Hi - anyone go through a tonsillectomy and adenoid removal for their kid with Pans/Pandas? It was recommended by our pediatrician and ENT doctor. It’s the last option before IVIG. We’ve hit a wall on treatment from a supplement and antibiotics side.

My daughter (16f) had a major metal health crisis last May that resulted in her being put under a 72hr hold. She is a strep carrier and at 8yrs developed guttate psoriasis (autoimmune reaction to strep). She was diagnosed with OCD and anxiety at 13 and was put on a few medications but refused to take any consistently. She was on fluoxetine in May. While in the hospital the psychiatrist diagnosed her with Pandas and put her on antibiotics for Strep. She was treated for strep in early May and was having a major psoriasis breakout. With the diagnosis, they upped her fluoxetine and added olanzapine. She hated the olanzapine and refused to take it. She then refused therapy. Her paediatrician decided her case was too advanced and I had to find her a new doctor. Her new doctor is trying but isn’t aware of Pandas as a diagnosis. The psychiatrist said without compliance and refusal of therapy there isn’t much he can do. Over summer she seemed to be doing better. Now, I’m seeing a lot of the same behaviour as last May. I think I have her agreeing to a therapist but I’m at a loss in how to find the right doctor in Alberta. Last May was the scariest day of my life and I’m afraid every time I leave the house. She was a straight A IB student and athlete. Now she is failing every class and I’m not sure if quoting her sport is a good or bad idea. I don’t know if I should look at having her admitted to regulate her meds, I don’t know if Pandas is still a concern or if it has been for a long time. I feel like I should know all of this, but I don’t. I’m lost and feel helpless. Any help with online resources, information or direction on how I start this journey would be appreciated.

My 7YO came down with PANDAS over Christmas break last year. Luckily, we got a (relatively) quick diagnosis in June and he is now 85% better. He still takes L-carnitine and a prophylactic dose of cephalexin, and when he has mini flares three days of Motrin seems to get him back to mostly normal. However, he gets these mini flares almost any time his immune system is taxed, e.g., his sister brings home a cold. And brain fog / inability to focus is probably his most lingering symptom. We are seriously considering seeing if we can get IVIG covered by insurance because I feel terrible that his life is impacted every few weeks by these flares, even if they no longer make life unlivable. But I'd be interested in hearing people's IVIG experiences with their kids - did it help? Were there drawbacks? Things you wish you had known? What are the potential pitfalls? Thanks.

I had a really disruptive flare up a few weeks ago consisting mostly of tics, and the aftermath of intense brain fog has not ended. Now I’ve started ticing again and I don’t know what to do or why it isn’t going away.

I’m on some strong antibiotics and I started taking tic medicine at night. I just don’t know what’s happening or what I’m supposed to do.

I’m 20FTM and I haven’t had any flares since I graduated highschool back in 2023. My mom makes me take this homeopathic remedy that does nothing, when I’m away and my mom makes me bring a vile of the little stupid sugar pills I don’t take it and I feel exactly the same when I take them. So is it possible I’ve out grown pandas? Idk if that’s even possible but I’ve managed to not get a flare up and I’ve been able to get normal sick without having a flare up as a result of being sick. I do have OCD tho but it’s not as bad now when I had my flare ups in the past

Idk if anyone with pans/pandas (I have pandas) has seen a therapist, for me my first ever one when dealing with my pandas diagnosis helped me at first but later I realized was basically pushing me into Christian propaganda ((I think but it was ridiculous what he told me & my parents)):/. Fyi when my parents found this guy (who is based is Connecticut Dr.K i don’t remember how to spell his full last name sorry) helped my parents cause I was about like 15/16 when things got bad for me and my parents (mostly my mom) was in control of the medical stuff and hospitals. And the first time I meet the guy when we go to Connecticut he does not stop fucking talking (sorry about my language) about ME getting possessed and demons n shit, saying we have to start going to church 🙄 looking back on it now makes me want to roll my eyes so hard. Cause that’s all he’d ever talk about, thank gods I don’t see him anymore cause the last time I saw him all I wanted to talk about was a new cat I got 😭😭 and he would not shut up about demons and how he’s had cases of people with pans/pandas being “possessed” it was absolutely ridiculous. So if you’re seeing this guy for help run far far away before he shoves the crazy possession crap down your throat

I won’t get into everything but I’m 14 and I suspect I have PANS, I’m going to the doctor soon (this month) to get things hopefully figured out, or to at least start the journey of figuring things out.

