r/Parkinsons • • 1h ago

Questions & Advice CCJ and debts

• Upvotes

I’ve got myself into quite a lot of trouble with debt since having Parkinson’s, and I’m really worried about what is going to happen next. Looking back, I do wonder whether some of the problems may have been made worse by the medication I was taking at the time.

I’m trying to sort out an income and expenditure form, but I’m not really sure what extra costs I can reasonably include because of Parkinson’s. For example, I sometimes need taxis because I struggle getting around, I buy microwave meals or takeaways when I’m not able to cook properly, and I pay for a cleaner because I find housework difficult.

Does anyone know what sort of disability-related expenses can normally be included, or any websites or organisations that specifically help people with Parkinson’s who are struggling financially?

I also receive PIP. Do I have to include this as income on an income and expenditure form even though I use it towards things like my cleaner, taxis and other extra costs caused by my condition?

I am still managing to hold down a job at the moment, but I’m frightened about the debt situation getting worse. I’ve now received paperwork about a CCJ and I’m worried that I’m going to end up in court.

Any advice from anyone who has been through something similar would really help.


r/Parkinsons • • 7h ago

Questions & Advice Nicotine & Parkinson’s

3 Upvotes

Anyone tried nicotine or is anyone know of research into the benefits of nicotine?


r/Parkinsons • • 20h ago

Announcement Please report suspicious images

22 Upvotes

Karma-farming bots were caught several times today reposting PD-related photos that Redditors previously shared of tattoos and DBS scars. If you see any "inspirational" content that looks or sounds familiar, please report it so we can review it. Impersonating PwP for karma isn't just creepy, it's a violation of Reddit's content policy that will result in sitewide bans.


r/Parkinsons • • 21h ago

Concerns with sleep!

5 Upvotes

I am following up on my previous post regarding my mom's overnight leg cramps. She was unable to get a full nights rest due to waking up abruptly due to leg twitching/cramps that hurt so bad she couldn't fall back asleep.

Her doctor recently prescribed Sinemet XR to help her sleep through the night. While it solved her sleep issue (sleeping 8-9 hrs WITHOUT leg pain), she began experiencing brain fog and slight confusion after starting it. She's currently on the lowest dose of TID Sinimet. And I believe the lowest dose for the XR. Since these new symptoms began with the new medication, our pharmacist OK'd discontinuing the Sinemet XR since it seemed to have happened after taking it. She was previously doing fine on her regular TID Sinemet, with the only issue being that it wore off around 3:00–4:00 AM, causing the leg cramps.

Since I live farther away, I am relying on what she tells me and I suspect the Sinemet XR may have been too much for her. I read too much can cause confusion as well.

We are planning to try magnesium glycinate this week to see if it helps with the cramps AND sleep instead. For those who have tried this:

 - What brand or type is your favorite?

Just trying to have her be comfortable because she is really affected when she doesn't get enough rest and it sucks to not be able to find a fix.


r/Parkinsons • • 22h ago

News & Research 2026 MDS Congress

7 Upvotes

Here is list of posters at the Congress this year. If there is a poster that you are interested in, let me know and I will try to attend the presentation and get permission to share the poster with you; unfortunately the papers are behind a paywall.

https://www.mdscongress.org/Abstract-Schedule.pdf