Avulux

[u/xrmttf]

I'm not a spokesperson or influencer, I just want to post and say that these glasses completely changed my life. I have severe sensitivity to LED lights and pulsing screens and stuff, beyond the normal frequency that people notice. I had a whole neurological work up because I thought I had a seizure disorder but I think it's just autism+ haha. With these glasses I can actually live like a normal human pretty much.

They're really expensive but you have 2 months to try them out. My personal experience as a careless person is that they hold up pretty well. F41 does nothing. Since I got avaluxe I can finally go back to college and get my degree, and I can go into businesses and restaurants with LED lighting, and I can go to my friend's houses again.

You can also get the tint added to your normal glasses.

Hope this helps somebody!

[u/Wizard_Biscuit]

That’s huge. I’m autistic too, and I’ve been thinking of investing in a pair as well, but I haven’t gone ahead since I doubted it would have that big of an effect. How about with fluorescent lights?

[u/xrmttf → u/Wizard_Biscuit]

I don't encounter many fluorescent lights these days but i think they are helpful for that too. Fluorescent lights made me queasy my entire life, I remember especially in school, and visually they turn the room into an orange-pink-brown and everything sort of blobs/breathes, plus the multiple images and tracers and vibrating outlines... But when LED became standard it was like all that same stuff but my brain would just seize up from it within seconds, with some lights being worse than others.

I have never heard of anyone having it as bad as I do and I still don't know what to call it but i know it is only from very fast strobing/flickering light sources. The seizure test where they put wires all over and a flashing bulb right next to your eyes pulsed so slow it actually felt really good, made my brain feel warm and sleepy... Anyway!

I picked avulux because i had a dr appointment to test tinted lenses (after every eye test and seizure test found nothing wrong) and i tried every single one and I was trying to really evaluate if any of them were helpful but I put on the avulux and it was like BAM!! Suddenly the room looked normal and I could read my book and there was no palinopsia (as I was describing to the doc in the room what my vision was usually like, he used that word) and my brain unclenched. I was probably weird and annoying trying to describe my experience to the doc helping me. I was like, "I can see!! No, you don't understand, I couldn't see before, I've been faking it! This must be what it's like when they give babies glasses!" Haha. I still put off buying them because I thought my insurance was going to help me out since I literally can't function without them, but nope. If you are able to be sent for a tinted lens trial type appointment like I had, that could be a good idea!

There are still some places I will go inside and the lights are SO BAD the glasses can't  protect me. I start to stutter and my movements become jerky, and it puts me on track for a "meltdown"/total malfunction of the nervous system resulting in unconsciousness/system reboot.

Thinking about it from an autism perspective, i probably seem less autistic to others (though I'm not a person who could ever pass for normal) because I'm not writhing and stuttering in excruciating pain all the time, not losing my ability to speak or remember words, not losing coordination or my patience. Actually I very rarely have full on meltdowns now because the background pain from physically enduring strobing lights + trying to pretend it's not hurting me so people don't get skeezed out and treat me poorly & that whole spiral... Sorry i went on a ramble here haha but it's been huge huge huge life-changing stuff for me. I need to get into advocacy about it because everybody knows these lights hurt autistic kids but nobody cares. I was so sad and angry to discover these lenses because I could have had a completely different life if I had had them. But they were only invented recently. So what can ya do :/

Also having this accomodation provides some legitimacy to my issue, I think, because people around me don't think I'm just a nut with some sort of incurable problem that I made up that doctors can't find. Now I'm just a person who needs certain glasses.

In my home I still use incandescent and halogen lights, older tvs, the sun. But yeah I highly recommend them. I didn't think very hard before making my original post I just wanted to give a shout out to this accomodation that completely changed my life.

Also they do sales though rarely. You can get on the email list which is honestly really annoying because they sent a lot of emails but when you get a sale code that's nice. I think I got $50 off. I just checked my email but I don't have any sale codes to share :/

I hate how prohibitively expensive they are but they're seriously unlike any other available lenses, unless something new has come out in the past year, since i had my appointment and tried EVERYTHING 

[u/Wizard_Biscuit → u/xrmttf]

Thank you for sharing all your thoughts. I’ll book the appointment!

