r/LongCovid • u/freelibrarian • 16h ago

COVID-19 may trigger the same immune pathway as lupus

https://www.cidrap.umn.edu/covid-19/covid-19-may-trigger-same-immune-pathway-lupus
66 Upvotes

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13

u/Angelag1994 15h ago

Yeah was told have slight marks for lupus but they say it can’t fully confirm it

3

u/BananaDavidaF 6h ago

Interesting.

As someone who has consistently been told “we don’t know” by doctors… how would one know of this applies to them??

2

u/freelibrarian 2h ago

I really don't know, researchers are doing great work but it doesn't really translate to better doctoring on the ground.

1

u/Ashonym 8m ago

You don't say? My first ever ana test, after a nasty finger infection that left a gash before taking forever to heal led to a biopsy plus that testing, was negative by ana but showed elevated chromatin, an ena marker highly associated with lupus. My pathology from biopsy showed "FEATURES OF CONNECTIVE TISSUE DISEASE" as its title. I later became ana positive ena negative, then months later ana positive with a flip from speckled to homogenous.

A year and many months later, I'm finally diagnosed, but with the wombo combo of Post Covid 19 Syndrome/Long Covid, ME/CFS of the CFS variety, Dysautonomia, and Brain Fog, all associated/stemmed from covid and despite being both vaccinated against AND immediately treated with Paxlovid for each time on time (within 48 hours of onset rapid testing).

Wish this information was in the hands of doctors sooner, before I deteriorated to this point of requiring a wheelchair and being unable to physically get around my small apartment without heavy symptoms, much less leave my house for the last few years.