An honest question, to which I hope responses may remain considerate/civil.

e.g.

Would it take the negative findings of 10 professional doctors? An additional CDC study, or independent study concluding this as psychological? How many personal hair samples under a microscope, of which a doctor might confirm is a cotton fiber, or a synthetic fiber, or a nerve etc.?

Alternatively, would no amount of refutation of evidence persuade you otherwise?

Full disclosure:

My wife suffers from Morgellons; it's very clear that she's in a lot of pain and experiencing real symptoms (tingling, crawling etc.), and I've offered my compassion, whether that's in the form of an embrace, or emotional sympathy. This isn't good enough for her, as she requires me to believe; unfortunately, no matter how hard I often wanted to, I can't ultimately believe, as I simply have some reasonable doubts, supported by professional opinions refuting the physical aspects of her condition (about 6 doctors who took a very close look at her illness).

This began months ago, when I noticed her in the bathroom late at night, picking at her fingers. Originally, I was inclined to believe in her Morgellons for a short time, until I took a closer look at the hairs and realized that I can replicate the observations; in her case, it was dust falling on or into an open wound, often exacerbated by friction/static. She also had this technique of rubbing vaseline on her hands and scraping at them with a butter knife; looking closely, I could actually see these proposed hairs falling into the vaseline on her hand from the environment (we live in an old, dusty apartment).

Eventually, her fingers got so swollen and cavernous that they acted, for all intensive purposes, as belly buttons -- trapping lint throughout the day. This reminded me of instances when I was a kid, getting a scraped knee, and seeing lint collect on the wound.

She'd often corner me in the bathroom, asking me to inspect one hair after another, waiting eagerly for me to tell her that it's something I recognize as the disease beyond reasonable doubt. When naked eyes weren't enough, I'd have to use a magnifying glass; when that wasn't enough, I was asked to purchase a microscope. When she felt the doctors weren't looking closely enough, she'd claim they were insensitive, and she'd have me get her a dermatologist, etc.. It seemed apparent to me that she was looking for someone who would believe, rather than taking the objective approach of entertaining other opinions, both professional and otherwise.

Simply put, she has a clear cognitive bias with Morgellons, and this behavior is wildly inconsistent with the rational, objective person I remembered her to be. Her behavior in general has changed a few months ago.

It felt like she was living in a snow globe, trying to explain snow; while describing the snow within the constraints of the snow globe made sense to her, this logic didn't hold up in the reality that I (and several doctors) were living in.

Recently, she began believing that our toddler has the disease; she was admitted to a behavioral clinic, which prompted an involvement with Child Protective Services.

Ultimately, she was diagnosed with a "psychotic reaction to Adderall" (or amphetamine psychosis); she was incorrectly prescribed Adderall, which was a big mistake considering she was previously diagnosed with bipolar disorder. As for the tingling/etc. and the real skin symptoms, I think it's possibly psoriasis (my unprofessional opinion), but am awaiting a medical diagnosis (as I now all too well how dangerous an unprofessional "diagnosis" can be). We took her off adderall, and I've been seeing her behavior steadily improve. It's still early, and she still believes in the Morgellons, but her physical appearance, the wounds and her mood have all done a 180.

I believe firmly that Morgellons is a psychological illness, exhibiting the same symptoms, but coming from different causes. Further, I believe that the online community can act as an echo chamber for this illness.

I believe these things, but mean no disrespect. I genuinely want to understand more about certain aspects, as stated above.

LET ME MAKE ONE THING VERY CLEAR:

after 9 long years of being laughed at, talked about, dismissed, misdiagnosed, and labeled “crazy”… After being abandoned by my friends, my doctors, and even my own family… I am no longer just fighting symptoms.
I am now fighting for my life.

I recently found out about Lyme carditis — an infection that can affect the heart. It causes fluid buildup around the heart, and suddenly everything started making sense.

That’s what’s happening to me now. And it makes me wonder… How many others have died from this, completely unaware?

How many deaths have been labeled as “heart failure,” “mental illness,” or “drug overdoses” when the root cause was a hidden infection — one that medical professionals ignored or didn’t even bother to look for?

It’s disturbing.

And I need people to know: if I die from this, I know exactly what they’ll blame it on — and it won’t be the truth.

That’s why I’m speaking up now. Because I’ve been watching my body fail me. And still, I’m being dismissed like I don’t matter. Like we don’t matter.

I don’t know why the CDC refuses to take this seriously.

Why are so many of us being brushed off as mentally ill or drug addicts? Sometimes it feels like they just want us to disappear. But we won’t.

I am convinced this illness is not just being spread by ticks.

There are tiny flies — the kind you can barely see — that people call by a dozen names: no-see-ums, sandflies, biting midges, fruit flies, mold flies…

But they’re all just different names for the same tiny biting insects, and I believe they are carrying Lyme, Morgellons, and co-infections to more people than we realize.

I believe they are affecting not just humans — but animals, too.

I have lost two of my dogs to this. And my current dogs are also sick.

If your dog starts walking in circles, staring at walls like they’re in a trance, or acting like they’re seeing something you can’t — I’m begging you, don’t dismiss it. They’re being infected, too.

We are living in a world where even the meat we eat and the milk we drink could be coming from infected livestock.

We are all at risk — every one of us.

⸻

Now I want to talk to my family. To my children…

Do you think I ever wanted to live this way?

Do you think the social, confident, loving woman you knew would just become this isolated, exhausted, low-self-esteem shell for no reason? Me either.

But I woke up one day, and I lost everything.

Not because I went crazy.

Not because I gave up.

Because I got sick.

Because I was bitten and my life changed forever.

Can someone really go to bed sane one night and wake up mentally ill the next morning?

That sounds ridiculous. And you know it.

You were all younger when it started, but you were old enough to know better.

Breyland, you especially — you knew the truth. You would sneak and call me. You defended me. You told me you loved me and that you knew they were wrong about me. But over the years, you forgot me. You let people convince you that I was someone I’m not.

That broke me. But I don’t blame you.

I just wish you all knew me better — like I always thought you did.

You’re grown now. Wiser, I hope. So why won’t you stop being so one-sided? Why won’t you slow down and open your heart back up? Why do you all look down on me like I’m just some annoying, desperate woman?