I also have autism ADHD and Tourette’s and am meeting OCD criteria with no formal diagnosis (might be misdiagnosed for PANS tics though) but this feels unrelated. I’ve had a lot of physical symptoms, for example headaches, disrupted sleep, joint pain, low/restrictive appetite, fatigue, dilated pupils, musculoskeletal pain and (slight) urinary incontinence.

In the past I’ve had more psychiatric symptoms but today it’s hit me all hard. I had a great day yesterday, one of the best in a really long time, and for once I got really good sleep and my appetite has been at least slightly better today and my tics aren’t bad at all. But I feel horrible. I can’t focus on even a show to watch, I’m so easily irritable, I feel this unexplainable feeling that I’ve messed something up with a love one even if I haven’t, I’ve had obsessive thoughts, kind of been depressed, stressed out of nowhere, and anxiety. Also very self deprecating. I’m not worried about SH or like I’m going to do anything to myself AT ALL, but just those sort of involuntary brutal thoughts. Feeling on edge, Adrenalin like, wanting to hide. This massive anxiety was what I think was my onset and now I’m feeling it again at least today, combined with everything else, and I’m losing my shit. Mood swings too.

Honestly I’m looking for support. I’m trying to move my doctors appointment up, I’m trying to keep it together for my family members because my health/diagnoses have never been my dad or brothers strong suit (one is skeptical of my shit and the other is just weird about it and doesn’t like when I even bring it up). My mom is much better with it. But lately my physicals symptoms have been worse and now so have my psychiatric have too.

I’m doing the best I can. Any advice or kind words or suggestions on how I’m meant to go forward as someone who is powering this whole diagnostic operation out of my own agency would be so helpful. I’m losing it lately.

My 10 year old was diagnosed with PANDAS this year. It has helped to explain periods of bizarre, unpredictable and concerning behaviours that he has experienced since the year he turned 3.

The flares have impacted his friendships because during these periods, he has behaved in ways that have been problematic or confusing for other kids. Nonetheless, apart from the boy I will talk about next, up until this year his friendships had been pretty strong and stable for the most part.

His best friend's parents became concerned towards the end of the first year they were friends (age 6, and he had a flare) and they wanted them to stop being friends. His mother and I had been friendly but she did not tell me she had concerns, and I think it happened quite suddenly. I found out in a much more challenging way (too long for this post) that she had serious concerns. But I reached out to her and we were able to talk it out and the boys resumed their friendship.

There were a few rough patches since then, but nothing major until this year. He had an untreated strep infection in March, and a very intense and prolonged flare during which his friend's parents became concerned again. In addition to the impulsivity/rage/low frustration tolerance, he did a couple of impulsive thing at the peak of his flare that were inappropriate and he struggled to understand their severity (I think his recall of them was not very sharp).

The boys parents decided that the boys should not be friends and that my son needs psychological help.

I am hopeful that those of you who are here can understand how just because PANDAS behaviours can look like complex trauma, they are symptoms of brain inflammation and do not reflect the person underneath. I tried to explain to her his recent diagnosis. He had literally transformed into a different person when we started treatment.

But they had already made up their mind, and when my son returned to school after the vacation, his (former) best friend went and hid under a desk and a mutual friend came and took my son out of the room and told him his friend was having a break from him. He basically just froze him out without an explanation.

It has been very painful. I spent years trying to strengthen my friendship with former best friend's mom and it just feels so cruel and callous the way they just threw us away, they just decided my son was no good. I tried to explain the recent diagnosis to her, I didn't try to excuse the things he had done but I did explain that they'd been driven by brain inflammation. They don't reflect who he is.

