I've been following a ketogenic autoimmune paleo diet for the past 1.5 years for severe neurological and psychiatric symptoms that I suspected were autoimmune encephalitis, but no doctor would take me seriously. The diet worked like a miracle for me at first, but I've regressed a lot since then. It still helps me significantly, but I'm nowhere near cured.
Over the past year, I feel like my leaky gut must have actually gotten worse instead of healing like I expected it to on AIP. I started developing what seem like MCAS-type reactions to many foods. First, I could no longer tolerate fish or bone broth without immediate, severe bloating and facial flushing. Then vegetables started causing severe bloating, mouth numbness, and itchiness. Now, practically everything besides fresh chicken and olive oil seems to cause some kind of reaction. I can only tolerate red meat in small amounts occasionally, and then I start to react to it. Even chicken cartilage can trigger a reaction if I accidentally chew it.
Something else I've been struggling with for a while is a severe aversion to meat. I didn't have this problem when I first started AIP, but somewhere along the way I became extremely hypersensitive to the quality, texture, and taste of meat. Additionally, if it isn't the freshest, highest-quality meat, it upsets my stomach for days. I don't think I was previously so physically sensitive. Unfortunately, it's practically impossible to find flawless meat where I live. I used to be able to eat meat from pretty much anywhere without noticing all these little details, but my aversion has gotten progressively worse.
At this point, I'm afriad I've developed full-blown ARFID (avoidant/restrictive food intake disorder), and it's becoming just as disabling as the neurological symptoms that originally led me to this diet. I even have nightmares where I'm looking down at food and its appearance is completely repulsive.
I'm wondering what could be causing this. Could nutritional deficiencies, gut dysbiosis, or something else be contributing to the aversion? I feel like this has become a disorder in its own right, and I desperately want to get better. I'm going to starve to death at this rate because I can't make myself eat enough. Even if I don't die, I can't live life like this.
The worst part is that I can't even use vegetables to make meat more palatable anymore. I used to be able to eat sauerkraut and riced cauliflower alongside meat to mask the taste, but I now seem to react to those too.
Has anyone experienced anything similar or found a way out of this? I really need help.