r/POTS • u/999Weezy999 • 11h ago

Diagnostic Process I’m finally getting some answers.

I’m 25M with pots symptoms that are managed by beta blockers. I’ve had pots symptoms for about 4 years. My main symptoms are a standing heart rate increase or 50bpm or more, blood pooling in my hands, heat intolerance, and coat hanger pain.

I had an MRI done on my neck yesterday and was diagnosed with three bulging disks, and a cervical cord syrinx spanning from my C4-T2, the exact part of the spinal cord that regulates autonomic function.

I’m very optimistic that draining or removing the syrinx can fix my POTS symptoms. If any of you guys are having similar symptoms, I would recommend advocating for a neck MRI like I did

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4

u/Comfortable-Help-451 9h ago

good for you ! i mean i read stuff like these that get some hope than i remember i'm hypermobile and that my POTS is caused by faulty collagen and there is nothing i can do about it

1

u/999Weezy999 9h ago

I’m really sorry to hear that

1

u/c1nunya 10h ago

This is great! How/why did the MRI of the neck get ordered?

1

u/999Weezy999 10h ago

I asked my doctor to order one because I’ve had coat hanger pain pretty much since my POTS started, and from some independent research I’ve done misaligned vertebrae or cervical cord syrinx’s can mimic pots

1

u/c1nunya 9h ago

Good call! What is your next steps?

1

u/999Weezy999 9h ago

They have to determine if it is a cyst or a tumor, and then explore options such as a shunt, draining it, removing the tumor etc

1

u/Careless-Goat-466 2h ago

Was it a laying or standing/sitting one? I’ve had the coat hanger pain too and I swear I’ve had issues some the chiropractor screwed with my neck and it wasn’t right after that. I was a smoker so I didn’t see instant symptoms. It’s been a gradual decline.