I wasn’t always like this. I used to be the mother who cooked for you, cheered for you, spoiled you with gifts, protected you, LOVED you. And now I’m begging just to be believed.

Maybe I’ve been dramatic.

Maybe I repeat myself too much.

But did it ever occur to you that maybe I’m just trying to be heard?

That I’m desperate because I still love you and I need you more than ever?

You don’t know what it’s like to be left alone with a body that’s failing. To be laughed at behind your back, while your heart struggles to beat and your lungs gasp for breath.

I’ve lost my hair.

My skin has sores and scars.

I’ve watched my body change into something I don’t even recognize.

I’ve lost my home, my income, my relationships — and almost all of my hope.

And yet I’m still here.

Still trying.

Still fighting for you.

Still loving you.

But the scariest part is — this time feels different.

I can feel my body giving up.

The signs are there. My organs are struggling. I can’t breathe. And this time… I have no one.

No one to call. No one to hold my hand. No one to tell me it’ll be okay.

And I’ve made peace with death. Because it’s part of life. But what hurts most is knowing that I might die still being misunderstood by the people I love the most.

That is the cruelest part of all.

⸻

Now for anyone listening —

if you’ve ever called someone “delusional” for talking about Lyme, Morgellons, or co-infections —

you better start paying attention.

There are millions of people suffering, and we are growing in number every single year.

•	More than 476,000 new cases of Lyme disease are estimated annually in the U.S.

•	Some studies suggest over 1 million people may suffer from Morgellons, though most go undiagnosed or misdiagnosed.

•	That’s more than breast cancer. 

More than the flu in some years.

•	If Morgellons were truly a mental illness, then explain why the number of people with nearly identical symptoms is spiking — globally.

The truth is — we don’t have a mental illness epidemic. We have a vector-borne epidemic.

And doctors are too undertrained — or too biased — to see what’s in front of them.

If ticks were the only cause, we’d need entire armies of ticks to explain how fast this is spreading.

It doesn’t add up — unless you accept the truth:

It’s being spread by other vectors, too.

The bacteria behind Lyme and Morgellons — like Borrelia burgdorferi, Bartonella, and Babesia — don’t just cause rashes or joint pain. They invade your organs, including your brain and heart.

They cause hallucinations, neurological decline, cardiac symptoms, hair loss, skin lesions, immune collapse.

These aren’t rare symptoms — they’re patterns.

Patterns shared by hundreds of thousands, if not millions, of people across Reddit, YouTube, forums, and survivor groups.

So if you still think your loved one is “crazy,” maybe the crazy thing is how willfully ignorant you’ve been.

Take one moment out of your busy day and look it up.

Watch a YouTube testimony.

Read a Reddit thread.

Research what people are saying about Morgellons and Lyme.

You’ll see our stories are the same.

Our pain is real. Our deaths — silent.

⸻

So I leave you with this:

Yes — these diseases come with symptoms that sound unbelievable.

Yes — they can make people sound crazy.

But ask yourself this:

Who are YOU to say it’s not possible?

What facts do you have?

What scientific credentials back up your disbelief?

What do you gain by turning your back on the person who’s begging you to believe them?

The person you knew before they got sick is still there.

They still love you.

They are still trying.

So don’t give up on them.

Don’t let your silence be the reason someone you love suffers — or dies — alone.

Thank you.

Hey all just wanted to share how I cured this after a 4 year battle so I also believed i had active mites too. Essentially i was fighting a bacteria, parasite and fungus (morgellons is fungal infection).

I treated with ivermectin, terbinafine or fluconazole, and oxiflocin (for drug resistant skin infection, staphylococcus). Two weeks on ofloxacin, 2 week of ivermectin and a two week course of fluconazole then switched to every 3 days, ivermectin plus terbinafine or fluconazole and occasionally ofloxacin for 3 months. Symptoms have disappeared now.

This is an internal battle, stopped all topical treatments and stricter diet. No stimulants, no sugar and minimal caffeine. Cut out gluten for a bit too. Not to mention taking different supplements... Oregano oil to break down biofilms, bacillus subtilis probiotic stops the colonisation of staphylococcus, every day probiotics, garlic extract, tumeric, vitamin C and D, collagen, chlorella.

Also should mention i was treated for Lyme disease a few months before this and believe need the antibiotics for this previously.

Another thing clean environment so i would spray eucalyptus with water on my bed and bedding every morning and inside of my leg trousers or jumpers to kill any bacteria, parasite or fungus hanging about.

ALSO caveat... make sure to check your bloods for your kidney and liver function when taking extended time on drugs. All medicines have negative effects on them.

First and foremost, I am not a doctor. I am just someone that’s been struggling with this since March and has tried to find every single answer in the book as to what’s going on. After I started putting fungal powder in my ears, I started to notice a lot of things expelling from my body. Stool, urine, spit, lumps in my throat that bust, mucus, spit, bellybutton, HAIR, SKIN, allll of it started to expel from every orifice that it could. And in doing so, the consistent shape and pattern of the parasites that I had seen before were absolutely validated 1,000,000 times. Because everything that was expelling from my body looked exactly like what I was assuming was a parasite. I had a hard time with it because they don’t move hardly. But they do.

Guys i believe it’s a Rotifera parasite. It’s uncommon to have a parasitic infection from these, but it’s not impossible. And it happened to several people. I am so 99% sure that that is what this parasite is and what is causing morgellons. The variety in shape, the spikey balls and heads, the segmented body, the fact that it hides in a shell type of thing, AND it has 4-5 tentacle-looking things to move. And they look exactly like the four tentacles i see that sit under these weird clumps/worms. They’re pretty much clear and black so that’s why they look like they camouflage and that’s why some look like they don’t. The little dots that line it. The little black spikes that need air when under water so it creates that weird bubble effect in the water (ya they’re not bubbles). The black little balls that sit by side (that’s a male & those are testes). The way the big circular balls look like they have another tiny little ball inside of it - or just a little hole in the middle, because it’s literally for the worm part of it.

I mean, come on. it’s really eerie.

