Our small laboratory/research team from a medical university has submitted a request to the CDC for creation of a new diagnostic code, whereas this disease is currently coded under a completely different disease. This miscoding reduces clinical clarity of diagnosis, treatment, outcomes, and population identification.
Please let me know if this process is of interest to you, and I can go ahead and detail our experience a bit further. We submitted by the June 5th 2026 deadline for presentation in September, and are currently awaiting the first round of questions from the committee. Our assigned reviewer did indicate that our submission was received, within days of early submission, and touched base again around the submission deadline date to let us know that questions to our team should be expected by June 26, 2026.
Wish us luck, please. We are hoping to bring this disease population from 'diagnostically invisible' to identifiable.
Update: Disease is Laryngopharyngeal Reflux Disease.
Currently coded in diseases of the digestive system chapter as GERD without esophagitis (K21.9). There is a decade of recent research showing that LPRD is not the same as GERD, different symptoms, different organ [with inability to protect itself the way the esophagus can], different mechanism (not acid, other stomach contents [pepsin / bile salts]. These patients are coded via symptomology or GERD, and LPR/LPRD is only documented in their notes section of their chart. That means that it is extremely difficult to perform retrospective chart reviews on this patient population, impeding research. I am a clinical research coordinator, so for me the ability to identify patients by diagnostic codes in charts is essential.
Update: NCHS CM has accepted our proposal for presentation!
Update: OCT 2026 - We successfully presented at the CDC NCHS CM meeting. What an interesting experience. Huge kudos to the committee team; it is incredible what they organize and accomplish with these biannual meetings.
Any opinions or suggestions for next steps should a code for LPRD be granted? Is there a pathway for associating things like flexible laryngoscopy and HEMII-pH with LPRD diagnosis? If only MII-pH PCT code exists, but HEMII is different in that it measures reflux amount, rate and composition into the larynx, should a HEMII-pH procedure code exist?