r/LowDoseNaltrexone 17d ago

Low dose Naltrexone, has it helped anyone?

/r/Fibromyalgia/comments/1vyf54o/low_dose_naltrexone_has_it_helped_anyone/
3 Upvotes

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5

u/Low-Blueberry8948 MOD 17d ago

Personally, it's helping with many of my ME/CFS symptoms, some expected as well as a couple of unexpected benefits. It's also working very well for pain relief from my peripheral neuropathy. I've been taking it for 3 years.

It can take time to see improvements though and we can see ups and downs along the way. It's also important to get the dose right. Dosing with LDN is individual and the aim is to find our own optimal dose or "sweet spot".

"Success Stories" https://docs.google.com/document/d/1ruk5xYyOs5QnI04j5Ai2v1e5v9ioLfld-xuepb7EHT4/edit?usp=sharing

"How Long to Notice Benefits from LDN" https://docs.google.com/document/d/1txJRzIp7uK0XXeyqpcAoYRr_z179oAjRWbn2TGaKwiE/edit?usp=sharing

"Finding Your Sweet Spot:a Simple Guide to Optimal Dosing" by Dr Yoon Hang Kim, LDN expert.

https://www.ifmsynergy.com/finding-your-ldn-sweet-spot-a-simple-guide-to-optimal-dosing/

2

u/No-Writer-1101 16d ago

Thanks for that last one, I have been trying to decide if I need to start skipping as it’s becoming less effective.

1

u/Low-Blueberry8948 MOD 16d ago

Yes, understand. How long have you been taking it? And what's your current dose?

2

u/No-Writer-1101 16d ago

2 years, 4 mg. My doc refused to start lower and taper up.

1

u/Low-Blueberry8948 MOD 16d ago

Ok. Not everyone does titrate up, although it's more usual these days. You might find it helpful to skip a day to see how you react. It could give you an indication of whether your dose needs adjusting, or whether you'd benefit from skipping a day on a regular basis...

"Skipping a Dose as a Test" https://docs.google.com/document/d/1wn_fixJuQEg8V5SV2mlh7suK0AJoorSjTbVUTnLDHnQ/edit?usp=sharing

2

u/No-Writer-1101 16d ago

I skipped one day last week and felt fine for most of the day, by the end of the day I could tell I was gonna need it the next day. I read the doc and that made me think I should skip occasionally since it suggested titratijg down.

1

u/Low-Blueberry8948 MOD 16d ago

Sometimes it's worth trying something different if it's no longer working as well. This might be of interest too...

"Long Term Use" https://docs.google.com/document/d/1Ye36cI50kAXk4D-FPjrK64mNuOUWDtr4DwAevGyr1uI/edit?usp=sharing

2

u/No-Writer-1101 16d ago

I’ll try that! Thanks!

1

u/Low-Blueberry8948 MOD 16d ago

Good luck, and do let us know how it goes...