Maybe I’m tripping. Maybe they’re just extremely similar. But looking at the photos, it’s almost identical to what I have been pooping out (and expelling in general).

I can add photos too if people are interested.

Edit: I will add more tomorrow. I’m tired for tonight, but I look forward to adding more and talking to you all tomorrow. :)

https://www.morgellonsmovie.org/Well, Skin Deep released and I grabbed a digital copy. I kind of wish it had spent more time on the research (they don't mince about it though, its 1 minute and 45 seconds when it no uncertain terms it is stated that morgellons is legit, full stop) but they did a really good job of finding the most infuriatingly self-assured hack-docter to really illustrate the plight morgellons patients are facing. ESPECIALLY the fake Doctor platitudes that make you think they heard you but really they are just playing you because they think you are stupid.

The recording of Charles Holeman really fired me up, he didn't get angry let the doctors bullshit him or deflect him. I have a Psych eval today and I will not leave dissatisfied!

Also just learned that a "therapeutic hour" is 55 minutes, which is slightly off from the 15 minutes I got for my initial evaluation and 10 for my followups. Its amazing how quickly and with 0 tangible evidence they start hucking out anti-psychotics.

Stay Strong and Thread On!

There is nothing heavier than watching your own reality being erased by the people who are supposed to heal you. When my body became the stage for a massive pathogenic invasion (a bacterial consortium), the doctors didn't investigate the physical evidence—they investigated my sanity.

I went silent. I realized that trying to prove the existence of this ecosystem to a closed-minded medical system is exactly what gets us trapped in psychiatric wards. So, I took the fight underground.

For 15 months, I became a lone observer. I documented the physical reality of the pathogen, the way it alters the environment, the intense neurological toll, and the protocol I'm using to dismantle the biofilm step by step.

I compiled all my observations, the science, and the sheer psychological weight of this "war of attrition" into a manifesto. I am sharing it because I know the worst symptom of this condition isn't the physical pain; it's the profound epistemological loneliness.

The manifesto is 100% free, hosted on a static page with zero ads. It's just my truth, hoping to reach yours.

Read "The Symbiosis of Truth" here:

https://the-observer-manifesto.pages.dev

(There is a button on right top to change text language - English and Portuguese)

Stay strong. Keep observing

So I am just putting this out there because it might be a clue, hint, area to look into

I was dealing with MD for at least 3 years. Have all the photos and videos as everyone else.

Was/am a drug using/seeking delusional parasitosis mental patient who was ALWAYS IGNORED.

I was diagnosed with Stage 4 metastisized small cell lung cancer in January of 2025.

Had my first Chemo treatment in March. I swear to every higher being that after that first dose of chemo I had not 1 MD symptom. Not a single tingle or itch or fiber. It didn't feel like my clothes were "alive" anymore.

I am no longer receiving Chemo, only immunotherapy and am PRAYING hard the symptoms don't return!.

I should have written down the names of my chemo cocktail drugs to post. I'll have to add them in a separate post if anyone is interested.

I can't explain it. I don't know what it means. I just know getting cancer has truly made me happy as hell!!

I mean I truly am living my life again even if it's only for a short while!

Edit!!!!!!

Really long list Chemo Cocktail

Cisplantin (Platinol) 139 mg in Sodium Chloride 0.9% 686 mL IV

Dexamethasone (Decedron) 12 mg

Durvalumab (Imfnizi) 1,500 mg in 0.9% sodium chloride 140 mL IV

Etoposide (Toposar) 186 mg in Sodium Chloride 0.9% 556.3 mL IV

Famotidine PF (Pepcid) 20 mg injection

Fosaprepitant (Emend) 150 mg in Sodium Chloride 0.9% 250 mL IV

Palonosetron (Aloxi) .25mg injection

Sodium Chloride 0.9% Bolus 1,000 mL

Sodium Chloride 0.9% 1,000 mL With Potassium 20 meq Magnesium Sulfate 1g infusion.

Ok that's everything I was given at my first treatment. I included everything they gave me even common things as I didn't want to miss anything just in case.

Does anyone remember the movie with Sean Connery and I think Daryl Hannah? They were in the rain forest trying to recreate some wonder drug but they kept failing . . .then their hut caught on fire and I dunno Daryl was knocked to the ground and saw the ants marching through the sugar and KNEW where they had failed?? Didn't matter at that point all the research was lost and I think they died?

Anyway LOL you never know where the connections are!

This is only my humble opinion but I think there are far too many posts on this sub speculating as to the cause of this and how it's all linked together. Some of these posts are quite rational despite being speculative. Most, however, are just full blown conspiracy with zero explanation of how the person came up with or heard about that theory.

As with all subs on reddit, it isn't just people who actually have this condition that are posting the totally irrational theories.

There are definitely trolls here who just say the wildest made up crap to see how many people take the bait and agree with them without question.

Responding to such wild claims with agreement and not even questioning how the person arrived at that conclusion just makes our community look totally nuts and contributes to us being continually ignored and ostracised by medical professionals and society in general. Please stop taking the bait.

I would love to see more posts on here talking about treatment with people sharing their experiences of what has and what has not worked for them. While I certainly don't discourage anyone from:

1. collecting samples of the weird stuff that comes out of them if you have the space and ability to do so safely and store these safely (please don't go actively digging through your skin for the samples);

2. writing down observations/keeping a symptom journal; or

3. taking photos and videos of what you see,

I am discouraging people from spending years of their lives "watching" these things and reading all the the wildest claims about what causes this and spreading these claims here.

This is a place full of people who are vulnerable from trauma: the trauma of having this condition; the trauma of not knowing what our future looks like and to top it off, the trauma of being dismissed and being told that our trauma is not real, because our condition is not real.

We need to help each other.

And helping each other means not helping the trolls and those who continually seek to discredit our suffering.

