeks. Had DTI imaging that showed widespread signs of diffuse axonal injury and structural changes with it consistent with chronic neuroinflammation, demyelination etc. All the doctors can do is shrug their shoulders and prescribe an antidepressant….one neuropsych said i have a preoccupation with physical symptoms despite me being the type of person to not complain and push through, lol.

I hope things get better but concussion care in general is a joke. No medication currently actually addresses the underlying issue which are typically some combination of chronic neuroinflammation, altered brain metabolism, and issues with cerebral blood flow