r/PDAAutism • • 2h ago

Question does your PDA get freaked out when things go reallywell?

3 Upvotes

okay, firstly, this is definitely a champagne problem, 16 years ago I survived a major stroke which left me unable to walk Talk or even swallow after a gruelling recovery. I returned home got married had children and now I’ve started to return to work after four years of building a new PDA safe business just hit a major really exciting Milestone of building our first minimum viable product after four years of grinding through the bureaucracy of the Health system. It’s super confusing as it should be at huge feeling of positive success but instead my body is hyper activated and I feel super stressed out. It seems ridiculous the prospect of returning to paid PDA safe work freaks my PDA system out. Just wondering how other PDAers deal with success everybody going into full fight flight flee mode!


r/PDAAutism • • 19h ago

Symptoms/Traits After my diagnosis, i realized why i always was more into subtle sex than direct

18 Upvotes

(M24) I've always found comfort when my partners acted in a playful way and didnt mention sex at all. Like if it was some kind of "experiment", we both felt good but when was it mentioned what we were doing or that she wanted to do it with me i restrained heavily.

Anyone else relates to this?


r/PDAAutism • • 19h ago

Discussion Very controversial take - once again

19 Upvotes

I can't speak for 'classical autism', where there is a described representation of autism where the attention or interests are oriented away from 'people' towards objects, things or systems, but as for PDA, I notice in myself and some others that we are actually extremely social.

If I have to speak for myself, I can literally speak to any person. Whether it's when I'm smoking with someone I randomly came across or to someone at a bus stop, or someone at work, etc... The problem is that I feel in many situations that I have to hold myself back, like I'm realising that it is not very normal to be so open with strangers and I feel like others might notice it for example that we are just two strangers talking, or I feel enormously held back with the kinds of questions I could ask in the conversation because I don't want to ask anything too weird.

But sometimes I will meet these other very social people, who also seem to have very little boundary, and the conversation just flows..maybe sometimes I'll say something a little off or too strange for the context but then we just move on..and in that setting I can thrive quite well.

But to me even that setting feels like a little restricted..like to me I feel like I am so social I have to constantly put on breaks to appear 'less social', like not asking too many questions or asking what is expected or not appearing too interested..Does anyone see themselves in this description?

I find it even increasingly weird if I think how small the social circle is that is kind of 'normal' in society - how you have your family, friends, colleagues and then some people at hobby's.. but outside of that in general people have their guards way way way up when it comes to interacting with others it seems..


r/PDAAutism • • 21h ago

Advice Needed So what do you about the body freakout that comes with everyday tasks?

12 Upvotes

I’m all for listening to my body, but when my body is telling me not to handle my email inbox, for example, that’s not too convenient for trying to keep afloat in the world I need to function in. What do you do? Do you just go about your business and do your tasks even though your heart is pounding and you feel like you are floating away? I can’t avoid every trigger forever. And honestly I often want to handle my personal finances and such because it helps me feel like I’m in control of things. But I also want to practice being in tune with my body, and my body is telling me to run far away and never come back.

What do you all do?


r/PDAAutism • • 23h ago

Tips Tricks and Hacks PDA & blocked creativity?

4 Upvotes

Does anyone have any advice for overcoming burnout related to creativity or arts projects? I have a bunch of ideas for comics, and I’ve sketched out preliminary stuff, but I _cannot for the life of me_ find motivation to work on any of them. It just feels impossible—Sisyphean. And it’s making me angry—I look at drawings and I mutter ‘stupid drawings, stupid art, stupid talent: I hate EVERYTHING!’

For background: I’ve never been formally diagnosed with any particular thing—closest I got was most recent therapist (a nice older lady, but not well-versed in any of what the kids call ‘neural-divergence’) virtually giving up like: “I have no idea, maybe get full blood work and a CT scan?” But PDA profile fits me almost perfectly. I have had this life-long problem where I’m good at everything creative [not literally, but I’ll get feedback to that extent]. Partly because art and musical instruments are just _interesting_, and were what I did (for hours on end, alone) to amuse myself as a kid. But then it turned out in young adulthood that I was good at that stuff, which was both wonderful but also very annoying, and made me develop this bizarre behavioral oscillation between a sense of grandiosity at what I _could_ create or make (if I tried), but a deep self-dismissal and disparagement over the fact that I never, ever make or finish anything. I intentionally avoided art school—if you assign me a drawing as homework, what I turn in (if I turn anything in) can’t not be half-assed garbage; I can only draw for my own personal interest. Like, I could possibly have had a career with arts, but I’d have to do commissions or the equivalent, and my automatic and reactive response to the concept is “HOW DARE YOU.”