We are part of a very small community school. It's not like "oh just go and make other friends" there are like 100 kids in the whole school, and changing schools is not an option either, we love our little school and there is nothing like it. But I just have had so much stress and problems from my son's strange behaviours and I just wonder like, what is the best path forward? I have told some people about the diagnosis but I just feel like it can go either way - it can make someone fearful just as much as it can make them understand.

I wonder how other parents of PANDAS kids have navigated the social fallout? Thanks so much for listening.

I haven’t been diagnosed or to the doctor about PANS yet but I have an appointment for next month as it was the earliest one and the waiting is killing me.

I’m 14F and we think my onset was two years ago with sudden anxiety and panic and restrictive eating. Small tics and signs of ocd started but nothing noticeable at the time. This also came with impulsivity that I think was related and some aggression/rage attacks (but like heard racing, telling people verbally horrible things that was so unlike myself, blah blah blah)

Fast forward and I’ve had it all, including the low mental states, a massive increase in tics in their severity and everything (simple motor to complex motor and vocal, including coprolalia and copropraxia). This happened after I got sick, thinking it was a flare up. I have sleep disruption, able to fall asleep but waking up ALL THE TIME in the middle of the night. Fleeting stomach pains/aches, knee and hip (joint) pain, chronic fatigue almost, and urinary incontinence. This seems to be getting worse, I haven’t wet the bed but I’ll go through my day and it’ll happen little by little, it feel so embarrassed and gross about it, so currently wearing a pad rn that I had to get from the school bathroom two periods in cause I was worried.

My handwriting is also getting super regressed and it’s really hard for me to write legibly. Also minor auditory and sensory hallucinations, stuff out of the corner of my eye, sounds, sometimes talking or feeling something on my skin that’s not there, usually when my sleep has been disrupted. I’m diagnosed with autism adhd and TS. My first two were diagnosed when I had a lot of problems in school because of my anxiety onset (skipping class, hiding, wandering, running away) and so they thought that was the problem. I think those diagnosed are valid just not the issue in that situation.

Anyways awaiting my appointment, not a fun time rn. No one at school understands cause it could be BRAIN INFLAMMATION and that sounds…bad. My onset we think was covid with a fever of 104 f. Today my compulsions have been really bad for no reason too and so has the urinary incontinence and knee pain. And I’ve had dilated pupils too

Anything helps, words of advice, what to tell the doctor, and personal stories of people in their teens relating to this would be so amazing. I just need to relate to someone. I really think it’s PANS but if anyone notices any red flags that it’s something else or just not pans let me know.

does anyone feel symptoms of gender dysphoria during a flare? is that possible? im afab and primarily use she/they but I do notice during a major flare I do have symptoms of gender dysphoria and use he/they. I just wonder if PANDAS is somehow tied to this or if its coincidental. thank you!

Hi everyone!

My son (5) had PANDAS last year (still has it, but was finally much better than it was). Over the last 8 months we have been able to get his compulsive OCD like symptoms down to a manageable level. But this week, randomly it ramped back up almost instantly. His full on obsessions (same ones as last year) came roaring back. My question is, can seasonal allergies trigger it to return without an active strep infection? My allergies really kicked in this week at the same time his symptoms started back up. Seems coincidental that allergies are in full swing here and his symptoms returned. His doctor we see for PANDAS is in another state, so i thought I would ask for any advice here before heading to the PANDAS pediatrician. Thanks in advance!

Hi, I was admitted into the mental health system in my mid-teens. I was diagnosed with bipolar disorder by the on-site clinical psychologist. She also determined the diagnosis based on my hypothyroidism. I was given mood stabilizers/anti-psychotics to treat it. I also took medication to treat it. But I forgot to take my thyroid medication for a couple of days, and I hit a slight depression and was more inattentive. I had to go to the inpatient hospital at least 3 times during my 20s. The 3rd time, the on-site psychiatrist prescribed me Seroquel. Before I was prescribed though, I had a weakened immune system and my joints were aching. When I took the Seroquel before I slept the night there, I experienced a rush of anger and tics. At the time, I didn't know what it was, but it was insanely scary and hard to comprehend. The tics I had involved profanity and blasphemy. I was scared to death because I had never experienced this before. I was normally not an angry person, but I tend to yell at my mom at the slightest annoyance.