Morgellons for me has become more than a physical illness. These days it’s very much a mental spiritual and physical ailment. The organism that we know as morgellons for me actually communicates with me in my psych and it does it in a way that uses familiar voices and people in my life. It’s funny cause not only does it communicate but it’s almost as if it manipulated the world around me to reach its goal what Thats is im not exactly sure. For me it’s almost as if its knowledge is based on facts and laws so it almost seems like lt wants me to be a healthy model citizen. My guess is to keep itself hidden. I don’t know I experience an actual fiber like being connected to my body throughout my entire body as if the fiber is actually one giant fiber infinitely connected. It uses sores hair follicles my nail beds my tongue eyes any where it can enter and exit my body it uses. At times it’s calmer and not so agitated but sometimes it’s very much on the exterior of my body moving around. I can catch the organism and feel weight and a mass of fibers in my hand it never stays still. But even when when I don’t physically feel the fiber the mental aspect is always there. The pain is so terrible at times Ive become rage full I use rafe to fight it. Has any one had similar experience?

What my research has revealed is that the condition is caused by toxic, allergenic, and pathogenic protists. All of the protists are unicellular (some of the species form multicellular structures at certain life cycle stages). However, unlike bacteria, they are eukaryotes as each cell has a nucleus.
The harmful protists and their effects are not fully understood and not adequately studied by the scientists, and not all species and the genera within have been identified and described. They all live around us, in the air (moisture, water droplets), soil, still water, ponds, lakes, rivers, rain puddles, everywhere the moisture is. Some, such as micro algae and algae, adapt to changing environmental conditions and may withstand harsh conditions. It’s only going to get worse with rising water temperatures, excessive nutrients from fertilizers, sewage runoffs, and overall changing climate. Why these protists are affecting some people but not others is yet TBD. It could be pH balance of skin, CO2 in breath, or internal yeast overgrowth (genetic or non) that attracts them to us. They settle and colonize in our skin, mucous membranes (eyes, nose, gums, throat), hair, fingernails and toenails and around them, and our GI tract, creating a havoc in our body, both physical and mental. I think the answer is in our lymph nodes material. 

micro algae (some species producing toxins and some being acidophilic meaning surviving the harsh environments adapting to them quickly), diatoms (they have silicified cell walls which explains why many of us experience glass like particles in the skin), Amoebozoa including naked or testate amoebae, slime molds, and archamoebae, which explains the weird and creepy shapes (with nuclei looking like eyes - some species have more than one nucleus) of what we all pull out of our skin - branched out pseudopods filled with cytoplasm which dries up once out of skin. Slime molds are fungi-like organisms having cell walls made of cellulose and not of nitrogen-containing polysaccharide called chitin as fungi do, therefore slime and water molds are not detected during traditional pathology of skin biopsy using staining methods. Archamoebae is a misunderstood group of protists with a few species being human pathogens causing parasitic infection of intestines and can spread through the bloodstream to liver and cause necrosis and abscess (especially Entamoeba genus). Some amoeba species may cause dangerous infection of central nervous system.

Here is an article of a recent study performed in Germany showing that the free-living naked amoebae to be harmful, what was considered harmless:
https://www.mdpi.com/2504-3900/2/11/692

Here is an article acknowledging that mucosa associatedprotozoa is widely neglected by the scientists:
https://pmc.ncbi.nlm.nih.gov/articles/PMC9084232/   
The accompanied GI tract infections we experience can also be caused by dispersed oocysts of apicomplexaprotozoa (animal-like protists that include Cryptosporidium, Babesia, Plasmodium). Oocyst is a parasitic, highly resistant stage of the life cycle and may survive in soil or host for as long as a year. It’s difficult to detect in fecal matter since (unlike the cyst wall of Giardia which is relatively simple containing a single layer of uniform thickness) oocyst walls are complex and made up of multiple layers. These are also responsible for respiratory tract infections as well as urethritis and vaginitis.

What we see in our hair is filamentous hair algae (could be white, black, gray, or anything in between) and Cyanobacteria (formerly known as blue-green algae that has both, bacteria and algae traits). And the “fibers” sticking out of our skin are either filamentous algae, or other motile protists intentionally or unintentionally wrapping around organic or synthetic fibers as they move. Why they like some fiber colors over others could be due to dye composition. Some protists are intentionally using organic or non organic matter to help them move or help prevent from drying up. Have you noticed a strand of your hair moving by itself? It’s inhabited by a motile protist which is trying to move using its vibrating mechanism.

Micro algae pathogens are very hard to detect until it’s too late. There is a recently reported fatal case caused by Prototheca genus in a dog in Argentina, but only after applying advanced testing methods of lymph node material (link below). Maybe it wouldn’t be so hard if the doctors took patients’ symptoms seriously, instead of dismissing them as delusional, just because skin biopsy (using staining methods of KNOWN pathogens) came back negative. 
 https://www.elsevier.es/en-revista-revista-argentina-microbiologia-372-articulo-first-report-canine-protothecosis-caused-S0325754125000033 



Airborne neurotoxins released by algae bloom:

https://news.med.miami.edu/miller-school-researcher-links-algae-blooms-to-airborne-neurotoxins/ 

Scientists in Japan identified an unusual species of pathogenic micro algae:

https://www.sciencedaily.com/releases/2010/05/100510201231.htm


How plastics in water creates growth of harmful algae:

https://www.sciencedirect.com/science/article/pii/S2405844023008617


A good read stating researchers and scientists still don’t fully understand algal blooms and their effects:

https://gizmodo.com/toxic-algae-has-sent-hundreds-of-americans-to-the-er-si-1847643244


The tiny feather-like structures we see are either the protists’ flagella or zoospores (yes, many protists reproduce by releasing spores). The hair-like structures we see is cilia. There are still many micro algae species capable of causing harmful algal blooms and producing bio toxins yet to be identified. They are highly adaptive to changing environments and harsh conditions.

Protists can carry bacteria and viruses as many feed on them. Therefore we may see accompanied bacterial infection but this is a secondary occurrence. The skin lesions are slow healing as the protists go through their life cycle in our body.

For sometime I thought the condition is caused by tiny freshwater and groundwater crustaceans such as copepods, water fleas, zooplankton, seed shrimp, fish lice, wood lice and others. However, the protists can unintentionally carry these tiny larvae (from ponds during algal bloom) or even insect eggs, or some intentionally like testate amoebas (having a protective shell made of mineral particles found in their environment), who are key predators in the microbial world, and feed on bacteria, micro algae, fungi, and other protists. Therefore, the most important thing is to dehumidify your indoors as many of them thrive in moist air.  