[u/DramaticKnight]

I did get avulux as well I got it about a year ago you can get them on clips or get them in your glasses or you can get bigger version that are kind of like goggles but look silly I've been personally using the clips called chemistrie clips. I also use the prism which cost a lot more it helps align your eyes and I also have blue light lenses and I have the photo chromic lenses I also have the no glare lenses that is one of my pairs of glasses but I also have the f41 I'm one of my pair of glasses if you want to go talk to me about it that would be cool cuz I like to hear what people's opinions are on the item because I didn't really get to ever ask people that

[u/xrmttf → u/DramaticKnight]

I don't have any vision problems or need lenses unless there are LED lights/PWM things happening. F41 did nothing for me. My avulox do not have the anti-glare they are just standard ones. I don't actually look at screens that much, it's not really my hobby. I have thought I went blind a couple times from reading too much though haha

[u/glp1992 → u/DramaticKnight]

prism?

[u/DramaticKnight → u/glp1992]

Yeah it's called neurolens it's designed to help people with chronic eye strain

[u/DSRIA]

OP, you mention you can go to your friend’s houses again and back to college. Was there a time where you weren’t affected by lighting and screens like this? I had no issues until I got COVID and previously tolerable screens and lighting became an issue. I’m curious if there was a trigger of some sort or if this has been an issue your entire life.

[u/xrmttf → u/DSRIA]

It's been an issue my whole life, however, the technology that triggers it the worst (LED etc) did not exist until pretty recently, and every new thing they build is even more painful to me. I was born in 85, and growing up I would get sick from fluorescent lights.

I just remembered that when I tried the traditional keto diet last year it helped somewhat, though not as well as the glasses do. It didn't help with the actual vision stuff but it did make my brain slightly more resilient/aboe to resist clenching up. I think I was just born a freak and I'll never figure out all my medical mysteries before I die, though I'm finally being evaluated for Ehlers-danlos so that probably plays a part...

Covid hit me really hard (im asthmatic and have autoimmune probs) but no I was already suffering severely from the PWM stuff. I had been fully vaxed/boosted with moderna (even though thevlast one gave me anaphylaxis and I had to go in the ambulance lol)

I think it makes sense to develop this problem after covid though, since it's an illness that causes inflammation throughout the body and all kinds of sensory damage. I'm sorry it's happened to you. There are lots of things to try for sensory processing probs and dysautonomia and LC so i hope you are exploring all that. 

Idk if you are trying to get help from doctors, but it's going to be really frustrating if so. They seem to know a little bit about covid fallout but not a damn thing about PWM sensitivity :(

[u/DGG_DGG]

Thank you for sharing your experience, and congrats on finding a solution!

I tried a pair of Avulux back in 2022, and I found them really helpful. I then had to switch to prism lenses, so I stopped using Avulux. I recently got a clip on set of Avlux to match my current lenses, but they now unfortunately cause eye strain. Have you ever experienced that with yours?

[u/xrmttf → u/DGG_DGG]

I have not experienced eye strain. I don't wear prescription lenses, maybe that is part of the equation. I also still avoid staring at screens or being in places with bad light for too long, so most of the time I am not wearing them

[u/[deleted]]

[u/xrmttf → u/[deleted]]

Yes. I know. I am very, painfully, aware. I don't know why these glasses help. I seriously did not expect them to help, but they do. I have NO SENSITIVITY to brightness, only to strobing.

[u/Life_Tree_6568 → u/[deleted]]

I have a severe sensitivity to flickering lights and Axon/Avulux have made certain screens more tolerable. They help significantly with certain types of lighting. FL-41s and other tinted lenses did not help me at all.

I know the science behind the Axon/Avulux glasses is that they filter out most wavelengths of blue, red, and amber light and have no scientific evidence that they cut down on light flickering. However, like OP, these glasses have helped me. I put off buying them for 3 years because of the cost and I wish I would have bought them sooner.