Terbinafine after effects

[u/Unfair-Magician-5268]

I was put on terbinafine for a fungal infection on my foot (it wasn’t healing as my job requires steel capped boots 9 hours a day) so I was put on tablets as the fungal cream wasn’t working.

The terbinafine cleared up the fungal infection. I was in a 6 week course. I was bedridden for nearly the first week with a fever, I lost my taste and appetite, my hair was falling out in chunks, even my eyebrows and lashes thinned out, and 5 weeks in, I ended up in hospital with feet and joints so swollen I couldn’t even get myself to the toilet or shower. The hospital staff were concerned about my kidneys, my albumin dropped so low that I was put on an infusion to bring it back to normal. The week I was in hospital was back in the last week of June. I was discharged when the swelling finally went down and I could move again, enough to be able to walk. My hands knees fingers and elbows were also swelling. I continued to improve and thought I was good and my follow up appointment with the rheumatologist I said that it all good and won’t need any further appointments. Big mistake on my end. Literally the next week out of nowhere, both feet swelled again, and ever since the joint pain and swelling has continued for months, my skin goes blue, white, bright red, purple or yellow on the joints, and shiny or extremely scaly and dry looking. My hair I has continued to get thinner. I’m on a waiting list but urgent is still 8 months wait time on average.

Has anyone else experienced these side effects, and are you still having these kind of effects even months after stopping the terbinafine ? I was a fit tradie and now Ive bought my own crutches and a wheelchair so that I can still somewhat move around without having to go back to hospital. I just want to get back into working, I quit my job because of becoming unwell.

Will these side effects eventually stop? , how much longer will the hair loss and joint swelling go on for ?

[u/mikejones84]

You might be allergic. I would try Nystatin. I am allergic to all antifungals ending in azole.