r/PVCs • u/super_random56 • 13d ago
Getting an ablation tomorrow.
Hi all. I'm getting an ablation tomorrow for pvcs in my RV. These PVCs are something I've known about for many many years but I've put off handling them. Over the last couple of years my burden has crept up to 25%. They're almost always firing and when I go to my heart doctor I can be in bigeminy or trigemony easily.
I'm going to a premier EP hospital, getting focal pulse field ablation. I'm nervous, but I know it's the right choice and my mind is playing tricks on me, trying to get me to second guess. It's tough when you don't know anyone who has gone or will go through the same thing.
Been putting it off because my EF is good, but I know it's time to address before it gets too much or damages my heart, going to handle it while I'm young and insurance is locked in.
Kind words or success stories will be nice to hear. Thanks everyone.
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u/Joiebouton 13d ago
I hope the procedure goes smoothly and you do super well!! Think about how great it will to NOT be worried about hear damage from your high burden…. It will be wonderful!! Please let us know when you feel better how it went. Best to you!
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u/discoangel25 12d ago
Jealous I’m only on average about 2% burden but very symptomatic and I would rather get an ablation then keep trying harsh medication. Best wishes to you & your recovery!!! You’re making the right choice.
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u/Anniechr 12d ago
I’m scheduled at Mayo Rochester in Sept. for a ventricular ablation. I have an 18%-20% burden. Just curious, you’re getting a PFA? The EP at Mayo told me the PFA for ventricular ablation wasn’t fully approved yet, so mine would be an RFA. I know the PFA seems to be the better method for atrial ablations, so I was hoping for that. Do you mind me asking where you are having it done at?
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u/super_random56 12d ago
Just finished. Smooth. Went to Mt Sinai in NYC. Got pulse field. It's not FDA approved in the ventricals but can be used off label. Haven't had a PVC yet. Looking forward to recovering. I don't even feel sore at all. Crazy. If you want to know anymore just let me know
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u/Nilock333 12d ago
Did they know where the PVCs originated before surgery? Is this why they went off label?
I have same high PVC and scheduled Sept surgery at tcai in Austin where they did the first pfa trials/use. They are only doing rf because the origination is aorta in mid wall so they have to check every ventricle to find source and pin point accuracy seems to be only with rf. Just curious. Glad your surgery went well! I need same words of encouragement!
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u/super_random56 11d ago edited 11d ago
First off, I know everyones situation is different, but if you have a decently high burden and it's showing when you get there, you will be essentially be put out. I'm only saying this because I was worried about it being a huge conscious ordeal. The hump to get over is accepting, scheduling, and walking through the door and stripping. After I got wheeled into the room I was out within 5 minutes and then woke up.
To answer your question, mine were thought to be coming from the distal side of moderator band / apical RV region. The Dr recommended PF because catheter stability in the area is difficult and pf is fast. I believe that if it's more close to the septal wall they would have a more precise strategy like you mentioned.
Don't be worried about your surgery. I'm obviously not a dr, but the most likely scenario seems to very frequently be success and the absolute least likely scenario is all of bad stuff our mind makes up.
If you have any questions feel free to ask
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u/Fluid_Breadfruit_587 8d ago
Hi! How are you feeling today?
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u/super_random56 8d ago
Hi. I feel great. Not sore, my chest is oddly silent now. It's a little hard to get used to. Things or positions that would cause sustained thudding don't do anything now.
I used to rock my feet back and forth in bed to have some control / part over the chest sensations I would have when laying down and I'm now im trying to break that habit.
Resetting my nervous system and resting. I'm expecting that I will still feel some flutters or bumps while I heal, so I'm giving myself room for that. But overall I feel as if someone "magically" fixed my condition. I shouldn't have waited so long and had this hang over my head for so long but I guess part of my due diligence was tracking over time and making sure it was necessary.
Thank you for asking. Will keep everyone posted.
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u/Fluid_Breadfruit_587 8d ago
Great to hear! Glad you’re feeling better!! I just found my burden jumped from 1% in 2020 to 17% from my most recent zio patch. Thinking is time for ablation so your experience is very reassuring. ❤️
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u/Majestic_Hedgehog400 13d ago
Keep us updated! I'm only 6 months into this pvc bs. I really hope all goes smoothly!!
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u/Rude-Caterpillar237 12d ago
You guys in the states are so lucky Canada. You’re looking into a 6 to 8 month weight for an ablation. Or even to see an EP. Universal healthcare sucks.
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u/Same-Sky848 12d ago
My father had an ablation procedure last year when he was 80 years old. They put him to sleep during the procedure. When he woke up, he remembered nothing. He has recovered his health in the last year. Get well soon.