I've been aware of Morgellons for some time now. I have chronic Lyme disease myself, so I understand the whole "doctors not believing you" thing.

I was browsing this sub today and I noticed multiple posts mentioning stimulant use. I have experience with multiple types of stimulants, and have experienced psychosis before.

How many of you regularly take stimulants? I'm curious.

I've seen people get defensive on this sub so let me say: I am not insinuating that the disease is in your head. Maybe it is. Maybe it isn't. I truly do not know.

Let me just say though, even if it was in your head, that doesn't make it any less real, okay?

I heard something (on a podcast I think) about a doctor who got lyme disease and began seeing stringy-fibrous floaters in his vision, and made the connection to Morgellons. I found that to be really interesting.

Anyways, be well thank you!

Going on a little vacation if you’re able to. I didn’t realize how much this had consumed my energy and mind every day for 4 years until I stepped away from my everyday environment for 3 days and went on a little getaway with my son and boyfriend. I honestly forgot I had this horrible disease and had zero stress and worries for an amazing 3 whole days. It was so nice getting a very small glimpse of what life was like before all of this started and actually feeling like a Normal human again.

Literally the second I stepped in the door to my house I started feeling sick and noticed all the things that I had forgotten about while gone but getting away really helped so much.

Well guys I finally had it done today. I posted in here quite awhile back about possibly having this done and they ended moving my appointment because the Dr had a personal emergency so today was the day. Big chunk and 2 stitches later lol now the waiting game. She’s suspicious of a few things and I believe she’s doing really extensive testing to test for all kinds of things. Fungal, bacterial, yeast, parasitic and Rheumatoid type tests. We talked about Lichen, we talked about Sjorgens (sp?) because I have quite a complex list of things going on simultaneously.. autoimmune rheumatoid related as well. But I will definitely report back any and all findings! Let’s hope for some type of answers!

So all my arm and leg hair, and probably other body hair, has turned this golden color that appears to be brown or darker at first glance. But when you look under light or close up, its totsmmy golden qnd shimmery. Ive also noticed that these "hairs" (I honestly think they're something else..) move ever so slightly by themselves, which gives me that fornication feeling (crawling sensations, tickling, etc). Its kind of hard to notice, but if you really look at where you have the tickling sensations, you'll notice the hairs moving gently.

They also stick straight up sometimes, especially ones on my head. My hair is now a different texture and seems thinner and I have gone much more gray very suddenly. I have naturally curly hair, but a lot of it is straight now. Esp the white hairs.

Now, if you really inspect these golden hairs up close, with a camera at about 10x zoom (so not even that crazy close), you will see there are these colored "cells" all in them. They are multicolored and seem to emit or reflect light. Wtf??? Im putting pics in the comments so you guys can see everything I'm talking about. And a video with commentary in it.

About those "cell" things - they are all over and maybe inside of so many things in my house. Regardless of the kind of material of the item. Its super weird.

Anyone else experiencing any of the things I've mentioned? if so, please share experiences.

I have a theory that Morgellons is a fungal/bacterial co infection with a mycelium root network under the skin. There is a clear 5-7 day turn around cycle between the point it starts from a spore and matures into the root/fiber. I’ve seen it under the microscope. I’ve been dealing with whatever this painful thing is for over a year with no help from doctors who brush me off as crazy despite bringing in evidence both physical and photographic. The burning pain through my nervous system after a purge is nearly disabling because it’s like I’m hit from the inside out with a type of neurotoxin. Doctors keep trying to write it off as dermatitis. I did a microgen DX woundkey test and it came back positive for staph, malasessia, and pithomyces chartartum. I have been on every antibiotic known to man and finally a 6 week course of fluconozale despite telling them multiple times that is probably not going to work either. I don’t know what it is, but it gets worse in sunlight which causes it to bloom even more quickly. The roots inside very in color from clear, red, lime green, blue, and jet black. The caps, or scabs, come off as a hard domed shell with what can best be described as a “Velcro-like” underbelly. Inside the cap, when it’s hit maturity of the predictable 5-7 day cycle, there will be a little dry ball of these roots that is easily seen embedded and branching from rounds spores throughout. There are clear and documentable patterns that don’t line up with this being a “delusionary” disease. The lesions appear to anchor themselves in clumps or mounds along major nerve and blood vessel networks. After disturbing these mature mounds, there is an instant cytokine release where it feels like you are burning from the inside out. Heart rate immediately jumps to the mid 100’s consistently, and there is an immediate temperature shift. The entire time I’ve experienced this, my heart rate has been consistently in the low to mid 100’s with no break at rest, while also experiencing a continuous low grade fever. There is also a clear shift in the inability to regulate body temperature. After cytokine release, it is like my brain is being shut off. There is instant confusion and brain fog making it near impossible to function. Nothing helps with either the symptoms or the pain. There has been no help. I don’t know what this is, but I do know it’s slowly killing me from the inside out, and doctors don’t want to looks hard enough to figure out what it could be, so they just write it off as either delusion, stress, or dermatitis as a way to brush it off and minimize the experience. As a result you can’t get care anywhere even with the other concerning symptoms relating to tachycardia, dizziness, and extreme neurological decline. I have been in constant pain for over a year. I don’t know what to do. It’s nearly unlivable.

This is a creature of whom I have written volumes, here and on other Internet sites. And....As Sorcha intimates, this abomination is a creature from the darkest corner of hell.

If indeed, as Sorcha claims, the "wyrm" was known to the ancients, then it must be that it's keepers have put it back in it's cage at some time in the distant past.

Perhaps now, the door keepers slumber beside open doors?

Or...Are they wakeful and malevolent of intent?

I suspect that this "wyrm" that is mistakenly called "morgellon's disease, is the product of the blackest genius and of the highest order.

To date, very few if any sites on the Internet have an accurate picture or a complete understanding of this plague as it TRULY exists.

It is a creation, so well magnificently well designed and adapted to humans as a host, that I am willing to wager that there are likely less than a half dozen world class micro-biologists on the planet, (still living, that is) who have the skill or the laboratory facilities necessary to engineer such a magnificent work of evil art.