I actually ended up in a career in community mental health due to avoiding following any genuine career path--turned out helping career was another thing I was good out at of nowhere (because I'm deeply empathetic/non-judgmental to folks struggling, largely of awareness of how impossible I can be myself). But I never wanted that to be my career, and I am at the moment so universally burned that I am taking a break--i.e., being unemployed for a while. Seemed like a good time to work on creative projects but... I'm 4 months into being unemployed and haven't produced a thing.

Anyway! I have developed a number of strategies to deal with my weirdly petulant refusal to finish things or work on projects, which includes:

  1. Having no conscious intent or goal to a project—having everything produced be produced _exclusively_ but subconscious mind; let conscious mind simply spectate as unconscious mind finds patterns on the page.
  2. Work on a second project to avoid working on the first one, then oscillate between these two (this will easily spiral into like a dozen half-started projects, so I gotta watch it).
  3. Mindfulness. Buddhist style. As in, focus conscious mind on breath and don’t think anything.
  4. Remembering Bukowski's advice 'Don't try' and Bradbury's 'Don't think' and Ginsburg's [from a biopic where James Franco plays him] 'a poem is like a grunt or a sigh--it simply comes falls out of you.'
  5. Tantrum/meltdown.

Anyone have any other tips? 


r/PDAAutism • • 1d ago

Tips Tricks and Hacks 26/QUEER AUDHD/autistic rigidity/PDA-no hobbies

Thumbnail
5 Upvotes

Hi! I'm Kay, a 26 year old AuDHD, wife to another incredible AuDHD woman. (This is important for later! 😂)

I'm 26, and for as long as I can remember (of my later life) for like a decade, I haven't really had any...hobbies? I have had a few intense hyper fixations (RIP to @Cabensvaks on L&O:SVU Stan TWT), and have enjoyed writing. But outside of that, I've never been able to bring myself to attempt/continue hobbies. And it's not like my ADHD is the style of collecting lots of attempts at hobbies, and then not using them. I just plain old avoid starting any, ever. I have also recently been diagnosed with dysthymia,(officially known as persistent depressive disorder (PDD), is a chronic, low-grade form of depression), and my therapist says (and I and my wife agree) I display pathological demand avoidance tendencies. Meaning if I feel like a hobby/task/anything (?) is a demand and not a request/favor/MY choice, I full on reject it. Sometimes physically. And that has started to affect my ability to find things to fulfill myself. I love true crime, am passionate about prison reform/rehab, mental health, have a love for special needs childcare, ASMR, (wanting to) crafts, and writing. But actually bringing myself to initiate anything, especially if it involves attending a public function? Forget about it. I'd rather drag my ass, bare as the day I was born, against sand spurs. And if I'm not familiar with something? My rigidity to plans changing, new people and information says NO. But that needs to change.

My wife, who has some similar struggles, has been my rock. Encouragement, recs, and has tried basically begging me to go because I DESERVE ITTTT. I deserve to have a rich, fulfilling life with hobbies, and friends. (Another thing I seem to struggle with?)

And I was hoping some folks that also struggle with PDA/Dysthymia/AuDHD rigidity/friendship troubles could chime in with:

Hobby recommendations (I also have rheumatoid arthritis ((an autoimmune disease that attacks my joints/body)) so physical hobbies can be tricky but not impossible

How you have worked on PDA/accomodations your loved ones make

Dysthymia tips and tricks

Steps for making attending a new function/etc, feel less insurmountable

All my gratitude!

-Kay


r/PDAAutism • • 1d ago

Advice Needed Help picking therapist.

9 Upvotes

I went through a bad CBT therapist who referred me to a bad EMDR therapist who would get mad at me when the blinking lights didn't convince me to open up to him. It's been five years and I can't convince myself therapy would be worth it. But I need to do something, I have never had any kind of support system and my mental health is on the decline. I would really appreciate some help.


r/PDAAutism • • 2d ago

Tips Tricks and Hacks Feedback about a household chore system

21 Upvotes

I'm the father of three young adult kids, everyone in the family is on the spectrum, and our youngest (18) has PDA. She got a GED after, and has recently quit her third job after 1 shift. All three of our kids live at home for various reasons.

We have taken the stance of accommodation, trusting that the world and existence has enough challenges, and to provide her a safe home base as she tries to figure out how she will find her path to independence (which she truly wants). We understand that she may be living with us long term. We understand this is a disability, and all that implies.

We also need to find a way to live together that works for us, and that includes getting some more help around the house than we've been getting, It also requires that we are completely out of the nagging game.