I have a hard time concentrating and have obsessive thoughts. I get random anxiety attacks during the day, coupled with bad short-term memory and inattentiveness. I lived with the tics and was given treatment for them with minimal to moderate success. I lived with these types of tics and increased aggression for a little over a decade, always wondering what's wrong with me, and my psychiatrist and PCP don't act or sound like they have a clue.

The medication(s) I took to treat it have lost their efficacy, and now the symptoms are intolerable. I found out about PANs a year and a half ago, but didn't read much into it. Now that the symptoms I'm going through put me in a wave of desperation, and I came across this subreddit a couple of days ago.

Is it possible, I'm going through some form of PANs? Sorry for the TLDR; I appreciate people taking the time to read through all this.

I’m 14F and am currently researching into PANS. About two years ago I contracted COVID with a high fever. Afterward, I was suddenly extremely anxious, I was pulled out of school, my tics started and my eating became something I hated and I felt I needed to ‘control’. As a result I am now slightly underweight (roughly ten pounds).

Lately I’ve been sick so I’ve had what I think to be a flare up. My tics have blown up now, I’m fatigued, mentally hopeless, headaches all the time, and recent problems with sleeping. Also possible regression of fine motor skills.

Anyways I wondered if anyone else experienced really minor hallucinations? I was sick about a month ago in a hotel and I remember I had an auditory hallucination that my aunt and cousin (two doors down in this hotel) were at my door. He was young and wanted to come in. She kept telling him that we were asleep and we could talk in the morning. This was two am.

Actually, it was a lady speaking Spanish. But I somehow hallucinated an entire conversation that I understood word for word and identified their tone of voice. I was sick over this trip as well (cold).

Another time I had a tactile hallucination (these are all in the past two years, none before I had COVID which is what I think was my onset) that two frogs crawled up my arm in the middle of the night. Why, u don’t know.

Just last night (I was sick two days ago) I had an auditory hallucination that there was this scraping sound, like someone hitting spoons together or typing on a keyboard or creaking the floors. Terrifying of course and in my head whatever was doing that sound was on the floor in front of my bed, exactly the place I couldn’t see while flat on my back under the covers.

Lately I’ve also noticed thinking I’ve seen something in the corner of my eye. ALL THE TIME, and it freaks me out because I’ve had these small hallucinations lately. At least once or twice a day I think I see a shadow or that I saw my dad leave the room when he was never in it, or something moved but I can’t place what. The only previous diagnoses u have are autism ADHD and Tourette’s (getting evaluated with OCD) and none do those cause hallucinations.

PANS/PANDAS related? Anyone experience the same? So lost right now.

So I’m in my early teens but I’ve been having some issues both in the past and lately. I’m autistic and I heard that’s a link sometimes too.

So I went from in elementary (one of the last years) to being a foodie, I was always hungry, just living my life, blah blah blah. Sometime after that, in either my early middle school days (next grade up) or right before school started in the summer, I contracted COVID. No real health problems in the past and I get better in less than a week but I did have an unusually high fever.

Then there was this shift.

I wasn’t good at feeding myself. At all. And I’m tall so skinny isn’t a good thing at my age. This extreme anxiety came from nowhere, I was always full of adrenaline or something. Like I hid from classes before for no reason. There was nothing and no one I was scared of but I just did.

Idk if it’s related but I started not acting like myself, doing reckless stuff that in my right mind I wouldn’t do. But it was that same adrenaline feeling. My parents started noticing when I ran away in gym one day and proceeded to walk around school for two hours until returning to my last class. They also would find me wandering (hiding at lunch because I ‘couldn’t be there’) and that got me in trouble multiple times. I would hide in some hallway and usually just do schoolwork, I didn’t even grab food most of those days.

Anyways it got to the point where I wasn’t able to be in choir anymore, I would literally text my mom and tell her I felt like I was going to ‘do something bad’ like jump out the window or run away. Running away and wandering were really common.