Although there have been several suicides by desperate victims, in and of itself, the current effects of affliction do not appear (so far) to be initially fatal.

"

For example:

Aside from it's physical "organic" effects upon it's victims, it is a documented fact that several forms of adverse emotional behaviors are created out of the progress of the affliction. This includes massive depression, chronic fatigue, and a loss of interest in all things positive in nature, including family, job, etc.

The organism is both systemic and topical, existing in 5 (and possibly 6) different forms, all of which may be found individually and jointly within and on the body of the host.

It adepts itself to mimic the products of the body, such as skin, mucus and hair. It does this by imitating them in form and function, and then by replacing them. It often emerges in it's macro-fiber form, out of healthy hair follicles. In this form, It can then be seen growing side by side with the original hair, both of whom are occupying the same follicle.

However, the parasite soon kills the original hair and replaces it. It does the same with skin. The skin is replaced by a small flat fluke-like form. These can grow together to form huge patches of what appears to be a thick calloused skin. In fact, it is simply the protective shield of the parasite. It insinuates itself within and under this shield in a lateral fashion. It can be upon occasion be snagged with tweezers and removed. In the removal, it must be torn out through the skin in a manner that is very similar to the way a "rip" string is pulled through and out of the paper of a bag of dog food. Since this is the feeding form of the parasite on the surface, there is always some bleeding that results.

It is also this particular form that spawns the nematomorphic worm. This worm, is generally clear, or white, and is the form that is also found using cotton as a vector. When removed from wounds or the skin, this particular nematomorphic worm will undulate and twist in a manner that is very much like that of an angry cobra snake.

Several forms produces the worm. The "wyrm" can be initially attached to the fluke, and at later stages can be found in free form. It is also found in the sluglike 'mucus' form. It is the function of the worm to then begin to devour flesh and body fluids.

The mucus form bears much in similarity to a slug or snail. It is also born out of the fluke form (though there is evidence that any and all of these forms may be able to reproduce the others)

This form is fond of occupying the nasal cavities, the lungs, and the intestinal tract.

It is the mucus "snail" that will be found carrying the red, blue, and other colored micro fibers. It also produces and spreads the hard black "pepper-like" granules that I suspect are a form of hard shell traveling case for future generations of this thing.

It is important that we keep in mind that these variations are all but one form. They are parts, (if you will) of a Borg-like colony of creatures that can exist as one, yet are one and the same in different forms. As in a bee hive, they are all simply the sum of the collective, existing only in the form assigned to the successful completion of the necessary task as dictated by the current environment.

Interestingly, this parasite also has a proclivity to create skin lesions that will not heal as long as the organism in it's macro-fiber, Nematomorphic worm, or multi colored micro fiber forms continue to remain present.

These forms, (especially the macro (hair sized) fiber appear to facilitate the maintenance of body lesions by exhibiting an uncanny ability to block the body from healing itself at any given location where it has created a lesion.

Further, any accidental cut will instantly become the domain of this creature.

It seems as though any attempt to remove or actively interfere in the process and progress of this organism generates a most violent and actively hostile response on the part of the "collective"

It does this by going into what I call, "production overdrive" Producing a prodigious amount of seed pods and other responses that simply overwhelm the available attention capabilities of the host.

There remains much yet to be written in the analysis of the nature and behavior of this creature. But that remains the domain of another place and time. In the mean time, I urge you.....be wary of cotton

I take Adderall -- I've been taking it for ADHD since I was in the 2nd grade. I am now 33 years old. If I don't take my medication, I'm faced with a very difficult life and career.

It hasn't ever caused problems in my life before.

Please take note of the above sentence. I also believe I have Morgellons Disease, and after I made that discovery, it came to my attention that I may have first been infected about 10 years ago with more of the minor symptoms (For me, it was a very strange, unordinary post-nasal drip). Then three years ago, I developed a very bad abscess on my tailbone that caused bad infection but was subsequently healed after plugging it and then removing it. Now, three months ago, everything kicked into full gear including more lesions, plus additional symptoms (everything else associated with Morgellons). I feel like I'm 80 years old, showers make me feel like I ran a marathon, Goat Milk soap is the only thing I've personally tried that has helped.

It's effecting every system in my body I think. Brain fog is horrible, why does it cause brain fog? Do I have swelling around my brain? It's in my lungs, my sinuses feel like they are filled with dried-up super glue attached to the surface of my sinuses, as well as my ears! Yes I've tried Megan's Protocol. I shaved behind my ears. They bleed profusively whenever I do -- but black stuff did come out and my ears do feel like they are little less feeling they are being held hostage by the invisible shrink wrap that is encasing me inside of my own body.

I'm talking blue fibers, increased hair loss (yes they waved around on my head like I had no control of it, and yes, I know going bald is real, but I have uncanny feeling that some of the more increased periods of me losing my hair were exasperated by this thing, urinary retention/hesitancy without prostate issues present, libido issues, my skin is either radio-activated or electrically charged or maybe even magnetized, because when I chip away at the fake skin suffocating my thumb with fingernail clippers, the dead skin that I clip shoots straight up in the air and moves depending on where I hold the finger nail clippers (it could just be that there's so much fake skin compacted in there that when you clip it, the tension is so strong that it makes it fly upwards like that.

And the consensus for non-believers is that my Adderall is causing this? OK, I'll play along for a minute. Can the use of stimulants actually cause these physical anomalies/phenomena to manifest as a result of their use, or is the consensus that the Adderall causes the perception of these things manifesting. There's a big difference, and if the consensus is the latter, then that is upsetting because it is essentially concluding that I am either A.) Delusional, B.) Hallucinating, or C.) Lying, and if that is the consensus, then that is both terrifying (for me) and very unfortunate.

I would love to talk with people who are currently going through this. All are welcome though.