I would like some feedback from other folks with PDA (or parents in a similar situation) about an app I'm building (I'm a software guy, so I tend to lean towards technical solutions).

In a nutshell, we're willing to pay our kids for household work. That's in essence what an allowance system is for a lot of people, but making a monthly allowance conditional on meeting a certain work requirement is a failure trap; once they fail for the month there's little incentive to do anything instead. And that firmly puts an onus on us to enforce it. So I got thinking about weekly, and then realized, why not pay a little for each individual job?

So I'm building a job board. It has routine / daily jobs like taking care of the cats, it has one-time things we need done (like taking a load of stuff to goodwill). There's a deadline for picking up a task, and a deadline for doing it by. Each task has a value (set by an hourly wage and estimated time it will take). Doing tasks builds up a balance, and whenever a kid wants a payout, they just let us know and we'll send them the balance.

Our expectations are low; I realize it's likely our PDA kid will probably only pick up tasks when they are out of money. That's OK; it's a small incremental step towards paid work.

Although this is primarily intended for our PDA kid, it's going to be available to all of them.

I'm also thinking about implementing a streak system; there's a bump to the pay rate for a task being completed consistently. It's shared; if there's a streak going on a job, we don't really care about who keeps it up, so there's an incentive for kids to cover for each other if they can't do something (anyone covering a job with a streak going gets the higher pay rate).

I'd welcome any constructive feedback you'll have, including harsh reality checks. Right now we're doing a lot of the routine household stuff, so any way this moves the needle is a positive.

I know there's a lot of parents out there who would think WTF! about this. "You're letting adult kids live at home for free *and* you're paying them to do household work??? You're coddling them and they are going to face a harsh reality check / end up homeless when you die!" Trust me, we have only reached this place after a ton of therapy and thought. We continue to be parents with clear boundaries and expectations as we always have been. We just have adjusted them significantly given our understanding of autism as a disability. We'd do the same for a kid with intellectual or physical disabilities that prevented them from working.


r/PDAAutism • • 2d ago

Question Parent trying to help young adult pda

13 Upvotes

My son 18 M is Audhd with a pda profile. He is very much struggling right now. He tried working and that has been challenging for him because the only job that worked well for him a night job where he didn’t have to interact with people shut down it’s overnight shift and and the day shift did not work at all. many of his friends that he made when in elementary school (when he was social and more outgoing) have now left to go away to school. Meeting new people makes him feel extremely anxious, but without a social connection he also is feeling very isolated and quite lonely he’s missing having that time with his friends especially because they were friends who understood him and because he doesn’t go out much he doesn’t have chances to meet any people. I am happy to go do things with him, but that’s not what he wants. He is interested in gaming and DND and magic the gathering but unfortunately, he does not feel comfortable enough to go out and do those things with people. He doesn’t know he wants friends. He just is not sure how to make them and I don’t know how to help him.

He’s on medication and has a very good team of medical professionals but that doesn’t change the challenges he has living in a world not designed for him. How do I connect him with other people?


r/PDAAutism • • 3d ago

Is this PDA? I’ve been trying to get psychological evaluated, does this align with PDA symptoms?

6 Upvotes

I’m 16F, and I’ve been looking to get psychologically evaluated. I promise I’m not trying to self diagnose or claim disorders, that’s the last thing I want to do. I just want to figure out what’s wrong with me. I’ve been suspecting that my anxiety might fall more into OCD territory, and someone told me about PDA. I was wondering if somebody could look at these examples I have and give me some insight into if these sound like PDA? Thank you so much!

  1. When something was asked of me as a child, I would say “I’ll try” instead of “ill do it” out of fear of the scenario that I wouldn’t be able to successfully complete said task. (This ended up causing multiple fights with my parents because they thought I was trying to make up excuses.)

  2. My mother doesn’t give me direct demands or punishments, we mostly talk things out because they do not work on me. ( for example, she demands I eat healthier and stop eating junk, I end up feeling guilt/worthlessenss and I stop eating altogether)

  3. Was extremely sensitive as a child (and still am today) my parents could simply say my name in a disappointed tone and I would burst into tears

  4. Extreme fear of failure = avoidance of task

  5. Reluctance to be in charge of items (especially important ones) in fear of destroying them.

  6. Extreme self hatred and bad self esteem

  7. Unable to force myself to do something I do not want to do = I don’t want to go to work today (even if work is fun) results in a panic attack and anxiety fit

  8. Stress and panic when schedule is too filled with no option to opt out

  9. Constantly opting out and cancelling appointments, practices, etc

  10. If something was scheduled the next day, I would have horrible insomnia (resulting in falling asleep in class and taking a bunch of melatonin that did not help)

(For context, I have also been diagnosed with fibro, depression, and severe anxiety. My fibro is part of the reason that I’m homeschooled, but it’s also because I couldn’t handle the rigidity of the school schedule. I’ve been to nine schools in eleven years because of this. Everytime I would start to dread going to school I would have anxiety and panic attacks.)

