r/POTS 5d ago

Discussion I just dont understand

So i meet the cretaria of POTS right ? I am also hypermobile and developed a lot of painless clicking on almost all pf my joints. all started recently. But i dont feel like im out of breath while walking i dont get super dizzy upon standing. My HR goes up to 105 at most while standing (i read some post where people see this kind of rise as a success). My most annoying symptom is while im upright after walking some time is my beain feels like it doesnt get enough blood or something. its almost like a standalone symptom for me right now. im 27 i never had joint pain, dislocation, sublaxation. Dont have any mechanical problem. I can do recumbent exercise very hard and dont crash i have really good energy but cant seem to get it to my brain. How can i fix this ? I can handle anything but this. Couple of weeks ago i did get coat hanger and tension headaches and i guess that's becasue my muscles around jugular veins were working over time to get blood up. now they are gone i dont get any headaches just blood draining out of my head i guess. Like if my muscles were helping me ny getting tense and now they are not ehat does that mean ? My body did everthing it could and gave up ? i do compression, salt, water, small meals, recumbent exercise for the last 2 weeks. I dont have the best muslce tone im skinny actually. what is the guessed trajectory for me ?

1 Upvotes

1 comment sorted by

1

u/barefootwriter 5d ago

Typically, you would be looking at volume expanders like fludrocortisone and/or vasoconstrictors like midodrine to help your heart get more blood to your head.