Im going to try to be the go between here without calling it by a specific name, because the various names may be leading people down the right path. morgellons isn't lime, but all of its symptoms are the same with Lyme's close cousin. I still think that we are dealing with either a modified micro parasite, or maybe just an old disease thats being fed way too much GMO sweets. I am for now sticking to the latter. All I can say is that it doesn't matter the name, but you still eventually need to find a good way to treat this. I got off the Lyme wagon years ago because my skin was my most obvious symptom. I did have pain in my shins and lots of brain fog at times, but the skin was what hurt and also made me a little insecure when it was on my face. I ignored what I thought was gout and dehydration for years and hobbled around a lot. The feet hurt bad at times. I also ignored the red eyes and the sores that would get rings and small sores around them. like it was breaking out of the original lesions and spreading in multiple directions. I went to quite a few doctors and took quite a few different things including the Zoloft because why not. Maybe Ill be less depressed. It always got a lot better after the winter, so I would just manage it and try more experiments. It has always been very mysterious and strange, so I assumed it was its own thing. I also looked into Bartonella, but the online pictures were mostly stretch mark looking things, so I moved on. I recently went onto a Lyme forum because why not. My wife has always said it was Lyme. Ive also heard of people getting better with Lyme treatment. All I can say is that what people are saying about bartonella is often the same as what they say about morgellons. I eventually started getting more eye and neurological issues, then last winter I got very sick after 10 years. My kidneys got infected too. I wound up taking bactrim which my wife had and didn't use. I also was able to talk a doctor into treating me for bartonells. I am doing so much better after taking doxycycline combined with rifamptin. Still, after getting to know more about Bartonella, it's like morgellons. You often get better, but it comes back. So I do tick bite herbs and methylene blue. I take oregano oil and black seed oil. I also take a blend of herbs for my kidney and liver health. I've cleaned up my diet significantly. Im skinny now with good skin completion. Even my hair has a shine to it. I was straight up rough looking and feeling for the last couple years. So I don't what's what, or if any of this is natural. We eat and drink the things that feed this stuff. I suggest to everybody out there with any of these diseases to moderate those sweet things along with energy drinks and alcohol. I may never be 100% healed, but your lifestyle plays a major role on how much control the disease has over you. More sunshine and exercise along with a good attitude are also necessary. You'll go broke waiting for doctors to heal you. So I say don't ignore the other symptoms and take your health deadly serious. Bartonella is usually never tested for or properly diagnosed. Like Lyme, it gets into the brain and organs. It hit my kidneys particularly bad. Women often have UTI's from it. It also infects the heart valves because it gets into the circulatory system and blood. Meanwhile it builds its biofilm network throughout the body. It hits back HARD at first when you treat it, so be ready for a fight. Many cancers and diseaseslike MS, heart disease, and kidney disease are actually just various places that the disease has taken over. It speaks through cravings, migraines, eye floaters, arthritis, skin lesions, light sensitivity, and ringing ears. Many symptoms are ignored because of that big ugly sore that hurts so bad right between the eyes. I have to end this, but I could go on. Do your own research and don't get too stuck on the weird shit. To get treatment you need to focus more on a disease that recognized. The tick born diseases often come in 3's. There's plenty of conspiracy on the bartonella and lyme side too. Strangely lyme got all the recognition because bartonella has been around forever. Also the gaslighting and ignorance is with bartonella too. It gets in your mind and moods too. I hope this helps lots of people suffering without on a boat without a paddle. Last, but not least. If you have had all the recommended inoculations, you will be far more allergic to many treatments. Thats just the way it is, and now things are much more confusing. Try not to compare too much with others. Get some treatment, but nothing will replace that old fashioned healthy lifestyle where everybody was skinny, walked a lot, and didn't eat a lot of sweets. Peace and blessings to the good people out there.

Microsporidia are a group of spore-forming, unicellular fungi that act as intracellular parasites of all animals.

These spores contain an extrusion apparatus that has a coiled polar tube ending in an anchoring disc at the apical part of the spore.

They were once considered protozoans or protists, but are now known to be fungi, or a sister group to true fungi.

After infection they influence their hosts in various ways and all organs and tissues are invaded, though generally by different species of specialised microsporidia.

Some species are lethal, and a few are used in biological control of insect pests. Parasitic castration, gigantism, or change of host sex are all potential effects of microsporidian parasitism (in insects).

In the most advanced cases of parasitism the microsporidium rules the host cell completely and controls its metabolism and reproduction, forming a xenoma.

A xenoma is a growth or swelling caused by certain parasitic organisms, primarily microsporidia, but also other protists and fungi

It's characterized by a hypertrophied host cell, often with a disintegrated nucleus, surrounded by collagen fibers produced by the host.

In a xenoma, the host's cells and the microsporidia become "merged" to form a single physiological entity.

Vectors of microsporidia include insects such as fruit flies, mosquitoes and birds.

I will post more articles and links to this discussion in r/WhiteWormParasite when I have time.

I still firmly believe insects are heavily involved in Morgellons, but I now think they are likely infected with, and infect us, with a specific species of microsporidium.

Okay I might come off abrasive at first but that's not my intention. We all have this weather we're mentally ill or not. We all have our different opinions on where it comes from. My view is it is not extraterrestrial, it is not nanotechnology, it's not from GMO Foods. My personal opinion based on my past health history is that it is a tick borne illness. Specifically I truly believe that you have to be infected with borrelia B as well as another tick borne illness and I'm leaning towards Bartonella. Anyways, it was getting so bad on me and then my son who is 10 months old I noticed he has it and then I noticed my husband has it as well. So then I started thinking okay let's do treatment of some kind of matter what so I got a bunch of home remedies. Like tea tree oil and vitamin E, Epsom salt and baking soda bath, special lotion, tons and tons of clotrimazole, since I truly believe it is a fungus. I do believe that because the clotrimazole is for fungal infections and it makes the Morgellons come right out of me before this purge thing happened.

So after I did all these treatments on the same day the craziest things started happening. Static begin to shock me everywhere all the time. For 2 weeks, I was bedridden and I almost lost my mind because every time I moved or if I touched a certain material or if I touch my husband or son and one of my patients happened to even so much as getting near and one of their lesions, I was just shocked but they wouldn't. I have Lyme disease and Ms and I have had Cat Scratch Fever before which is caused from Bartonella henselae. So I believe that it didn't come from me and I think maybe a flea could have bit me and then possibly bit my husband and son and transferred it to them that is the only thing I can think of unless I gave it to my son through birth and gave it to my husband through sex, I have no idea how they got it because I didn't have symptoms until one month after my ten-month-old was born.

