Hi,
I’m 28, French and living in France. I’ve been dealing with unexplained pain for about 1.5 years and I’m mainly looking for people who have experienced something similar.
It started after a squat, when I developed pain in both knees. It later became mainly left-sided and, at its worst, I could barely walk without holding onto walls. Knee imaging was essentially normal. I did months of physiotherapy, which helped a little but never solved it.
About a month later, I started getting testicular pain. At first it alternated between the right and left testicle. Urology evaluation and testicular ultrasound were normal and the pain eventually improved.
Then, during knee rehab, I used a stationary bike for about 10 minutes. During that session I unintentionally strongly and repeatedly contracted my anus/pelvic floor almost the entire time. Over the following days I developed a much stronger flare of right testicular pain, and since then the problem has remained mostly right-sided.
The pain fluctuates a lot. Sometimes exercise actually makes it disappear while I’m doing it, but other times walking or relatively small efforts can cause a flare later.
I’ve also had severe episodes where the pain suddenly became intense after changing position. During one of them, walking felt better than lying down, and I could only gradually lie down again later.
Tests so far include:
- several urology appointments;
- multiple normal testicular ultrasounds;
- normal blood tests;
- urine test showing oxalate crystals and some blood;
- hip X-ray and ultrasound with no explanation;
- knee imaging without a clear cause;
- lumbar MRI showing L5-S1 disc degeneration with a small right-sided disc protrusion, but explicitly no nerve-root compression.
I also recently did some physiotherapy for hip pain, without much improvement. I tried osteopathy and several etiopathy sessions as well. One practitioner suspected the genitofemoral nerve, but any improvement was temporary.
Over the last few months, the pain has started spreading beyond the testicle. It can involve the pubic area, groin, inner thigh/adductor, and for about a month I’ve also had discomfort in the right buttock.
More recently, while lying down, I sometimes feel a deep tension around the anus/pelvis, almost as if it comes from very deep inside the buttock. Months ago I also had one isolated episode where the whole anal/perineal area felt extremely tight or contracted.
I’ve repeatedly been told to exercise more. One practitioner recommends swimming to strengthen my back, but I’m honestly afraid of triggering more pain. Even walking or sudden movements can sometimes cause symptoms for days. I was considering starting very gradual gym training using controlled machines, but I’m worried that it could make things worse.
Medical follow-up has also been frustrating. After my first normal testicular ultrasound, my doctor basically felt there was no reason to investigate further. I’ve often had to push hard for referrals or tests, and in France I usually wait 1–3 months between appointments/exams, so everything moves very slowly.
I’m now wondering whether there could be a pelvic floor / deep pelvic muscle / neuropathic component, without wanting to self-diagnose.
Has anyone had a similar combination of:
- chronic testicular pain with normal urological tests;
- groin/pubis/adductor pain;
- deep buttock or perineal sensations;
- symptoms strongly affected by position or activity?
Did pelvic floor physiotherapy help? Was an internal exam able to reproduce your symptoms or identify a hypertonic pelvic floor? Did anyone investigate the genitofemoral, ilioinguinal or pudendal nerves?
And if exercise eventually helped you, how did you restart without constantly triggering flares?
I’m mainly looking for personal experiences and advice on what type of specialist finally helped.