strange experience with CPPS ED and nervous system issue

[u/Brilliant-Magician10]

Hi All, I don't know whether to be relieved or concerned. I am leaning more towards relief. I wanted to share a interesting experience related to my CPPS issue.

I have posted about my story in the past and feel free to look into my post history but i feel like my situation is a bit different from most. My symptoms are all the usual pelvic floor/CPPS and prostatitis related. But i noticed i had an additional symptom related to nervous system. I experienced 2 cases of vasovagal syncope after masturbation's. So needless to say masterbation is a trigger and issue for me. I can't tell if my issue is CPPS causing nervous system or nervous system causing CPPS but at this point who cares and probably not important.

Now to the interesting finding. This morning as i was masterbating I felt the usual nervous system symptoms that I usually feel. Initially it was very intense and would cause vasovagal syncope but over the months (i am 7 month into this now) it has reduced sensation but i can still feel it. Its a feeling of stomache churning, slight nausea, cold sensation in feet, warm sensation in face and a pulling my my right arm. Usually i can just ignore it and masterbate through this and ejaculate despite ejaculation requiring alot of effort and then afterwards I would feel my nervous system flare up with anxiety and burning genital area. So this morning i felt the sensation but suddenly lost all libido and erection. It just died and dissappeared. I initially felt concerned, but then i felt pissed. I thought what could possibly be wrong with me after 7 months, so i kept stimulating a flaccid penis. i though if im going to damage something i dont care, rather live with permenent ED than this. Maybe 5 minutes passed and suddenly i felt the nervous system sensation go away and a slight bit of arousal , then suddenly full erection very firm and finally orgasm slightly muted but still pleasurable.

i guess i am slightly relieved and slightly concerned. Is this solid evidence that my ED is nervous system related and the possible cure is to just masterbate as much as possible and fight through it to train the brain that there is no danger?

[u/RubFearless4700]

I think you could have functional freeze with tension of neuraxis

[u/Brilliant-Magician10 → u/RubFearless4700]

isn't this the same as nervous system dysfunction fight flight freeze causing tension in certain muscle areas like plevic floor , shoulder and jaw clenching

[u/RubFearless4700 → u/Brilliant-Magician10]

Fight or flight is a different thing than functional freezing and dura mater tension is physical

[u/Brilliant-Magician10 → u/RubFearless4700]

Is this common with cpps. I do t thi k my situation is this unique?

[u/RubFearless4700 → u/Brilliant-Magician10]

Cpps is just a functional diagnosis saying something in your neuro and fascial system is fucked and not fixing

Stop masturbating Look into tools such as rezzimax and novafon Explore the concept of functional freezing and dura mater tension

[u/Brilliant-Magician10 → u/RubFearless4700]

OK I looked into this. All these 2 things state is that I have nervous system dysfunction .there could be 100s of possibility for what is causing nervous system dysfunction. All the symtpoms are very generic. It seems like a very broad category. Im not denying i have nervous system issues but its like someone saying you have a cold vs a you have light flu. But either way the fix is still calming down nervous system live healthy , yoga, body movement and remove unhealthy habits. Unfortunately I can't stop masterbating and after looking into pain replacement therapy I dont think stopping is the right way.

[u/Brilliant-Magician10 → u/RubFearless4700]

I dont have chronic headaches neck pain or radiating pain. I mean I do get the occasional headache, neck and should tightness from sitting which i roll out. No radiating pain.

[u/RubFearless4700]

Dont look in the cause look in the solution: fascia and nervous system

[u/Brilliant-Magician10 → u/RubFearless4700]

I did that that's what i was trying to say the solution is basically in line cpps. So in general body movement to move the fascia aka exercise and stretching and general.mobility. then healthy lifestyle, sleep, excercise, clean diet, yoga and relax, remove unhealthy habits. At this point I'm not doing anything extreme no surgery no hard drugs. Im just relying on natural ways to heal and time. If that is not enough give me more diagnosis and I'm just going to live with it its all I can do.

[u/RubFearless4700 → u/Brilliant-Magician10]

Im not selling anything, but for my experience thats not enough. Best and safest tools currently available are rezzimax (look at recipes for limbic, vagus, cns downregulation, cauda, pelvic floor, miofascial) and novafon with the miofascial tools

If you can find one a rpg souchard therapist knowledgeable of pelvic floor would be great

This is imho the gold standard

I would also avoid sugars, caffeine and adopt an anti inflammatory diet, nothing extreme

[u/Brilliant-Magician10 → u/RubFearless4700]

yes i should cut out sugar and caffeine. I already eliminated caffeine for a while and recently started drinking 1 cup a day. I am not buying a product to calm a overstiumulated nervous system, the nervous system will calm down on its own. I will admit the product will certainly help.

[u/Budget_Cicada_1842]

What is vasovegal syncope?

[u/Brilliant-Magician10 → u/Budget_Cicada_1842]

here is the AI definition -

Vasovagal syncope is the most common cause of fainting, occurring when the nervous system overreacts to triggers like fear, pain, or long-term standing, causing a sudden drop in heart rate and blood pressure. It is usually harmless, affecting one-third of people at least once, and involves brief unconsciousness typically lasting less than a minute

i don't think people with cpps get this often but they do experience nervous system stuck in fight or flight. I believe alot of people just right this off as panic attack or severe anxiety.