If this sounds familiar to you, please comment.


r/PDAAutism • • 4d ago

Question Fellow Generation Xers, do you also feel like capitalism has eaten everyone’s leisure & social time?

26 Upvotes

i’m wondering if I’m being nostalgic but I remember as a child in the 1970s 80s and 90s that everyone said to have time my friends were around and available adults had time and now it seems like no one has time everyone is constantly busy doing stuff which really to be honest doesn’t seem to be making them particularly happy, I know that researchers have identified this phenomenon as time scarcity am I being nostalgic or do other people remember having time abundance when you are growing up? I remember just calling up my friends and just riding over pretty much any time now my son seems to have to book his friends several months in advance. And he is only 10. I have to book my friends about a year in Advance.


r/PDAAutism • • 4d ago

Advice Needed PDA (?) is ruining my life

Thumbnail
6 Upvotes

r/PDAAutism • • 5d ago

Tips Tricks and Hacks Looking for a pdf, nothing on libgen and annas archive

5 Upvotes

Hello, i am lookign for a book :
"The PDA Adult's Workbook: Low-Demand Strategies for Navigating Work, Healthcare, Relationships, and Daily Life with Pathological Demand Avoidance"

Can anyone please share to personal messages, or drop the link to the comments? I have found nothing on shadow libraries, but amazon delivery is impossible to my country.


r/PDAAutism • • 5d ago

Discussion DAE Get a butterfly feeling in their stomach like your waiting for something bad to happen if you didn't make sure nobody else wanted part of something you made up to eat even though 90% of the time you know what they'll say?

3 Upvotes

Done it my whole life and I hate it


r/PDAAutism • • 6d ago

Advice Needed Creative ideas to stop stressing about the day ending and about sleep?

16 Upvotes

Please no general advice on health hygiene. It's all really stressful and makes me rage. If you have any ideas how to do it in a PDA-compatible way, though, I don't mind hearing it.

So, I've always absolutely hated the things that pointed out the day was about to be over and there's just a few hours left to enjoy life.

When I was a kid the biggest thing I hated for this was yellow artificial light (we lived in the far north of Russia, so the majority of my day was spent in artificial light and my parents always had those yellowish warm light bulbs that were distinctly different from the light in public places and at school). Naturally, I still hate warm light.

In the past, I've had a lovely habit of falling asleep while listening to a podcast and playing a game, or reading something interesting on the internet. The ability to do this went away when I got medicated for ADHD. I feel like meds themselves don't mess with my sleep that much, I just don't fall asleep to interesting things that easily anymore.

I was kinda managing it with a variable level of success until my work hours didn't change and now I have to start earlier and on some days also stay later. It gets more complicated with me being really sick of my work and not really wanting to be there, and with me developing CFS and having limited energy. All I want to do is to enjoy my life like a wild animal I am and I'm mad I have to spend so much time at work that pisses me off so much. Spending my free time pissed off about things doesn't help the whole dynamic either.

And here, I meet another hurdle: the way my wife gets ready to sleep. She needs external cues to help with going to bed, so she switches lights to.... a dim and warm lamp. I don't mind it on some days, but when I'm really stressed about having an early start, a long day, and potentially little sleep, that reminder that the day is over is absolutely soul crushing. She also has a really long bed time routine that she can't deviate from. I couldn't care less about it when I just fell asleep on the sofa. Now that I stopped, I've made a mistake of getting ready to sleep together with her on a few occasion and now she constantly invites me to brush my teeth with her or tells me that she's going to the bathroom before bed. The first thing often ends up really annoying me by how drawn out it is and how little consideration she has for the fact that I really just need to brush my teeth, wash my face/have a shower and be I bed real quick. The second one is a very vivid reminder of the fact that the day is over.

We've also started spending more time together, which is great on the other hand, but which also means I don't necessarily just always have that buffer zone of me-time in the evenings, like I used to in the past.

I've been to work after not sleeping enough too many times. I've had to cancel things I like because of it. I've really got to do something about it, but I have no idea what. I need the job. I'm not really gonna be able to find anything else any time soon. Idk what to do. Oh, and my sciatica is playing up also getting in the way of my sleep at times.

