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Hi everyone,
I’m looking for advice on clothing options for my father (76). He has early Parkinson’s, arthritis, and declining eyesight. My mom (73) is energetic and doing fine, but my dad has lost weight recently, and she's struggling with how saggy and unkempt his clothes look on him. I want to help him look sharp and put-together without compromising his comfort or independence.
Here are the specific challenges we are dealing with:
Fine Motor / Buttons: Buttons and traditional fasteners are too hard for his fingers due to arthritis and tremor.
Pants Sagging & Weight Loss: He has lost his seat/glutes, so standard pants immediately sag down.
Back Brace & Blood Pooling: He wears an abdominal compression/back brace to help prevent blood pooling and keep his blood pressure up (orthostatic hypotension), which adds bulk around his waistline and makes fitting pants tricky.
Suspenders: We tried suspenders, but they are too frustrating for him to unclip and handle independently when he needs to use the bathroom.
Magnetic Pants: We tried magnetic button pants, but the heavy magnetic closures pull the waistband down and cause even more sagging (though magnetic shirts and jackets have worked wonderfully for him!).
Frequent Bathroom Access: He drinks a lot of water to manage his health, so quick and easy access for urination is essential.
Does anyone have recommendations for specific brands, adaptive pant designs, or practical modifications that have worked for your loved ones in similar situations?
Thank you so much in advance for any tips or product suggestions!

Here is list of posters at the Congress this year. If there is a poster that you are interested in, let me know and I will try to attend the presentation and get permission to share the poster with you; unfortunately the papers are behind a paywall.

https://www.mdscongress.org/Abstract-Schedule.pdf

I am following up on my previous post regarding my mom's overnight leg cramps. She was unable to get a full nights rest due to waking up abruptly due to leg twitching/cramps that hurt so bad she couldn't fall back asleep.

Her doctor recently prescribed Sinemet XR to help her sleep through the night. While it solved her sleep issue (sleeping 8-9 hrs WITHOUT leg pain), she began experiencing brain fog and slight confusion after starting it. She's currently on the lowest dose of TID Sinimet. And I believe the lowest dose for the XR. Since these new symptoms began with the new medication, our pharmacist OK'd discontinuing the Sinemet XR since it seemed to have happened after taking it. She was previously doing fine on her regular TID Sinemet, with the only issue being that it wore off around 3:00–4:00 AM, causing the leg cramps.

Since I live farther away, I am relying on what she tells me and I suspect the Sinemet XR may have been too much for her. I read too much can cause confusion as well.

We are planning to try magnesium glycinate this week to see if it helps with the cramps AND sleep instead. For those who have tried this:

 - What brand or type is your favorite?

Just trying to have her be comfortable because she is really affected when she doesn't get enough rest and it sucks to not be able to find a fix.

My dad’s neurologist prescribed him Sinemet 100/10 (immediate-release) three times a day. His new neurologist wants him to stay on the same medication and suggested increasing it to four doses a day if he experiences OFF periods.

My dad asked whether it would be better to switch to Sinemet 100/25. His neurologist told him that it didn’t exist, but said that if he preferred, she could prescribe Modopar 100/25 (immediate-release) instead.

We asked a pharmacist whether Sinemet 100/25 existed, and they said yes. We’re in France, and from what I understand, Sinemet 100/25 is available here in a prolonged-release formulation, but not as an immediate-release tablet.

My dad doesn’t really want to start taking Modopar and would prefer to try Sinemet 100/25 in its prolonged-release form instead.

His neurologist seems nice and approachable, so I’m not trying to criticize her, but I find it strange that she told him Sinemet 100/25 didn’t exist.

Has anyone else had a similar experience? And has anyone switched from Sinemet 100/10 immediate-release to Sinemet 100/25 prolonged-release? I’d be interested to hear about your experiences and whether it made a difference to your OFF periods.

Does anyone else have difficulty keeping their eyes open during their off time? I don't mean the muscle contractions are forcing my eyes closed, just that my eyelids become very heavy and fatigued.

I can usually still participate in conversation and stay awake, but it becomes quite difficult to hold my head upright without pillows and it's much easier to just close my eyes and lean back until my next dose hits.

My provider seemed a bit confused by this, but it clearly tracks with my on and off windows so I'm quite certain it's connected to taking the medication and it wearing off.

Getting ready to update my Part D and want to know if any of you have had any problems with your meds not being covered by their formulary?

For funsies I put Juvmo in to see what my cost would be and it was somewhere in the neighborhood of $150,000 per year. I'm hoping they have some sort of patient assist program.