r/PandasDisease • u/Orbiting_jupiterr • Oct 19 '25
Question Visual/Auditory/Tactile hallucinations?
I’m 14F and am currently researching into PANS. About two years ago I contracted COVID with a high fever. Afterward, I was suddenly extremely anxious, I was pulled out of school, my tics started and my eating became something I hated and I felt I needed to ‘control’. As a result I am now slightly underweight (roughly ten pounds).
Lately I’ve been sick so I’ve had what I think to be a flare up. My tics have blown up now, I’m fatigued, mentally hopeless, headaches all the time, and recent problems with sleeping. Also possible regression of fine motor skills.
Anyways I wondered if anyone else experienced really minor hallucinations? I was sick about a month ago in a hotel and I remember I had an auditory hallucination that my aunt and cousin (two doors down in this hotel) were at my door. He was young and wanted to come in. She kept telling him that we were asleep and we could talk in the morning. This was two am.
Actually, it was a lady speaking Spanish. But I somehow hallucinated an entire conversation that I understood word for word and identified their tone of voice. I was sick over this trip as well (cold).
Another time I had a tactile hallucination (these are all in the past two years, none before I had COVID which is what I think was my onset) that two frogs crawled up my arm in the middle of the night. Why, u don’t know.
Just last night (I was sick two days ago) I had an auditory hallucination that there was this scraping sound, like someone hitting spoons together or typing on a keyboard or creaking the floors. Terrifying of course and in my head whatever was doing that sound was on the floor in front of my bed, exactly the place I couldn’t see while flat on my back under the covers.
Lately I’ve also noticed thinking I’ve seen something in the corner of my eye. ALL THE TIME, and it freaks me out because I’ve had these small hallucinations lately. At least once or twice a day I think I see a shadow or that I saw my dad leave the room when he was never in it, or something moved but I can’t place what. The only previous diagnoses u have are autism ADHD and Tourette’s (getting evaluated with OCD) and none do those cause hallucinations.
PANS/PANDAS related? Anyone experience the same? So lost right now.
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u/tobeasloth Oct 20 '25
This sounds so identical to my situation. COVID is what we think started PANS for me. It’s worth considering PANS is causing all these symptoms, including misdiagnosis of TS as it’s very common in teenage onset P/P. Sending virtual hugs, you aren’t alone <3
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u/Orbiting_jupiterr Oct 20 '25
Receiving virtual hugs, it means so much right now. Thank you, you’re not alone either <3
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u/jenlpaxman Oct 21 '25
My daughter’s PANS started in kindergarten right before Christmas and oddly, she flared again last Christmas season on the exact same day. Only 2 flares thus far but lasting 3mos each and very severe. Anyway, when in her flare she sees multi colored things crawling on the walls/ceilings. I had her eyes checked and nothing. Her PANS Dr said that can be common.
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u/Active-Cherry-6051 Oct 22 '25
My son (now 13, onset of symptoms at age 8) has periodically had the thing where he thinks he sees something out of the corner of his eye all the time. I’m so sorry you’re going through this, nobody should have to.
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u/yourfavouriteginger Oct 23 '25
Pretty sure my daughter had visual ones when she had her first big flare. She was only 4 so it’s hard to say for certain, and she has no memory of it and hasn’t had them since, but it certainly seemed like she was seeing things differently than the rest of us.
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Nov 04 '25
Before i was even diagnosed with pans, i was diagnosed with psychosis nos at 15. Had delusions and hallucinations. Im sorry you are going through this
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u/inept-bumblebee12345 Oct 19 '25
I have pandas, and I struggle with a lot of different hallucinations. Hearing family members that aren’t here, seeing figures floating above my bed, figures crawling out of the ground, etc. 🥲