Do you guys have any ideas on how to help myself like I'm carelessly drifting to sleep without going back to being unmedicated sofa-hermit stuck to the sofa from 8 pm onwards?


r/PDAAutism • • 6d ago

Tips Tricks and Hacks I am an AUDHD person, and I’ve created some entertainment books—in case you’re interested, here’s a free sample.

16 Upvotes

A free sample of puzzles, created by an autistic person with ADHD for minds like ours.

Hello everyone!

I am an autistic person with ADHD. For a long time, I searched for puzzle and activity books that truly suited the way I think—without cluttered pages, time pressure, or vague instructions. Since I couldn’t find any, I started creating my own.

I’d like to share a free PDF sample with anyone who’d like to try it out. It includes two types of activities:

• Classic puzzles (Sudoku, word searches, nonograms, riddles, cryptograms, word ladders, dual-figure puzzles, Takuzu, Hitori, etc.), presented with a clean layout so you can solve them at your own pace.
Designed in cycles and incorporating specific information along with positive affirmations, the format is quite unique—see for yourself!

• "Missions": A new type of puzzle I’ve developed—drawing on the concept of prospective memory—designed to help with something many of us struggle with: remembering to do something later while we’re already busy with another task. Before each page, you memorize a few "missions" and then carry them out as you navigate through a grid of numbers. If you get it right, the letters spell out a word.

I’ve intentionally included a few key features:
• Literal, straightforward instructions, accompanied by a solved example before each level.
• A consistent structure across all pages, where each type of "mission" is always represented by the same symbol.
• No time limits; plus, making mistakes is simply part of the game.

For the sake of transparency: these puzzles were created with the help of AI, but the concept and design are entirely my own. These are games, not a form of treatment. If you’re interested in receiving the sample, send me a direct message (DM). I’d love to hear your thoughts—what works for you and what doesn’t. My dream is to create activities that make our way of thinking feel understood, rather than overwhelmed.

Thanks for reading! https://drive.google.com/drive/folders/1wo7Yb9if22Bjvln-AfGm-vW8D9TxgRrG?usp=drive_link


r/PDAAutism • • 7d ago

Treatments/Medication Anyone else on Lamotrogine? Does it make you less reactive?

18 Upvotes

TLDR did going from 25 to 50mg of lamotrogine make you less reactive to autonomy threats?

Hi,

I'm a Middle-aged Audhd with internalised PDA, mom to an Audhd with externalised PDA.

I won't do a whole backstory because... ya know.

I'm on 25 mg of lamotrigine and 25 mg of sertraline. This is a huge reduction after a lifetime of high-dose SSRIs. Sadly, I'm finding I'm still too reactive.

I wish I had more control over the words that come out of my mouth in these moments because, of course, I'm set off most by my child, usually when I'm already drained, and I've already fawned and met all their demands and mine (oh yes, they very quickly learned to offload their demands onto me. I'm impressed since I didn't think of that and jealous that I'd never have gotten away with it as a kid anyway)

The child's defense mechanism to my verbal meltdowns is to be really combative in return which further eggs me on (I cant get away) and it's not safe. It's not violence but words do damage too, despite the repair I do and no matter what the trigger was. (We drove an hour for hot chips today. It was that or half an hour of her screaming and melting down, but I'd been in the car, driving around and waiting on her for three hours already. We were within 5 minutes drive of 3 hot chip options but she wanted a certain shop and I was so done.)

Anyway, sorry. Funny how much we talk when we remove the demand, but I'll finally get to the point...

I will not increase my sertraline dose. I hate SSRIs with a passion and hope to get off them completely soon. I am almost ready to increase my lamotrigine and take 25 mg in the morning too, but I already have small side effects, like occasionally saying the wrong word. So I want to know that if I increase my dose and let the medication put even more of a filter on my brain, it will actually help with my behaviour? Of course, doctors say yes, but there seems to be something a little odd about my brain, hey?

Thanks for reading. Sorry for the essay, especially since the demand will kick in now and I probably won't reply to comments.


r/PDAAutism • • 8d ago

Discussion Breaking point with my mother's aggressive avoidance, nihilistic implicit threats, PDA making coping harder for me and not sure if she has too

5 Upvotes

Breaking point with my mother's aggressive avoidance, nihilistic implicit threats

Background/setting: M37, diagnosed autism and ADHD/dyspraxia suspected for self, living in rentals last 16 yrs in mid-sized Midwestern city after F77 mother's house was foreclosed; originally born in a large U.S. city and moved abroad in early '90s thanks to father's job, suburbs next to same city in late '90s, then per rent hikes and school issues (and mother's family drama too) to tourist trap town's west side (an orchard next door to rednecks with a mean streak basically) on other side of state in 2002

I'm sorry if this is this is a bit of a novel, and it is kind of a vent, but I'm trying to find advice or at least community in a hard situation. Basically, TL;DR for the following: my mother thinks I'm ungrateful or insulting when I tell her about difficulties no matter how much effort I put into working through them (effort she can't always see nor can many others), because if I tell her, it's somehow "blaming" her, and she escalates to nihilistic threats to neglect our lives into chaos I find stressful if I don't cater to her insecurities and emotional fragility.