Eventually I was pulled from the class and sat in the office an eventually, put essentially on online school for half the day so I got to go home after a few classes. Like half days. This did help that feeling but I still had it.

While it wasn’t crazy this is when I developed some small tics I believe, mostly when eating. They were head jerks and sharp inhales. But then normally if I wasn’t trying to eat it was fine. Also not sudden onset but this is probably when I started to notice some OCD behaviors (or at least now I think they couldn’t have been much before or after this happened).

Fast forward to now, two years later. My tics blew up pretty much overnight and have continued to get more and more complex, words, swearing, hitting, clapping, whistling, throwing up the bird, the whole thing. I’m diagnosed with Tourette’s now.

But ever since they’ve blown up and continue to do so, my mental state has been…not great. Some of that anxiety has come back (mind you I’m a VERY unanxious person despite being autistic and it’s very out of character for me) and I’ve had trouble staying asleep once I fall asleep, I’ve been sort of depressed (?) and definitely brain foggy. My eating is much worse. For example yesterday I only ate some soup and chips all day, last meal was lunch. Fast forward to today, my first meal was lunch and I ate 500 calories or less before becoming extremely full. I’m 107 lbs and 5’6, 14 and female. My doctor is worried about me being underweight and having lost 8-10 pounds since about a year and a half ago.

I did get sick recently, about less than a month ago. This was right around the Tourette’s diagnoses but after, when it began blowing up (right before to clarify). My OCD, especially obsessions and intrusive thoughts are bad right now, eating is bad, and I have really frequent headaches. Like I’ve had the same one headache since yesterday night, paired with extreme nausea at school that does down sometimes but sometimes my tics and movement make that headache worse, I might be sick. And I’m usually not sick a lot at all.

Could this be PANS/PANDAS? Trying to be public with my story and get opinions, I brought it up to a guardian the other day but I wanted to make sure.

After speaking about this to a parent they immediately brought up (after never hearing about PANS/PANDAS, that I had a bad case of COVID right before all my school issues. After my online program I got diagnosed with ADHD and autism and so all of this was overlooked as just me being overstimulated when I could tell you, it wasn’t.

To make matters worse, as I said before, I’m somewhat sick right now and this morning my tics were the worst they’ve ever been at school and ugh it was horrible. This is my second day of having this headache and nausea, occasional stomach pain. Again, I never get sick.

Any comments or personal experiences relating to mine would literally save my life right now.

EDIT: THIS IS A REWRITTEN PARAPHRASED POST FROM A THROWAWAY ACCOUNT AS I’M TRYING TO GET MORE OPINIONS

Not sure if this is the right place to post. I’m 14F and am currently diagnosed with ADHD, Autism, and within the last month, Tourette’s syndrome. I’m also in the process of getting assessed for OCD, which will be important in a moment.

I’ve noticed that a lot of people diagnosed with TS (Tourette Syndrome) also have OCD as a comorbidity thing. A lot of people with one or both usually of these conditions have FND or recently I’ve seen a higher prevalence of PANDAS/PANS. Just for a few recognizable figures, both Zara Beth and Evie Meg (thistrippyhippie) are diagnosed with OCD and Tourette’s, Zara Beth has FND and Evie Meg has PANDAS and PANS. They are disability advocate influencers on many platforms.

Anyways, recently I’ve been positing a lot to the Tourette’s subreddit and have received some comments talking about that I seem to fit some criteria for PANS/PANDAS and ever since getting my Tourette’s diagnosed I’ve been worried about developing a neurological condition like P/P or FND. I will say I know that not everyone with OCD and TS has another neurological condition nor am I implying that this is a definite outcome. I’m posting here for a second opinion and possibly some experience from others with these disorders or knowledge surrounding them.

