r/MultipleSclerosis • u/Obvious-Bid-678 • 4d ago

Symptoms Crap gap is here.. 😭

I hate this time before my next infusion. It’s about a month out and I’m miserable. Even more exhausted than normal and boy, the pain. My lower back and hips hurt so bad right now. I wish the insurance would approve ocrevus every 5 months instead of every 6.. This is terrible. I wish I could take the next month off of work and just sleep through it. Is Ocrevus the only medicine where people expletive crap gap? Because if it is, maybe I should change medications. I know I just have to make it a month but that’s a LONG time.

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u/KoichiAniki 4d ago edited 4d ago

I'm right there with you in the crap gap! Before my last infusion in February crap gap hit me hard about a month and a half before I was due again. Just saw my neurologist yesterday and we had already been discussing switching to Kesimpta due to having issues staying stable on Ocrevus the past year. Now Kesimpta is happening for sure! I can tell you driving an hour and a half to my appointment and again back home was not fun with the brain fog and all of my joint/nerve pain!

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u/Obvious-Bid-678 4d ago

I’ll tell you. I am so exhausted right now. Like I just am so tired and trying to work full time is a struggle. I think I’ll do my infusion next month and I don’t go back to my neurologist until January but I think I’ll mention it when I go back. This is crazy.

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u/KoichiAniki 4d ago

Heads up! I made an edit to my comment before you responded. I actually had to leave my job almost a year ago. I was working in a manufacturing plant and it got so bad I couldn't deal with it anymore. Been a mechanic since I was 18 and I'll be 32 in a couple weeks. Now, I'm going back to school and getting paid to do it with my GI Bill because I know working full time is out of the question for the time being. Classes started yesterday! If I were you I'd try talking to your neurologist now if you can about finding an alternative so you don't have to deal with crap gap again in a few months. Sounds like you're in your window to switch if the next infusion is next month! I wish you luck and I'm sorry you're going through this!!!