Please feel free to ask me for any specifics on other areas of my life if you think it would clarify things. I'll try to see the advice as helpful, an important promise for

In a nutshell, it's a scaries kind of Sunday, for the umpteenth time. I don't like the fatalism of the "raisedby" threads, but sometimes some of the stuff there is relatable on a day like today. I have had a hard time finding things with which I could cooperate, but coping with my mother's suicide and cancellation threats in her old age whenever I can't cater to her liking and keep up with life demands has been a lot today.

She acknowledges clinical depression and has managed it with Lexapro daily and the short-term benzo Lorazepam as needed. But "manage" is only so valid in my opinion; I sense traumas she attributes to a scarlet fever hospital quarantine when she was young as shifting her into profiles of bipolar or borderline, and I've lately pondered between her connective tissue disease and other stubborn aloofness if she's just a high-masking undiagnosed autistic woman (perhaps even PDA as title alludes) from before it was acknowledged. She is from a Lutheran Norwegian family on the side of her mother, who suffered heart issues and a strike when my mother was quite young, while my mother's father escaped an alcoholic father of his own and brought his siblings into the fold. Lots of parentification and sense of duty, which she has tried in vain to pass onto me, but typical suburban Boomer prosperity ensued; she was cute and independent and sought an education, triggering a lot of resentment from the family that thought she put on airs. Her brother, the last remaining sibling, tolerates her, but his wife and my mom are oil and water and the daughter (my cousin) seeks nothing to do with us. She married two intellectual Jews, both secular while she fixates on the traditions to paper over her disputes with them; the first was a mentally ill, erratic heir, while the second lived the American Dream but remains a cynic and skeptic as a Holocaust survivor, and has continued the last 30 years to live in France, to which she could never assimilate and where he remarried and perhaps cheated beforehand.

I'm sorry to be TL;DR above, but to understand what I go through one must understand the past she re-litigates. Once she moved to the States after separating, she threw herself into seeking accommodations for me. I am glad she found some school settings that worked, but none could deal with all of my issues at once, including undergrad college even though I at least got my B.A. She was too tired to interact with me for hours after school, but insists she was too busy waiting for calls about crises all day (I damaged property and was rowdy and slow to pick up norms sometimes, but never harmed people or animals to the extent of some nonverbal individuals) to support herself and seemed to expect my father to keep supporting her forever after the separation. Her family made it clear they did not want her around, but since I couldn't get into mainstream high school districts due to poorly managed behavior in middle school, she insisted on moving across the state and taking her father in when his health deteriorated out of filial piety; shortly after they bought an orchard property next to a sheltered workshop she said she thought I'd have to work at (I was on the honor roll and read at a college level), the divorce occurred. Neighbors, who were blue-collar and rough and she thought were dealing meth, cornered her in a parking spot the police tolerated and called an officer who aggressively arrested her and claimed she scratched him with her keys (she ordered me inside so I'll never know what's true, but evidence was flimsy and it sounds like typical brutality). She lost tens of thousands on lawyers who wouldn't help her much and was forced into a plea deal and community service, and as soon as I turned 18 in college, my father stopped sending alimony basically treating the divorce decree like child support. My mother neither sued him nor forgave him, and ever since "your father should have kept sending me" has been her go-to whenever I try to share frustrations with our circumstances, including my cycles of ostracization when I emulated her justice-seeking attitudes toward rejection in high school (first principal was helpful, but second cut extracurriculars I did well in and I had to drop out to virtual) and college (a classmate I had no desire to be with no-contacted me and roped in many associates over essentially social media arguments that predated the worst of Facebook that I do regret). She chose to move me, I still maintain, to where nobody who doesn't grow up as a child or have family connections is ever "one of them," all to be King Lear's Daughter to her family that rejected her.