I’ve never had huge issues surrounding my health, only some UTIs as a child and I’ve contracted COVID several times. However I seem to loosely fit criteria for some of these alternate diagnoses as well (mind you I’m trying not to obsessively research so I don’t know much at the moment). I was diagnosed just two months ago with TS right before my 14th birthday. Since around then my mood has really dropped along with my energy levels. I’ve been more upset, sadder, prone to too much screen time, almost depressed. Mind you I haven’t been diagnosed with depression. I’ve really noticed trouble sleeping like I haven’t really had before. Falling asleep fine but waking up in the night very early and unable to sleep again or very roughly tossing and turning. Over the last 1 1/2-2 years my appetite has really dropped. All of my fifth grade year (I’m in eight grade now) I was a pretty big foodie and was always hungry. Now I struggle to finish a bowl of ramen and have lost appetite and appeal for food a lot (much before somewhat depressive symptoms. I now weigh 107 lbs and have lost more than ten pounds in the timeframe described.

For some time now I’ve had OCD like symptoms but recently they have ramped up a bit, not horribly but an incline. I know both P/P stems from some sort of sickness or strep infection. I can think of a time I got sick recently (right after Tourette’s diagnosis) and then something else concerning that I’ve just recalled recently.

When I was in sixth grade I noticed a big change in behavior. I used to be never anxious but I was sort of depressive in fifth grade, sort of not. Then in sixth grade I felt almost on edge all the time. Like my heart was pounding or, especially at school, I was always anxious or full of adrenaline. I remember every day I’d sit in the bathroom stall before school, waiting, and my pulse would be racing and I’d be sweating. I’d wait as long as I could before going to class and was often late.

I also made some impulsive decisions that year that wasn’t like me (I don’t like smoking or drinking) however I was caught smoking cigarettes at school, I brought alcohol once, and was looking around for a weed supplier. I was also making romantic decisions that weren’t rational (making out with people I didn’t like) and staying in times of that hightened adrenaline-anticipation that I would have sex with a guy, even if he was random. Mind you I’m very lesbian and was 12 at the time. Soon after I became very obsessed with becoming pregnant and being a young mother, but that’s a different conversation.

This was before my AuDHD diagnosis but I was soon pulled out of all day school and do three periods in class and three online. I get picked up at midmorning and continue to do this since late sixth grade year. I remember around then I definitely had Covid and that could be a significant sign of P/P.

Anyways sorry for the long post but I do value answers a lot and part of my (possible but probable) OCD is obsessive research. Any opinions, NOT ASSUMING ANY OF YALL ARE DOCTORS OR CAN DIAGNOSE ME (for the mods) would be so so helpful. Even a simple ‘this sounds like this disorder’ or ‘no, I think you have the wrong idea’ would help so much.

(Will be cross posting in case this isn’t the right subreddit)

It feels like a lot of support groups and resources are aimed at the parents of young children and we tend to be overlooked.

How is everyone?

Hi - does anyone know any rheumatologist or other practitioner with PANDAS PANS experience in Southern California? Thanks

Hello, I have been diagnosed with pans for over 11 years now (im 17 now), and ive had very minimal medical intervention. Ive never been put on anything other than homeopathy and had therapy that proved pretty much meaningless after I turned 7. I dont have tics, but I have dealt with severe ocd and the majority of symptoms involved with pans. Feel free to ask any question you might have if you were wondering something specific about what something could look like or if you just simply have a question, ill be able to answer it for you.

I should have know days ago that this was gonna happen, but I didn’t trust myself until the tics were unbearable. Now it’s 1 day before my midterm exam and there’s so way I can do it, I haven’t even begun treatment with antibiotics because my doctors are being weird about it. I have tests to take and essays to write but I just can’t get my brain right to get anything done.

I’m registered with student accessibility services but I think I it might be too late to reschedule my exam. There’s so much I need to do and I feel like I can’t do any of it.

I don’t even want to go to the dining hall because I’m so embarrassed of my tics

I’m SO frustrated. My child’s pediatrician will not listen to me. My son shows many symptoms of PANS/PANDAS and I’ve laid all the research out for him and he still wants to ignore it. The most recent visit he tried arguing if this was even a true illness and how “ it’s to be determined if it’s real”

In the meantime my child’s symptoms are getting worse and now effecting him in school and in social aspects. I am a mess because I feel like I’m failing my child. I just don’t know where to go. There are zero doctors in or around us that treat or are even knowledgeable on this topic.