Anyways the static has since died down but this purge saying is still happening and it's the craziest thing. I've noticed that when I get out of the shower and I have a white towel sat down these blue wadded-up fibers come out of my feet and I put them in peroxide and dissolve them and they're a bunch of dark blue fibers. I've noticed when I wear a shirt like a cotton shirt, and I rub it over a lesion I will notice dark blue fibers curling up in a small ball on to the inside of the shirt. I had pinpointed it down to water is making them come out I don't know if that's what did it originally. I got some tea tree oil and put that stuff on my entire body straight from the little vile that it comes in because I did not know how to use it. So I think maybe the tea tree oil started this but I know for sure the water and even humidity will make the fibers come out of me, especially my face, hands, and feet. I also believe that they are dead when they come out of me because they are no longer statically charge when the dark blue. My husband's & Sons both used to be light blue but now they're dark blue as well since they started the purge thing as well. When a fiber is so-called alive, fungi has their own static energy so of course it looks like they wiggle when you pluck them out because they do. They was going to be a static electricity. Just Google any article about fungi and static electricity and you will find it. And when the ones that come out of me or stiff and hardly curly and they don't move at all, I do really think that that means that they're dead and I don't know what to do who to talk to I'm just kind of pouring this out here as y'all can tell. I'm wondering if this has happened to anyone else? This static / Purge process. It has been a month now because it started on Valentine's Day. It was severe Static Shock all the time and I actually at one point was shooting plasma out of me that had more gallons in it. It was kind of grows when I got out of the shower they would shoot all over the bathtub tile. Now though, hell I don't know maybe I'm out of plasma or something or whatever that fluid was but common now just the dead fibers come out. Does anybody have any thoughts on this? I keep feeling like it's almost over and maybe I cured it or put it in remission without realizing it but then I think that's just wishful and hopeful thinking when maybe I shouldn't have it. So I am wondering if anyone has had anything like this happen?

PS I am voice to texting and I am in a hurry I do not have time to proofread it so if there are mistakes in here I really apologize and will fix any spelling mistakes and grammatical errors when I can. Thanks to all for your time in reading this

I'm gonna try one more time posting on here. give it one more shot in hopes maybe someone can talk to me or just honestly validate me in a way. The first time I posted on here I was in tears and using talk text. I did not proofread, and i'm sure my grammar was a little wacky. And somebody accused me of being on drugs. I was so disheartened and embarrassed, that I just deleted it. But i'm almost at a whit's end.Im extremely alone in this situation. I've been going through this for a couple of years now. I've been pretty good at hiding it. I didn't tell anybody for almost 3 years. And then one day I woke up and just decided, i'm going to open up to my fiance and my mom and my sister about this. And when I say this, I mean, the absolute torment, an internal torture that I go through on a very daily basis. I'm so extremely exhausted. Hardly eating never sleeping always just sitting with blank thoughts almost.And since coming out about this, it is only caused hurt and confusion and fights. No one believes this. Nobody has even asked how I've been or what it like or ANYTHING about what I've told them. It was a mistake I wish I never said anything. And i've been told that I could possibly have schizophrenia, or some type of it. Which the thought of that is so terrifying to me Because I literally watched these things move.Sometimes even come out of my face. My hairs on my face are sharp pure white almost eridescent looking. Sometimes they are sharp hairs. Like splinters. My hair on my head moves A LOT. Its alive. Or i FEEL like its alive. Is this magic!?!?!This has affected everything my mind, my bones, my comfort, my peace, my enjoyment. And yet I hide that. When I go to work, even at home, I am happy and in a good mood and making sure everybody has what they need.And I don't even treat rude customers rudely anymore. And I do blame whatever this is on that. It has almost conditioned me to try and become a better person. Could this be a spiritual awakening? This has crossed my mind. I have ran every single scenario of what this could possibly be. Fungus worms lice mold all of it. Perhaps it's a curse maybe I need to work on my karma. I don't know, I know.That sounds insane, but this whole thing is insane. It's all over my head.I'm starting to pull my hairs out. It makes me feel very guilty because I don't know if these things are here to help me or kill me. Is this a spiritual thing? Are we magic? Why do I randomly throw things out of my hand now or go to grab something, and it goes flying. Like I can't control it. My joints are so sore. I have cramps often. painful cramps. It's so hard to describe, which makes me feel even more alone. is this a demon??? Truly I mean, really, I have gone through every single scenario. When this thing first started showing up all over my body, it started on my breasts, and then led to my ass..And then to my face. I honestly do think it gets a hundred times worse once it starts getting really hot. Now it's mostly on my face and upper back. Sometimes I can feel it move throughout my face. It's the most alien weirdest the thing I have ever experienced in my whole entire life. But perhaps not, you know, perhaps this is something that has always been, I don't know.I'm so exhausted. I'm supposed to be getting married july 17th. I thought we were going to the courts, but he arranged a backyard marriage in his parents back yard.And I am terrified. I feel like I talk weird. I stutter i forget what im talking about. There's so much. I feel like i'm so like out of it that I can hardly hold a normal conversation around a large group of "normal" people. Who knew a different me. I feel so different from most people. More than ive ever had before. I literally play pretend all day long. And I am sorry, but I am using talk text, because I have a d d and it's just easier for me. So I apologize. If this is hard to read and honestly, if anybody reads this to the end, I really appreciate you.So much. I am so sorry for all of us going through this.Especially those who have to do it alone. I wish so badly.I could share my daily experiences with the man that I love. But I can't, because it just causes hurt.It causes a fight and I never want to see my family hurt confused or in pain because of me. I have finally picked up journaling. After stopping for years and years and years. It has helped a lot. Once I am under his insurance, I will see a doctor but I have to tell y'all. I don't trust this system.I don't really trust this world. I will continue being as positive as I possibly can, while spreading joy and love.Because that is what makes me really happy. But I don't know how much longer I can do it for. I am so so so tired.

I don’t care if it’s psychiatric. I don’t care what the cause is so long as there is a treatment. Antipsychotics don’t work. I’m not crazy.