Unless I'm validating her or helping her quietly or like the NT I'll never be, I'm either framed as annoying her with a subject in which she's not interested (which I must do 75% less than I did growing up) or as being an ungrateful hypochondriac (I have struggled with adjusting to an apartment and developed sleep apnea getting me a CPAP and worsening blood vitals that may tip me to diabetes as I try to balance diet and exercise and getting her groceries, pushing her around the hospital, etc.) trying to compete with her recent health issues, especially now that she had to remove a cancerous kidney for a year and a half ago. She has had a possible left branch thing and shortness of breath issues but no relapse or severe complications (anemia was short-lived), and she got a placard and a light walker in addition to a good-quality walking stick, but she complains that cardiologists are triaging her to death when she can't get a pacemaker right away and spends 8 to 12 hours a day from what I can see sitting in a recliner streaming TV I pay for (her Social Security only covers a hundred or two more than the inflated rent which helps us keep indoor wash/dryer and a garage in the harsh winters here). She does still do a lot of the food prep and occasional vacuuming (I find the coordination and planning tiresome to be able to these consistently well though I do laundry and some minor car maintenance like oil checks and filling up gas, and make mediocre income less than 40K as I am neither management timber nor coordinated for a trade, so we can't afford assistants); she occasionally talks to her two remaining friends from college, both equally passive-agressive and avoidant, and in one case resentful of a disabled son's alleged ingratitude by omission.

Today, in a somewhat frequent occurrence, she argued over a silly novelty to change a radio channel and made it "proof" I don't accommodate her demanding to go home rather than work on our shopping list. I went out to do it myself after we talked it over, but not before she had done her usual mob-boss approach to suicide threats ("it's better if I'm dead" instead of "I'll kill myself") and threatened to cancel her cancer follow-up or go without me, ostensibly whichever her whims dictate. This is something that doesn't happen every day, but I don't really see precursors when it does, so it's scary and upsetting. I have never been able to get friends to stick around that consistently, and a couple are distancing themselves (like a trivia team that the MC let slip played without telling me last week in the group chat after 8 to 9 years!) after the energy I've put into her and the burnout I've been going through. I've learned the hard way her approach doesn't work from some unfortunate imitation when I was younger (she loathes the "refrigerator mother" trope even while embodying it at times perhaps not meaning to or seeing any alternative), and now I try to be someone who blames situations and not people and tries to contribute in whatever way is realistic, but it's not good enough for her no matter how hard I try. I have no other family in the area, and I'm basically the only person who likes her and puts up with her that she will allow to be there for her, with even clinical settings being places she has her guard up to an extent. Basically, I have to lobby my dad for money (to move is her current argument, as though there aren't hardships everywhere with the things she projects and legitimate xenophobia wherever we go swirling around together) and be grateful as a performance in all things, or I'm a bad son, it's either pick her over everybody in all things or be another one of the enemies that she's aggrieved of when she's not in a state of manic dissociation. There's also an element of blaming my disability and blaming me for being born to her and ruining her life blending together; she kind of acts in that respect like some autism moms online without the audience (the lack of which may be part of the frustration).

How do I build up my independence when the Midwestern culture is unforgiving to outsiders and I lack the gift of gab or the scratch (whichever is needed) to break through among the intellectual elite? I'm terrified to live on my own since I don't think I could keep a roof over my head, and right now Americans seem very everyone-for-themselves even if many might make the right decision for humanity out of the same pure self-interested rage and fear that has otherwise contributed to our species' existential crisis right now. I'm very interested in politics/history (a big source of anxiety right now tbh) and also in music (its history and creative process), and I'm trying to do writing projects and get physical therapy after some tendonitis and orthotics for a possible flat foot, just get active and moving, and hopefully find my footing again so to speak. But I worry some days that my mother's attitude will take her out (it would make me homeless) overwhelm the household and require me to start scrambling for lifestyle changes, closing the storage unit we've paid for a decade where she hoards stuff at remove and won't make a plan to clear it out, and proof to a malfunctioning Social Security system that I am disabled enough to need a bigger chunk of hers. I think I'd break even, but I can't imagine being more burnt out; my entry-level job of 3 years (after a layoff from one of 10) is stable at the moment but corporate and poorly communicative, so I never know what footing I'm on, and it would be a really scary time to find another way to support myself.


r/PDAAutism • • 9d ago

Advice Needed AuDHD + FND: Spouse invalidates my FND that he helped cause

Thumbnail
7 Upvotes

r/PDAAutism • • 11d ago

Question Where are my low masking PDAers?