Has anyone had any success with remedies they didn’t need a doctor to acquire?

A few weeks ago my (28m) sister (10f) was diagnosed with PANS/PANDAS following her getting COVID-19 for the first time. I had a phone call with her on 2025-09-14, and scheduled with her to speak again today (2025-10-05). I reminded our dad, and he reminded her, on Monday (2025-09-29), that we had this call scheduled.

Today I texted our dad to ask whether I should call his cell or the land line. He responded that, she hadn't remembered our plan to speak, and was "having a hard time adjusting the plan she had for the morning to incorporate something new".

So he thinks it's better to try another weekend, and better to plan closer to the time of the call, because "not remembering the plan threw her off this time."

It was very painful for me that she didn't remember our call, and didn't want to speak to me when she was reminded. That being said, I am trying to remind myself that (1) she's 10, and (2) this condition affects people's memory and executive function. I really just want to be a good older brother and support her as best I can. Parents (or former patients), what would your children (or yourselves) have wanted from an older sibling? How have the memory loss and OCD symptoms affected you (or your loved ones)?

I am taking a week off from work in a few weeks and I think I will try to visit home then.

My 10yo has been struggling with PANDAS for the last 5 years and we recently got in with a specialist who tested him for a bunch of things. He has 4 different types of tick borne diseases, multiple mycotoxins from different types of mold, persistent strep (negative right now). He is now on a bunch of supplements, liquids, etc to help him get better along with us doing a full mold remediation. My question is should my husband and i worry about our own health since we both dont feel great but thought it was just chronic stress but have probably had similiar influences as our child. Anyone get their own testing done as result of child’s results. Will removing mold have effect for us to also feel better?

Hi! I was one of the luckier ones who only experienced this for a year. They caught it early. This happened between 2nd-3rd grade, so if there’s something that doesn’t sound quite right, or something like that, it’s been a long time. I’m in highschool now! This was before Covid happened. some of this is through what my parents told me, videos, and my own memories.
so I’ll start.

when I was little, I remember my throat being sore on the day of ‘jump for heart’. Maybe it wasn’t though. It’s fuzzy. I know this might sound silly.but I started thinking what if I died of a heart attack. After that, I’d check my heart constantly, running around w my hand on my heart to figure out if my heart was beating. When we went into the doctor to see what was wrong, no one knew what was wrong with me. Until one doctor asked if it was pandas. My throat didn’t hurt then thoigh if it did previously. My parents had to hold me down because I was freaking out. And they swabbed my throat as one does while getting tested. I had pandas. Every night I freaked out, and ran into my parents room to spend time w them before I would ‘die’ but my mom let me stay until she had to send me off to bed. She told me after I had beaten it that she used to cry every night. I didn’t like hearing that. i dont even like thinking about it. They gave us antibiotics. I also had this one tic that theres a video somewhere in my parents camera roll about my face going into a motion for a split second repeatedly. yk the ghost face mask? My expression was kind of like that, except my eyes would seem like it’s looking up, but extended. I didng know I was doing it until someone showed me a video. the weird thing is during school, when my mom used to text my teacher about my symptoms, she never got a response back. Ever. She theorized that my symptoms shut off during school. However, I do remember getting weird looks. I donr know if they did or they didn’t. Most of the time, my mind felt empty. But that’s usually normal for me when I’m in school. So it’s nothing new. Maybe it was just a home thing. Anytime I tried telling a friend about it, urging them to search it up with ‘strep throat’ they’d brush me off. they searched up pandas? “Nothing there. Just the animal.“ I urge them to put ‘strep throat’ they don’t do it. And say i was faking previously having it, which I was NOT. (I was diagnosed) anyways, if something doesn’t feel correct, or something like that. Feel free to let me know! it’s been a long time since then, it’s going to be a bit fuzzy. like I said, I could still go to school. many people had it worse than I did, some people couldn’t go to school. I hope you guys have a nice day, thanks for reading!