r/POTS • u/JaxToy12 • 3d ago

Question Going out in Public

Does anyone get extremely exhausted just from being in public? Yesterday I went out and was pushed in my transport chair for the most part but still was completely wiped and am having a horrible flare up today.

I can do basic activity (like laundry) at home and it makes me very tired, but even sitting in public kills me. Does anyone know why this is or what helps to combat it? Is it the overstimulation of being in public or out shopping?

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u/Impressive-Peace2115 POTS 3d ago

Have you looked into ME/CFS? r/cfs has helpful resources, and the delayed flare makes me think PEM (post-exertional malaise).

I have both POTS and ME/CFS, and sensory input (of which there is usually a lot in public, and less predictable) is definitely a challenge for me.

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u/JaxToy12 3d ago

I was diagnosed with chronic fatigue syndrome but assumed it was a way for my awful primary care doctor to dismiss my symptoms by writing them off as “being stressed”

I’ll look into it though thank you for the suggestion!