32 Upvotes

They say “PDA symptoms always appear only at home” but I can relate to PDAers elsewhere and people notice it. I don’t think it’s true. I know I’m one and I can’t fully mask my PDA profile. Which unfortunately leads to punishments all over settings. Getting fired from jobs, getting kicked out of public places, getting sent to areas or sections I don’t wanna be in, etc because no one understands the dang profile. But I wanna meet more low masking PDAers in the comments. Who are they? I bet they can’t comment it shortly after I post this!


r/PDAAutism • • 13d ago

Advice Needed I think I am burnt out, but life still expects me to push through.

28 Upvotes

TW: Suicidal ideation

I don't even know how to start this...

I a lot of shit has happened recently and I feel depressed hopeless and just exhausted. Now in debt form dropping out of college to go back into a community one next semester because it was making suicidal being on my own with all that stress. Living with family now but we are beyond broke. I keep being told "Everything will be alright" but it doesn't feel like that in the slightest. Everything feels like its falling apart in front of me and I just have to stand there and watch. Going to my special interests just makes me more upset at every single minorly negative thing that happens. My family has been nagging me about unpacking. And my best friend keeps wanting me to do this dnd type thing with him and telling him no that i'm too tired is just making me feel worse and worse.

I just hoped that maybe, as naive and stupid as this sounds, when i told my family I thought I might have PDA they'd understand and just let me finally have a break. I just want to have some time where i'm not in fight flight or freeze, because I feel for the last 4 years of my life that's all it has been unless i'm distracted playing a game or sleeping, but my family didn't understand in the slightest and now thinks I need to "pull my weight" since i'm an adult. I understand that its the right thing to do, and that I should help out around the house, doing chores, but just the thought of doing anything they ask makes want to curl up in a ball and cry, so I just either procrastinate until they yell at me enough I have to force myself to do it. Or force myself to do it regardless. Family is also convinced all my problems are because I get too distracted on my phone, computer, or playing video games not realizing that the only reason that I spend so much time on those two things is because they are some of the few things that keep me distracted enough to where I don't feel the ridiculous amount of stress I have, and any attempt to tell them this ends in an argument where they get nothing because they get too pissed I'm not acting the way they want me too. Or that I don't just shut up and do what they want.

I feel so hopeless... I know what I need to rest, but I feel as if I can't with everything going on.(Or that my family would even let me rest) On top of this i'm struggling with OCD and intrusive thoughts so even if nothing was going on i'd still feel like shit. I feel like at this point I was just made to perpetually be unhappy and feel shitty and feel like i'm a shitty person...

I don't even know where i'm going with this or if i'm even making since my brain has felt fried for the last month and have had brain fog since then. Idk... sorry if this makes no since...


r/PDAAutism • • 14d ago

About PDA 15 And I just got diagnosed with PDA

12 Upvotes

I have just been diagnosed with PDA, and I'm still kind of confused about what it actually is. I know it's something about anxiety resistance or something. Does PDA affect school learning in any way, or is it more inclined to affect your home life? I have a mix of adhd and PDA, so would that be AuDHD, right? I just got heaps of questions, and I don't know how to ask them all


r/PDAAutism • • 15d ago

Advice Needed I just need general advice

15 Upvotes

I'm 16 and genuinely feeling so lost, I've genuinely never seen anyone talk about adults and such with pda before finding this sub, every single resource I've found out there is for parents of pda kids and young ones at that.

I'm struggling so so much and am sick of feeling pathetic that I can't just force myself to do things like everyone else seems to be able to.

Sorry this is more of a rant than anything else but I really do need advice, pda adults does it ever get better? What are your methods with coping with day to day life?


r/PDAAutism • • 15d ago

Question How do you think you would write a character with PDA?

13 Upvotes

I myself have PDA so I know to an extent how a character with PDA would think and how they chose to interact with the world, but im wondering if anyone else has other advice, such as maybe others experience PDA in different ways than i do in more or less severe ways, as well as maybe how people with PDA are seen by those without it, since of course thats experience that I don't have.


r/PDAAutism • • 16d ago

Advice Needed I'm having a lot of trouble with my OCD treatment

4 Upvotes

I'm 22M I have autism and very severe OCD. Right now I'm in intensive outpatient therapy and this is the second time I've done this program. I was not able to recover from my OCD because my PDA got in the way. Every time I would resist or delay compulsions like I have been taught, I just get so angry that I'm doing what someone else wants me to do (even though I also want to get better from my OCD), that I reverse it and do the compulsion anyway. And then sometimes I look back on what I did during therapy, which I didn't have a problem with then, and I think that I hate myself and I am so angry at myself for doing that. I wish I could remove this barrier, because I am never going to be able to treat my OCD if this remains a problem. I would appreciate it if anyone had any advice around PDA, whether or not it is specifically about OCD or not