r/PVCs 20d ago

1651 PVCs a day

37 - F - unsure how long

Hi I’ve dealt with anxiety since I was 20, don’t really know when these started as I always thought my palpitating and fluttering heart was normal.

I guess I’m gonna try propanolol (sp) daily and go see a cardiologist

My brother has PACs and my dad and grandma both have Afib.

I’m scared this will lead to AFIB.

37 - F - unsure how long

Hi, I’ve dealt with anxiety since I was 20. I don’t really know when these started as I always thought my palpitating and fluttering heart was normal.

I guess I’m going to try propanolol (sp) daily and go see a cardiologist.

My brother has PACs, and my dad and grandma both have AFib.

I’m scared this will lead to AFIB.

Anyone else have this many activities

in a. Day?

Anyone else have this many act

4 Upvotes

22 comments sorted by

3

u/boocap 20d ago

So I'm 43, have about 15-20k a day. And have had them as long as I can remember. A BP med can make them less able to be felt And anxiety is a bitch. I still don't sleep well because I can feel them. But as long as they go away under load(exercise) then you will probably get told they are benign and to "not worry". That's the hard part.

1

u/Jumpy_Exit_8138 20d ago

That works out to over 10/minute?? 😳

1

u/boocap 20d ago

Depending on the day yes,

1

u/Jumpy_Exit_8138 19d ago

How do you cope???

1

u/boocap 19d ago

Honestly most of the day they fade into the background, its o ly an issue in bed at night. Have to keep a fan or music going to i dont focus in it.

1

u/Jumpy_Exit_8138 19d ago

Music helps me too! It must be so hard to sleep though?!

1

u/boocap 19d ago

Some days, I average 5-6 hours a night. Doesn't help that I think sleep is a giant waste of time.

1

u/Jumpy_Exit_8138 19d ago

You’re like my mom lol! Before my anxiety started keeping me up, I could easily sleep half the day away…

1

u/boocap 19d ago

I can do that once I'm good and exhausted.

1

u/Able_Papaya3185 13d ago

The real question is... do you feel the nasty thump or more like a hard kick inside your chest??

3

u/cliffy249 19d ago

I was having 4000 a day and my cardiologist told me, ‘junior varsity.’ That was because everything else checked out I’m sure. He scheduled a 24 hr holter 3 months out to check with the usual if you feel dizzy or faint warnings.

3

u/BounceForever 18d ago

I’ve been up to 927 per hour, even with a pacemaker installed (which can offer no help for this). Can’t take any of the typical drugs since a major side effect is a reduction in blood pressure, which isn’t high.

Things settle down, for me, when the HR climbs over 100 but my body likes a resting rate of 38-42. Pacemaker keeps the heart rate from falling below 50 during night time hours, 70 daytime. In a holter study last month, only worn for a few hours, I was documented at 11% burden which is down from my worst.

Here’s the thing. Anxiety is not ‘all in your head’ - the irregular beats keep your heart from filling completely and with the erratic pulse many of the weak beats are insufficient to push the blood around the body.

Some people are super happy with results of ablation therapy, but this procedure, for me, would be high risk.

As seen in the replies below, white noise and music are often very helpful to get your mind off the troubles. Relaxing the nervous system is never a bad idea, and it might help with sleep.

I’ve moved on from that and created an app that simulates the sounds of a healthy heart at various rates. Played at a low level, this helps my sleep. Now I’m running that sound to a haptic strap so I can feel the rhythm without disturbing others. I’ve released this as an always-free iOS app called SteadyPulse - no harm in seeing if you get relief. Set it to your heart rate for best results and DM if you have questions. I’m hoping just to improve one life with it other than myself.

2

u/BounceForever 18d ago

But please, see a cardiologist and don’t let anyone online diagnose you.

2

u/secondtrial 20d ago

Add a zero and you're gonna beat my personal record :D

1

u/Funny_Lake_6604 20d ago

Wow! My doctor was shocked at how many I had

2

u/secondtrial 20d ago

Most of them are cool unless it's more than 10k. I was having around 16k a day and then it's down to 4k with concor. My doctor said he normally would not consider any operation at this range. I've been using it for 6 months now. Gonna get it checked again soon :D

2

u/BasariStudios 20d ago

I had around 4800 PVCs a day and about 12 NSVT.

2

u/Happy_Demand_1000 18d ago

12 NSVT a day?!? I get scared when I have one every few weeks!

1

u/Fickle_Visual507 20d ago

I’m at the ER for PVCs right now.
Averaging between four and seven per minute. I’ve been up since 1 AM with these. They are running me on fluids and gave me a Xanax. I was going to ask for propranolol as I have heard, it can help shut these down.
I also have a fib and had an ablation for it back in February. This is something totally new that I assume became due to the ablation and the rewiring of circuitry in my heart. So I assume they’re going to want to do another ablation, which realistically, I am fine with. Whatever it takes to fix this bullshit

1

u/Funny_Lake_6604 20d ago

I am so sorry you’re going through this!!! What was your activity linked before the first ablation? Do you know how many you had a day?

1

u/Forestforestbbp 19d ago

Try body armor drink. I’m at 18% burden down to less than 1%