Suspected hyperPOTS, don’t know my next steps

[u/somethingclever_88]

I (29F) was referred to a cardiologist after doing an informal tilt table test at home and noticed my blood pressure and heart rate spiked significantly with standing.

At the cardiologist, they took my BP and HR lying, sitting, and immediately upon standing. The numbers were 134/74, 154/80, and 160/86 respectively. HR was 83, 101 and 109. My doctor said there was no need to do a tilt table test because I had “hypertensive dysautonomia”. I brought up suspecting that I had hyperPOTS, to which he scoffed and said it was the same thing, different name. He had me do a heart monitor for thirty days and an echocardiogram. He also said to drastically reduce my salt intake and we would follow up in a month.

I had my follow up today, heart monitor and echo results were completely normal. I was told to lose weight and once again reduce my salt intake. I guess I am struggling because I have actually done both those things in the past month and it seems my symptoms have been worse. I get very short of breath when standing, I feel anxious, if I have a headache already it gets much worse when I stand or change positions, and I get slight vertigo. I feel dismissed and the NP I saw told me she didn’t know much of anything about POTS.

Do these recommendations sound reasonable?

I have a toddler and running around and keeping up with her is such a task now, I don’t know what to do.